The UK and Ireland's only charity supporting people affected by Multiple System Atrophy. We rely entirely on voluntary donations and fund research into MSA.
London, N1 0QH
Joined January 2011
- Tweets7.1K
- Following699
- Followers2.3K
- Likes706
2025-2026 Impact Report!
We're pleased to share our 2025-26 Impact Report, highlighting a year of growth, impact and support. Find out more about the milestones we've achieved together and the difference your support has made by reading the report online: msatrust.org.uk/about/impact…
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Give the gift of thoughtful planning with this 2027 slim week-to-view diary. Perfect for staying organised.
Produced by Stephen, a member of our MSA community, in memory of his wife Alison, this diary supports the MSA Trust- ow.ly/LOLz5104z4v
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Research update: TOPAS-MSA
Teva has announced that it will stop the Phase 2 TOPAS-MSA clinical trial of emrusolmin early, following a planned review of the results collected so far. Read our full update- msatrust.org.uk/research/res…
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Join our next MSA Community Research Webinar.
We're delighted to invite you to a free online webinar on 17 November 2026, 2-3pm, where leading researchers will share the latest developments in MSA research and clinical trials. Link to Register: bit.ly/4BtsSGJ
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"To commemorate 10 years since I lost my wonderful dad Paul I decided to run 10k, 1k for each year that has passed. I wanted to raise money for the MSA trust as such a rare condition deserves more awareness and support."
Thank you Sophie, for raising over £800!
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We’re pleased to announce that the MSA Trust has been chosen by the @EoECoop
on Connaught Road, Frinton-on-Sea, to be their Winter Community Cares Charity.
Their in-store support and fundraising will help raise money and awareness for the MSA Trust.
#CommunityCaresFund
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With just one month to go until our annual tree planting event at Sarah’s Wood, we invite our community to come together to plant Sherwood oak saplings in honour of loved ones affected by MSA. We still have places available, so please register and join us- msatrust.org.uk/get-involved…
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Our Hospital Information Folder can be helpful for routine or emergency admissions. It gives medical staff an overview of MSA and there's space to fill in information about your particular needs.
You can order your folder, free of charge, by emailing [email protected]
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In memory of her mum Rose, Vicki walked 63 miles for the 63 years they had together.
"The miles gave me time to remember Mum, talk about her and raise awareness of MSA. If our story helps more people understand this rare condition, that means a lot."
A huge thank you to Vicki.
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"So we did it!!!! And wow what a day of emotions. Was so proud to be supporting MSA trust who had a couple of shoutouts as we went round the course! We have raised a total amount of £2,133!! So chuffed!"
Thank you to Sophie and her team, for completing the Oxford Half Marathon.
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You can make a lasting impact when using the National Free Wills network’s participating solicitors to write or update your Will.
To order your Free Will pack visit msatrust.org.uk/get-involved…
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Our Christmas shop is packed with festive cards, wrapping paper, diaries, notelets and more. Every purchase helps fund our vital support services and research, while sending Christmas cards to friends and family helps raise awareness of MSA- shop.msatrust.org.uk/
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We understand the challenges that life with MSA brings, and if you cannot visit a law firm, the National Free Wills Network does recommend solicitors that offer home visits.
To order your Free Will pack visit msatrust.org.uk/get-involved…
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"Oliver completed the Mini Great North Run last month in memory of his Grandad Ian, who we sadly lost this year. Ian was diagnosed with MSA and adored his grandsons, Oliver and William. He has raised over £600".
Thank you so much to Oliver for completing the run.
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Today is World Mental Health Day, but mental health is not something to think about once a year, it should be considered every day.
Our Emotional Impact page can help by suggesting ways to support emotional wellbeing and signposting to available help - msatrust.org.uk/support/livi…
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Supermarket token schemes are a simple way to raise money and awareness in your community.
Check if your local supermarket runs a scheme and nominate the MSA Trust. If selected, shoppers can vote for us with a token at the checkout- msatrust.org.uk/get-involved…
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Encouraging new research results from Alterity Therapeutics suggest that ATH434 may help slow the progression of MSA, but larger Phase 3 trials are needed to confirm the benefits and safety of the treatment before it could become widely available.
ow.ly/70WH50ZVnp8
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After his wife Esther was diagnosed with MSA, Kevin and his family received vital support from the MSA Trust. Inspired to give back, Kevin and his son Michael took on a 15,000ft skydive, raising over £2,000 for the MSA Trust and their local hospice!
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Our Christmas Shop is now live!
Visit our online shop and make a purchase to support the MSA Trust and our work, helping us continue to support everyone affected by multiple system atrophy.
shop.msatrust.org.uk/product…
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Last Thursday was Gift Aid Awareness Day, a great reminder of the difference Gift Aid can make to charities like the MSA Trust. If you're a UK taxpayer, please remember to tick the Gift Aid box when making a donation.
msatrust.org.uk/get-involved…
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