Ask your PKU question via the Ask the Expert portal on NPKUA.org today!
August’s expert is Laurie Sprietsma, RD, LD, Metabolic...
The NPKUA is proud to announce that Dr. Kristen Skvorak-Vallieu is our second NPKUA fellow!
We will be funding her project entitled,...
Ask your PKU question via the Ask the Expert portal on NPKUA.org today!
July’s expert is Dr. Susan Waisbren, Associate Professor of...
The winner of the States was: but the true winner is everyone! We all need the Medical Foods equity act (S.311 and H.1311)...
Only a few days away from the NPKUA board meeting in DC, where we will meet with members of Congress to talk about the Medical Foods...
We are very thankful for Congresswoman Tammy Baldwin for introducing the bill to the House this year! Be sure to write your...
We are very thankful to Senator John Kerry (MA) for introducing the bill in the Senate this year! Be sure to write your senator and tell...
Battle of the States: This week we will have a contest to see which state can reach out to the most House Representatives and make...
The winner of the Battle of the Genders was: but the true winner is everyone! We all need the Medical Foods Equity Act (S.311...
You may be just one person. But if everyone places one call to their representative, Senators and House Representatives around the...
Battle of the Genders: Men vs Women- This week we will have a contest who can send out the most letters and emails to their local...
Happy Mother’s Day to all the PKU moms out there and all the women with PKU that are mothers. As a special thank you to our mothers,...
Need some talking points for your letter or phone call to Congress? Click here to get this handy flyer-...
Thanks to everyone who has contacted your House Reps. We look forward to supporting you May 23-25 in Washington, DC. If you haven’t done...
Now that you have sent an advocacy letter, use that information to contact your local rep and let them know you want them to support the...
Encourage friends and family members to reach out to their local representatives! Send them this link with some talking points to get...
Have any specific questions on how to contact your local rep about the Medical Foods Equity Act? Post here and we will be sure to help...
Never contacted your Senator before? Nervous? Don’t worry: we were too the first time. We will walk you though it to take the worry away....