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The PSP Association

@PSPAssociation

Helping people living with Progressive Supranuclear Palsy & Corticobasal Degeneration to live the best life they can #TeamPSPA 🧠

 United Kingdom
pspassociation.org.uk/news/wear-eds-lace-to-raise-awareness-of-psp-cbd/
Joined January 2011
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Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)Photo by The PSP Association (@PSPAssociation)
The last session of day 1 of #Neuro26 highlights the increased understanding the roles of inflammation, microglia, and astrocytes play in the development and prognosis of PSP & CBD. We ended with an all female panel! #Neuro2026 #Research #ResearchConference
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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It was exciting to hear insights from multiple pharmaceutical companies about current and past studies which can help inform future trial design. #Neuro2026 #ResearchConference
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It was good to see a whole session focused on CBD, with an understanding of clinical presentation. It finished with the hope that a trial will happen for CBD. #Neuro2026 #CBD #Research #ResearchConference
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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We’re excited to be at #Neuro2026! We’ve had insightful sessions so far about the difficulties around clinical diagnosis, but how a multi-arm and multip-protein approach can provide hope for the future.
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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The PSP Association retweeted
Matt Webley (@mrwebleyteach) profile picture
Matt Webley@mrwebleyteachNov 1
Was nice to keep Dad in mind whilst running in Tenerife over half-term, he absolutely loved the island, many a special memory had there. Under 6 months now until I run the @LondonMarathon for @PSPAssociation any support for my fundraiser gratefully received! #running #charity 2027tcslondonmarathon.enthus…
Image from Matt Webley (@mrwebleyteach)
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Missed our #Masterclass for #health & #social care professionals? Gillian McKinley shared expert tips on communication & swallowing in PSP & CBD. Watch & share the recording: ow.ly/WOP750ZZmtb #Communication #Neurological
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#Health & social care professionals in #England: ImproveAPS wants your insights! Join an online focus group on services for people with CBD, PSP, or MSA. 75 mins, shopping vouchers. Based in Midlands/East Anglia? Email [email protected]. Closes 3 Nov—please share! #Research
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We welcome the one-off £100 payment for some council tax bands to help with energy bills. More people are seeking Support Grants for daily costs. The new taper to Carer’s Allowance is a step forward, but we urge the government to do more for carers. #Budget #CostofLiving #Carers
Image from The PSP Association (@PSPAssociation)
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Diagnosis of PSP & CBD can take 3–5 years. Our Eye Red Flag Poster helps opticians spot 3 key signs: 👁️ Eye movements 👁️‍🗨️ Eye lids 🎯 Fixation #Opticians: Download & share the poster to help improve early diagnosis: ow.ly/Ma5I50ZZnuo #EyeHealth #EarlyDiagnosis
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We’re seeking our next Chair as Rowena Ironside steps down. Are you a visionary leader with strong governance skills? Make a real impact for people living with PSP & CBD. Voluntary role, expenses covered. Apply: ow.ly/ZCAs50ZXy1Q Deadline: 4 Dec. #VoluntaryChair #ApplyNow
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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Our #Volunteer Support Group Coordinator Maria Rodrigues, with Val Richardson and Bob Ruskin, met MP @LizTwistMP to discuss caring for loved ones with PSP, CHC Funding, and the challenges of PSP & CBD. They’re also reaching out to other MPs. #TeamPSPA #MP #Policy #NHS
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Our Helpline Care Navigators Alexandrea and Kaysha are excited to be in #Birmingham today at the Parkinson's Nurse Conference to speak to health and social #care professionals about PSP, CBD and the charity. Do stop by and say hi if you're attending!👋#ParkinsonsNurses
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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Missed our Healthcare Professional #Masterclass? Catch up anytime on our website or #YouTube! Gillian McKinley, Speech & Language Therapist, shared tips on PSP & CBD: safe swallowing, nutrition, and #communication. Watch here: ow.ly/BV5x51003se #PSP #CBD #Webinar
Image from The PSP Association (@PSPAssociation)
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Our Guide to PSP & CBD for Physiotherapists covers: 📖 Multidisciplinary management 📖 Physiotherapy intervention 📖 Symptom management & more Read & share: ow.ly/Einl50ZXWl1 #HealthCareProfessionals #Physiotherapy #Physiotherapists #HealthGuide
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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We're seeking a new Chair as Rowena Ironside steps down. If you have strong governance and people skills, you could help lead PSPA through change. Voluntary role, expenses reimbursed. Apply: starfishsearch.com/jobs/pspa… Deadline: 4 Dec #CharityJobs #Volunteering #BoardChair
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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Catch-up on our #masterclass for health and social care professionals. Dr Boyd Ghosh delivered this insightful Masterclass and was joined by former #Carer Denise Hunt who shared her Lived experience of a #misdiagnosis. Watch and share the session here: ow.ly/OWLO50ZV0r7
Image from The PSP Association (@PSPAssociation)
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Our Director of #Policy and Influencing, Mark was at the House of Lords yesterday, for a discussion with Peers on the Health Bill and how they can ensure that it delivers what people with neurological conditions need. The event was hosted by The @NeuroAlliance #HealthBill
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
Image from The PSP Association (@PSPAssociation)
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Our new-look PSPA Matters is here! Download the latest edition or listen to the audio version on our website. Inside: research updates, PSPA Strategy news, and progress in diagnosing PSP & CBD. Read now: ow.ly/ULBX50ZUZ59 #PSPAMatters #PSPResearch #Magazine
Image from The PSP Association (@PSPAssociation)
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Sign The @NeuroAlliance call for a national plan for neurological conditions below 👇 #OpenLetter #Government #NeuroPlan
The Neurological Alliance (@NeuroAlliance) profile pictureThe Neurological Alliance@NeuroAllianceOct 8
📆 Less than one week to support our call for a Neuro Plan Now! 🧾 Right now, there is no national plan for neurological conditions. But together we can change that. 📝 Sign our open letter today and push for change for millions of people. bit.ly/4w5hHAY
Image from The Neurological Alliance (@NeuroAlliance)
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Have 7 minutes to spare? Help shape the future of PSPA by sharing your feedback! We're developing a new website and want to hear how you use it. Complete our short survey: ow.ly/AGuf50ZURWq Please share with colleagues. #Survey #Feedback #UserExperience
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