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Now Recruiting: The Rosetta Stone study at Imperial College, London!
The team, led by Professor Danny Altmann and Professor Rosemary Boyton, are hoping to uncover biomarkers, mechanisms, diagnostic tools, and future therapeutic pathways, and are now recruiting participants among people with ME/CFS, Long Covid and Healthy Controls.
If you are interested in taking part, please read the full blog for the eligibility criteria and to express your interest: meassociation.org.uk/9be1
#MECFS #LongCovid #pwME
BBC News: 'Five years of Long Covid and my symptoms are worse'
"She says: "I've been turned down from a lot of [NHS] services, because I am too complex. There's too much going on so they can't help one specific thing because they don't know what the others are."
Read more: bbc.co.uk/news/articles/c8p3…
#LongCovid #PostCovid #MECFS #NHS #PoTS
Beth Dobbin interviewed on BBC Radio Sheffield!
Listen to the interview covering Beth's experience with ME and her letter to PM Andy Burnham.
Thanks to Adam (aka @ABrokenBattery ) for uploading the interview clip: youtube.com/watch?v=3UaP6csC…
#MECFS #pwME #MyalgicE
The @mecfsbiobank team continues to make excellent progress on our HHV-6 study, which investigates the potential role of Human Herpesvirus 6 (HHV-6) in ME/CFS and Long Covid, and explores how viral activity, immune responses, and symptom changes may interact over time.
Read the latest update on the blog: meassociation.org.uk/bimh
#MECFS#LongCovid
The ME Association hold a stall aimed at medical professionals at Newcastle’s Royal Victoria Infirmary
Situated in a main lobby between the Great North Children's Hospital, outpatient services (including Neurology), and the education block, the stand was seen by many staff and patients
For more details and to view all the photos click here:
meassociation.org.uk/hgr9
#MECFS #MyalgicEncephalomyelitis #NHS #HealthcareProfessionals #Newcastle
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Medical Matters: Medical Student Education
Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.
Q: What could individuals do to improve medical student education on ME/CFS?
A: meassociation.org.uk/medical…
#pwME #MECFS #MyalgicEncephalomyelitis #MedicalEducation
Search the free information database Medical Matters here:
meassociation.org.uk/medm
1/2 The Rosetta Stone study at Imperial College, London - Find out how to participate
Professor Danny Altmann and Professor Rosemary Boyton have been given the green light to begin work on the largest biomedical study into ME/CFS and Long Covid that the ME Association or any other UK charity has commissioned.
2/2 The £1.2M project aims to apply advanced molecular analysis to people with lived experience of ME/CFS and Long Covid, and to healthy controls.
If you are interested in taking part, please read the blog in full which provides the eligibility criteria and information on how to express your interest:
meassociation.org.uk/9be1
#pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #RosettaStone #Research
This morning, Beth Dobbins was interviewed from her home on Good Morning Britain, where they discussed ME/CFS, Beth's letter to the Prime Minister Andy Burnham and the Government, where she outlined the desperate need for further research funding.
Listen to the interview on YouTube: youtube.com/watch?v=EVA2oHxw…
#MECFS #pwME #MyalgicE #BethDobbins
UK ME/CFS Biobank Joins Major European Research Collaboration
We are delighted to share that the @mecfsbiobank is contributing to the new Horizon Europe-funded DISCOVER-ME project, an international research collaboration focused on uncovering the biological mechanisms driving ME/CFS and improving approaches to diagnosis, disease classification, prognosis, and treatment.
Read more: meassociation.org.uk/74y2
#MECFS #pwME #MyalgicE #Research #Biobank
Carers UK has shared that the latest government budget includes plans to abolish the cliff edge for carers allowance in 2030-31.
Last year, together with @CarersUK and 106 other organisations across the country, The ME Association signed an open letter calling for an immediate halt to Carer’s Allowance overpayments.
Read more about this update from Carers UK: carersuk.org/press-releases/…
And from Benefits and Work: benefitsandwork.co.uk/news/c…
#Carers #MECFS #LongCovid #UnpaidCarers #AutumnBudget
GOV Press release: gov.uk/government/news/every…
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Join ME Connected, our online community on Discord for people affected by ME/CFS and Long Covid - whether you're a person with ME, carer, family member, or friend, you are welcome in our supportive and friendly space.
Join via this link: meassociation.org.uk/discord
Guidelines on how to join: meassociation.org.uk/MECD
#MECFS #pwME #LongCovid #DiscordChannel #OnlineCommunity
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More than 350 sportspeople sign @BethDobbin's letter to the Prime Minister calling for ME/CFS research funding
Read more: meassociation.org.uk/nsye
#MECFS #pwME #MyalgicE #SevereME
Share the Season's Greetings with your loved ones whilst also supporting people with ME/CFS and Long Covid in the UK.
Pack of 10 with envelopes for £4.50 with free delivery! Get yours whilst stocks last!
meassociation.org.uk/26Chris…
#pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #MEAssociation #CharityChristmasCards
ME Connect is our free, confidential support service offering a safe, understanding space where you're truly listened to. Whether you need someone to talk to, emotional support or simply a compassionate ear, we're here for you.
Get in touch today:
0808 801 0484
[email protected]
Opening hours:
Monday-Friday: 10am-5pm
Thursday: late night until 9pm
Saturday: 10am-12noon
#MECFS #pwME #LongCovid

ALT IMAGE DESCRIPTION: Two photos side by side. One if of a young woman sat in bed, on the phone with a slight smile on her face. The other is of an older woman on a call on a headset with a kind smile. Wording : ME Connect, We're here for you. The support service for people with ME/CFS and Long Covid.
HC Bulletin: Healthcare Team raises concerns over loss of specialist ME/CFS and Long Covid services in Coventry and Warwickshire.
The MEA Healthcare Team has continued to raise concerns with the NHS Coventry and Warwickshire Integrated Care Board (ICB) following the closure of specialist ME/CFS and Long Covid services in the area.
Read in full: meassociation.org.uk/oz7h
#MECFS #LongCovid
Medical Matters: Mitochondrial Dysfunction
Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.
Q: What is mitochondrial dysfunction, and what research has been done into its effects on people with ME/CFS?
A: meassociation.org.uk/medical…
#pwME #MECFS #MyalgicEncephalomyelitis #MitochondrialDysfunction #Mitochondria
Search the free information database Medical Matters here:
meassociation.org.uk/medm
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A new research paper, titled "Real-world effectiveness of Paxlovid in protecting Long COVID for outpatient adult patients: A target trial emulation study from the RECOVER Initiative" has been published in PLOS Global Public Health.
Dr Charles Shepherd comments on the blog: meassociation.org.uk/vnt7
#LongCovid











