We want people to be in control of their end-of-life decisions because there is no-one better to make them.
London, UK
Joined December 2012
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📢 New webinar!
Join us for a 60 minute solutions-focused webinar where we discuss what’s needed to build a successful public health campaign that helps people to make end-of-life decisions that are right for them.
eventbrite.com/e/supporting-…
“We provide a human connection in a disconnected system”
In this latest article from @rcni, specialist nurse Amber reflects on joining our clinical team and how prioritising people through phone-based support acts as a crucial safety net in end-of-life care.
rcni.com/nursing-standard/ca…
Compassion in Dying retweeted
The only thing in life that’s guaranteed is death. Make sure you die the way you want to.
In this week’s Daily Mail Good Health section, I share the story of two very different endings. One tragic, chaotic, and avoidable. The other – calm, peaceful, and exactly as it should have been.
The difference? A simple conversation and one crucial form.
Have a read – it may be so important for you or your loved ones in the future.
Compassion in Dying retweeted
Very pleased to be working with friends within the LGBT community to launch this new provision. This will launch in September, initially in person in Cornwall and online for anyone to join. @CornwallLive @BBCCornwall @CornwallCouncil @CornwallPride @AGoodDeath
A very happy birthday to the Open Justice Project team 🎉🎉🎉
An incredible initiative backed up by selfless, tireless volunteers. Long may it continue!
It's our birthday - 5 years old today!
Who are we and what have we achieved in the last five years?
And what's next?
#openjustice #notsecretcourt
openjusticecourtofprotection…
Compassion in Dying retweeted
Have you registered for June's Clinical Nutrition Webinar? Upskill on Ethics & Nutrition with @KitzingerCelia, who was on the core editorial group of the British Medical Association committee that authored the national CANH.
Register here: bit.ly/4jaWkai
These conversation will continue and we will be reaching out to all webinar attendees so we can capture their insight as we move forward with the idea of a public health campaign to help people make the end-of-life decisions that are right for them. Thanks for joining us today.
Mandy reflects on changes she has made to her clinical practice, informed by the experience of her mother's death.
These conversation are having an impact on patients on her unit, and helping people end their life in a way that is in line with their wishes.
Usha: we are not talking about corralling people into a certain set of decisons...one size does not fit all.
What support do people in communicates need to make this work and is their a risk this process is an "anglophone" one?
Tom: Clinicians are often worried about bringing up the subject. So they need tools to support that conversation ; to ask questions and be ready to listen .
A key theme for theme from the questions: that people record their wishes do not always trust that they will prevail.
What can we do to ensure they are?
The challenge is for the public to have these conversations, and the challenge for clinicians to listen and relinquish a little control.
At its most raw, when CPR cannot reverse the dying process it can be a distressing for everyone involved. The goal is "appropriate CPR" being available to all. With emphasis on "appropriate "
The appropriateness of CPR is something that often comes up in conversations at the end of life. But Tom has also seen when people have received CPR that was not right for the person.
Now we are hearing from Tom Wood, Tom is a nurse and clinical lead for the Resuscitation Council. Tom will be talking about what the resuscitation council have learnt through developing and delivering the RESPECT process
Professor Kellahear makes the comparison with the health and social care system at the beginning of life - its not one size fits all.
Over the past 10 years we have been building a system for the end of life.
"we like to be where people are" - a public health approach to the end of life care recognises the reality of how people experience dying and bereavement .
Now Professor Allan Kellahear is speaking, Allan is the Professor of End-of-Life Care at Northumbria University and the founder of the international public health movement in palliative care.