@ALSAIndiana

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

 Indianapolis, Indiana
alsaindiana.org
Joined October 2011
  • Tweets2.2K
  • Following129
  • Followers1.1K
473Media
Join ALSA Indiana for the upcoming Powerful Tools for Caregivers course! The first class is February 8th at 1pm EST via Zoom. To register, please contact Chelsea Richards at [email protected] or 317-767-1407. Can’t wait to see you there! #ALS #caregiver #selfcare
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#ALS can cause people to have difficulty breathing and keeping their airways clear. Here are 3 of the essentials for maintaining airway clearance in individuals with ALS 👇 🔺 Protect the airway from aspirating 🔺 Maintain adequate cough 🔺 Measuring airway clearance ability
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For more information about how to manage breathing for individuals with ALS, check out our seminar here ➡️ fb.watch/hBze_4P6Bp/ #ALS #whateverittakes #ItTakesAllofUs #healthcare #respiratory #airway
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ICYMI: In October, a man from Indianapolis biked 100 miles to raise money and awareness about Hoosiers living with #ALS. Learn more about his incredible journey and how his #fundraising efforts changed the lives of folks living with ALS 👉 wthr.com/article/news/local/… #ItTakesAllofUs
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For many, #driving is a necessity for maintaining independence and financial security. Unfortunately, diseases like #ALS can affect a person’s ability to safely operate a vehicle. Check out our article for more info ➡️ als.org/navigating-als/resou… #ItTakesAllofUs #disability
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We have a lot of great things planned for this year! We can’t wait to connect as a community and work together to support those living with ALS and fund #research to cure #ALS! Keep up to date with our calendar here: webin.alsa.org/site/PageNavi… #ItTakesAllofUs #ALSwalk
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There are several therapy options to support #respiratory and ventilation functions for folks living with #ALS, include ⬇️ 🔹 BiPAP 🔹 Bi-Level 🔹 Non-invasive ventilation 🔹 Tracheostomy 🔹 Portable ventilator 🔹 Multi-Function ventilator More info ➡️ fb.watch/hBze_4P6Bp/
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If you’re a caregiver to someone living with ALS, consider checking out our #Caregiver Education Course! Learn how to #support the specialized needs of people living with #ALS and develop greater confidence in your caregiver responsibilities. Enroll here: als.org/navigating-als/for-c…
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Many patients are concerned about the high annual cost of #Relyvrio, a new drug that can help slow the progression of #ALS. Learn more about how patients are navigating the healthcare system to access this critical #medication 👉 fortune.com/2022/12/18/als-p… #ItTakesAllofUs #medical
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If you or your family are in need of #medicalequipment, check out our equipment loan closet! We can offer donated and durable medical equipment to families in need. For more info, contact us at [email protected]. #ALS #whateverittakes #ItTakesAllofUs #donations
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The Lawrence and Isabel Barnett Drug Development Program is an exciting funding source that allows us to fund ALS-related research projects for preclinical trials. Read more ➡️ web.alsa.org/site/PageNaviga… #ALS #whateverittakes #ItTakesAllofUs #STEM #scienceresearch #sciencefunding
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What age does ALS start? 🤔 Most people who develop ALS are between the ages of 40 and 70, with 55 being the average age of diagnosis. Learn more here ➡️ als.org/understanding-als/wh… #ALS #whateverittakes #ItTakesAllofUs #genetictesting #ALSquestions
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If you’re seeking guidance on your journey with #ALS - or information to help care for someone with ALS - consider joining one of our local support groups! ❤️ Join today 👉 webin.alsa.org/site/PageServ… #whateverittakes #ItTakesAllofUs #PALS #caretakers #supportgroup #mentalhealth
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While #ALS can be genetically passed down, about 90-95% of ALS cases occur in individuals with no family history of ALS. For some individuals, ALS is caused by a gene mutation that can be passed down genetically or occur sporadically. #whateverittakes #ItTakesAllofUs
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Check out this blog for more information about the genetics of ALS and if you or your family is at risk of ALS ➡️ als.org/research/research-we… #genetictesting #ALSquestions
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Looking for some fun, wheelchair-accessible destinations across Indianapolis? Check out this list from accessibleGO for a list of fun, ALS-friendly activities 👉 accessiblego.com/articles/To… #ALS #whateverittakes #accessible #accessibility #wheelchair
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The US department of #Veteran Affairs has approved to cover RELYVRIO, the new drug recently approved by the FDA to treat ALS. #Veterans living with #ALS will now have access to RELYVRIO through their VA benefits. Read more here ➡️ als.org/stories-news/va-appr… #whateverittakes
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Early #symptoms of ALS can look different for everyone. Here are a few of the common early signs of ALS 👇 ✳️ Muscle weakness ✳️ Fine motor issues ✳️ Change in vocal pitch ✳️ Difficulty swallowing Learn more here 👉 als.org/understanding-als/sy… #ALS whateverittakes #ItTakesAllofUs
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Your donations help us fund critical research to find a cure for ALS and support those living with ALS across Indiana. Consider making an end of year donation today ➡️ webin.alsa.org/site/PageNavi… #ALS #whateverittakes #ItTakesAllofUs #research #medicalresearch
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The money raised in 2014 and beyond during the #IceBucketChallenge brought us AMX0035, an effective #ALS treatment. This drug has been FDA approved, but now what? Medicare and private insurance companies will need to determine what they will cover before it is available.
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Learn more 👉 als.org/blog/amx0035-approve… #whateverittakes #ItTakesAllofUs
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