The Vancouver Acromegaly Support Group is focused on providing support for #acromegaly patients in Western Canada.
Vancouver & Western Canada
Joined October 2014
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Acromegaly West retweeted
Chiasma’s Octreotide Capsules Could Be Answer to Acromegaly Treatment Burdens bit.ly/3iE8pq1
Acromegaly West retweeted
You are stronger than you think you are. #acromegaly once gave me the #hulk look 😂. Now it is the purpose of my life to help patients like me. #MyStory #lifewithacromegaly #cyclingdiaries – at Rajendra Nagar, India
Acromegaly West retweeted
🎉Get ready for #AcromegalyAwarenessCanada!🎉
Join us Nov. 1 as we flood social media to raise awareness and start conversations.
👕 T-shirt sizes: M, L, XL, 2XL
💲 Cost: $15 (incl. shipping in Canada)
📨 Email [email protected] by Oct. 23 for delivery by Nov. 1
ALT Get prepped for Acromegaly Awareness Day in Canada, November 1. Buy our snazzy t-shirt, wear it with pride, snap and share a pic, use #AcromegalyAwarenessCanada, and make our voices heard!
Acromegaly West retweeted
FDA Approves Chiasma, Oral Treatment for Acromegaly bit.ly/3htdssF #raredisease #acromegaly #treatment #research @camraredisease
Acromegaly West retweeted
Apathy and Pituitary Disease: It Has Nothing to Do With Depression cushieblog.com/2015/08/22/ap… via @cushings
Acromegaly West retweeted
With absolute great pleasure to share the BC GOVERNMENT approving 4th year in a row the Proclamation of ACROMEGALY AWARENESS DAY OF NOVEMBER 1st. @AcroVan #Acromegaly @markstrahl @BCGovNews
Acromegaly West retweeted
Vandaag is het wereld #acromegaliedag In dit artikel op de site Meer Over Medisch vertelt Marloes wat een enorme impact de aandoening heeft op haar leven. Prof. dr. Biermasz van het @LUMC_Leiden vertelt wat de aandoening precies inhoudt #hypofyse #tumor #acromegaly #acromegalie
ACROMEGALIE, ineens begon Marloes weer te groeien... #endocrinologie #reuzengroei #hormonen - meerovermedisch.nl/article/a…
Acromegaly West retweeted
Today is Acromegaly Awareness Day #acromegalyawarenessday #acromegaly and I will be telling you on air @phoenixfm about my diagnoses and subsequent remission. #eatmybrunch #michelleward #acromagelyremission
Acromegaly West retweeted
Hoy dia mundial de la Acromegalia VISIBILIZAR 2019 youtu.be/44J40N1F0Z4 vía @YouTube #acromegaly @sociedadSEEN @NeuroendocrinoS @PituitaryWNews
Acromegaly West retweeted
Today is #WorldAcromegalyDqy! #Acromegaly is one of few diseases which can be suspected at first sight but diagnostic delay unacceptably high! Today I ask every doctor in the world to just look better at their patients! Early diagnosis means often cure by expert neurosurgeon
Hoy es día mundial de la #Acromegalia
@Acromegalia_Esp ha preparado esta #infografia en la q se incluyen los #síntomas para darla a conocer.
¿Nos ayudas a compartir?👉Detección Temprana.
#MyAcroLife #WorldAcromegalyDay
Y con @pfizer_spain este vídeo👇
youtu.be/44J40N1F0Z4
Acromegaly West retweeted
It’s acromegaly awareness day!
“Alone we are rare but together we are strong” #WorldAcromegalyDay #acromegaly #1stofNovember #Pituitary #endocrinology #EndoTwitter
Acromegaly West retweeted
It was a total honour working with 21 unique voices talking about living with #Acromegaly as part of the Awareness Day on 1st Nov. Please share. #RareDisease
@Pituitary_org @pituitaryorg @PituitaryWNews @M4RareDiseases @AcroVan @acromeg @rarediseaseuk @eurordis @GlobalGenes
Acro-messages: What is it like living with a rare condition that can change your facial features, cause your hands and feet to grow, affect your sex drive, confidence and personality as well as organ growth, limb displacement and more? #acromegaly
youtube.com/watch?v=ArGQ076Q…
Acromegaly West retweeted
Today is #Acromegaly Awareness Day! An opportunity for us to spread awareness of this rare disease & bring attention to challenges and needs of patients. We can highlight ways in which the medical system can improve so that diagnosis happens faster and treatment!
#acrostrong
Acromegaly West retweeted
On world #Acromegaly Awareness Day, check out this #OpenAccess Consensus Statement highlighting how acromegaly management could be optimized in clinical practice to improve patient outcomes
go.nature.com/2K4gqCA
Acromegaly West retweeted
Thanks to @PfizerCA @NovartisCanada @IpsenGroup @ionispharma @chiasmapharma @Crinetics for the strong support to make #AcroCan19 happen !
Acromegaly West retweeted
We are searching for a Director of Patient Advocacy & Outreach. As our pipeline in #acromegaly, #Cushingsdisease, & #congenitalhyperinsulinism moves forwards, our commitment is to listen to our communities to work with them to bring these much-needed therapies to patients.
Acromegaly West retweeted
I was honoured to rise in the House today to introduce my private member's bill which would declare November 1, Acromegaly Awareness Day. I want to thank Deanna Badiuk for her tireless efforts to bring attention to this disease.
Acromegaly West retweeted
Looking forward to starting this book off by @MMEthebook - and hearing more about his rare diseases journey. Check it out 📕📗📘📙#RareDisease #WyburnMasonSyndrome #Acromegaly
Acromegaly West retweeted
Out now! Download the official poster for #RareDiseaseDay 2019 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community. #ShowYourRare
Acromegaly West retweeted
Today is #acromegalyAwarenessDay and we invite you to share your story to spread awareness. Don't forget to share who you're thankful for on your healthcare/support team as well and use the hashtag #AcromegalyAppreciation
Check out @kara_lafrance's post: wegoh.co/2JwYL7Q