Artist and Designer - Sometimes a mess, mostly a work of art. #MEcfs #MEawarenesshour M.E. since "79
- Tweets13.8K
- Following825
- Followers710
- Likes33.5K
ALT Screenshot of the header of a published paper: Studies in History and Philosophy of Science Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis Chloé de Canson
ALT ME advocate Anil van der Zee holds the Knight in the Order of Orange-Nassau medal in his home. He poses with Amsterdam mayor Femke Halsema in a darkened room. The text reads, “Virology Blog x The Sick Times. Anil van der Zee receives Dutch royal distinction. The newly knighted ME advocate discusses his royal honor with David Tuller. Interview.”
ALT I don’t especially care for awards in general, nor do I enjoy doing this “work.” It’s not a new calling in life. I’m not an activist or patient advocate, although I realize others might label me that way. I have better things to do than having to fight for basic healthcare, debunking shoddy science and so on. It’s borne out of sheer desperation as a patient in the hope of getting better or at least being sick with proper care. Just being sick without having to fight for other things we’re currently dealing with as patients would already be amazing.
ALT A repost from Natasha Devon stating: "George will be coming on my show this weekend to discuss this very important article." She attached a post from George Monbiot that reads: "Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2"
ALT Opinion ME / Chronic fatigue syndrome Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed George Monbiot George Monbiot Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors Thu 24 Sep 2026 01.00 EDT Somebody sitting on a bed looking at a wall with a display of negative past medical experiences Illustration: Bill Bragg/The Guardian
