I think it’s time I started telling our full story. Those who have followed my page will know some of what my daughter and our family have been through, but there is so much more that I haven’t shared publicly. Behind everything I’ve spoken about is a much bigger story. Years of fighting, serious concerns, unanswered questions and a huge amount of evidence. I’ve spent so long trying to get answers, raising concerns and going through the proper channels. All the while, my daughter and our family have had to live with the impact of what has happened. I have documents, evidence and a timeline of events that I believe deserve proper scrutiny. There are things that need to be brought into the open, and questions that still need answering. To the journalists who follow my page, I’m ready to tell the full story. I’m ready to share what happened, what I’ve uncovered and the evidence behind it. This isn’t just about my family. It’s about accountability, and what happens when families raise serious concerns and feel they aren’t being heard. I’ve kept fighting because my daughter matters, and because I don’t believe these questions should be left unanswered. If you’re a journalist who wants to speak to me, please message me privately. I think it’s time people knew the full story.

I posted yesterday about what is happening with my daughter. Since then, my phone has been going absolutely fucking mental. I haven't even managed to read all the replies yet, but I know my phone has been going off non stop. I WILL reply to every single one of you. ❤️ It might take me a while, so please bear with me. But from what I've already seen, I am completely overwhelmed. The kindness. The support. The messages from people who don't even know us. Honestly, it means more than I can say. But do you know what has hit me hardest? So many of you are living this too. So fucking many. Autistic people being left without the support they need. Mental health services disappearing. Families being left to pick up the pieces. Parents begging for help. Parents knowing their child is deteriorating and still having to fight to get someone to listen. Being passed from one service to another. Being told to wait. Being left until someone reaches crisis point. And that makes me so fucking sad. Because I wrote that post because I'm fighting for my daughter. She's my girl. I know her. I know when she's struggling. I know when something isn't right. And I will fight like fucking hell for her. I never expected so many people to come forward and say, " This is happening to us too. " And honestly, that breaks my heart. I wish there weren't so many of us who understood this. I wish parents didn't have to become fucking relentless just to get their child the support they need. I wish autistic people didn't have to reach crisis point before someone takes them seriously. To every single person who has commented, shared, messaged me, offered advice, offered contacts, shared your own experience or simply sent my daughter some love: THANK YOU. ❤️ I see you. I hear you. And I'm sorry you're having to fight this battle too. My daughter is still my focus. I am fighting for her. But seeing how many other families are going through the same thing has made me realise that we cannot just quietly accept this. So keep talking. Keep sharing. Keep supporting each other. And if you're a parent sitting awake at night struggling, wondering what the fuck you're supposed to do or where you're supposed to turn, inbox me. You don't have to explain everything. You don't have to have the right words. Just reach out. Don't sit there struggling on your own. I've got two ears, and I'll listen. ❤️ Now excuse me while I attempt to get through all these notifications. ❤️

🚨 I NEED A SOLICITOR 🚨 I have had enough. I am now looking for a solicitor prepared to take legal action against a Welsh Health Board over what happened and the way this has subsequently been handled. This is not some minor complaint that got delayed in an inbox. I have disclosures, correspondence, complaint records and evidence concerning serious issues involving a clinician and the information provided about my family and my daughter. There are also matters the Health Board has subsequently acknowledged/apologised for. And despite YEARS of trying to get answers through the complaints system, I am still fighting to get this properly dealt with. So I'm done asking. I want legal advice on the evidence, the potential causes of action and whether proceedings should now be issued. I'm looking for a solicitor with genuine experience in healthcare litigation, public authority claims, clinical negligence and/or human rights/public law, preferably someone who isn't frightened of taking on an NHS Health Board. If you are that solicitor, or you know one, please DM me. I have the evidence. I have the paper trail. And I'm ready to take this out of the complaints system and into the courts. Please RT/share. I need this to reach the right solicitor.

A quick one for journalists who have been following my posts. If you want to talk about what happens when you complain about the NHS, please message me. I’ve been doing this for years and I have kept everything. The emails. The letters. The complaints. The responses. The timelines. I’ve gone through the proper channels. I’ve chased. I’ve asked questions. I’ve challenged answers when they didn’t make sense. And I think there are some very important questions about the complaints process that need to be asked. If you’re a journalist and want to talk, DM me. ❤️

@andyburnham @10DowningStreet On 11 August, I wrote directly to you about the Court of Protection and what happened to my family. I asked you to listen. I laid out serious concerns about ex parte hearings, parents being excluded, professional evidence, accountability and the lack of independent scrutiny when things go wrong. That post has now been viewed and shared by people who recognise the same failures. I received no response. So I'm asking you again. You are now Prime Minister. What is your Government going to do about the lack of independent oversight within a system that can make life changing decisions about vulnerable people, while potentially excluding the very family members fighting to protect them? Who checks the evidence? Who checks what was left out? Who holds professionals accountable when they are accused of misleading the court or breaching court orders? And who protects parents when raising concerns about their child's care turns them into the subject of allegations themselves? I don't want another statement about how the system is supposed to work. I want you to look at what happens when it fails. Because my family lived it. And other families are living it too. Prime Minister, I tagged you on 11 August. You didn't respond. I'm asking again: will you listen to the families who have actually experienced the Court of Protection system, and will you act? We need independent oversight. We need transparency. We need accountability. And we need it before another vulnerable person and their family are failed.

THIS. This is exactly the bloody problem. ❤️ You try to get legal help and find there are hardly any solicitors willing or able to take your case. You try to get justice and discover that unless you have money, knowledge, time and the bloody stamina to keep fighting, you're basically on your own. Then you complain. And what happens? You get a complaints officer dealing with a complaint about their own organisation. You get responses that, in my experience, can completely misrepresent what you've actually said. You challenge it. You escalate it. You chase it. You wait. And eventually you're told to go to the Ombudsman. And you're left thinking: WHO THE HELL IS ACTUALLY INDEPENDENT HERE? Because seriously, where is the person who isn't employed by the organisation you're complaining about? Where is the person who isn't protecting the institution? Where is the person who will actually look at the evidence and say, “ Hang on. This isn't right. ” That's what people need. Not another bloody complaints process. Not another form. Not another email address. Not another organisation telling you that your complaint has been “ considered ” while completely missing the bloody point. And let's talk about Monitoring Officers too. If you're complaining about a local authority and the person whose job it is to monitor the council is still part of that council, how independent does that actually feel to the person desperately trying to get accountability? And then we get to the Ombudsman. I've seen people asking exactly the same questions, Who holds the Ombudsman to account? Because once you've exhausted the complaints process and reached the Ombudsman, where the hell do you go if you believe THEY have got it wrong? That's the problem. Every bloody door seems to lead to another door. And ordinary people are expected to keep knocking until they are exhausted enough to give up. I refuse. I've spent years fighting to get answers. I shouldn't have to be a bloody investigator, legal researcher, records expert and campaigner just to get someone to properly listen. And neither should anyone else. Access to justice isn't real justice if ordinary people cannot realistically access it. A system where the wealthy can buy legal representation while everyone else is left trying to navigate a maze of complaints, reviews, escalation procedures and Ombudsman processes isn't a system that feels like justice. It's a bloody obstacle course. And I'm sick of it. I'm sick of being told to trust systems that give people every reason not to. I'm sick of families being exhausted into silence. And I'm especially sick of vulnerable people being left without proper protection because the people responsible for accountability are too close to the systems they're supposed to scrutinise. We deserve better. Our families deserve better. And I am bloody well not shutting up about it. ❤️

Let's talk about the #NHS and what happens when you dare to complain. Because this is something people need to understand. I didn't complain because I was bored. I didn't complain because I had nothing better to do. I didn't complain because I wanted a fight. I complained because my daughter was being harmed. I saw things happening that I believed were wrong. I raised concerns. I questioned decisions. I challenged a professional. Because that's what you are SUPPOSED to do when you believe a vulnerable person isn't being properly protected. Except apparently there is a massive difference between telling people to " speak up " and actually having the audacity to SPEAK UP. Because once I did? Everything changed. Instead of simply dealing with the concerns I had raised, I became the concern. Think about that. A mother raises concerns about what is happening to her vulnerable daughter... and suddenly the spotlight turns onto the mother. My behaviour. My credibility. My motives. My questions. My complaints. My refusal to shut up. Apparently that was easier to investigate than the original problem. And THIS is what makes me so angry. Because when you're dealing with a huge organisation like the NHS, they have the power. They have the professionals. They have the records. They have the lawyers. They have the complaints departments. They have the language. They have the institutional power. And what does a parent have? Their voice. So when that parent uses the only weapon they have, their voice, why does the system seem so determined to take that away from them? I was not asking for special treatment. I was asking for my concerns to be properly investigated. I was asking people to listen. And instead I found myself fighting a system that seemed far more interested in dealing with ME than dealing with what I was raising. That is the part I will never forget. Because once you've experienced it, you see the complaints system very differently. You realise that " please complain if you're unhappy " sounds wonderful until you actually make a complaint that someone doesn't want to hear. Then suddenly you're difficult. You're challenging. You're unreasonable. You're the problem. No. I was a mother trying to protect her daughter. And I make absolutely no apology for that. If my refusal to stay quiet makes me " difficult, " then so be it. If asking questions makes me " difficult, " then so be it. If refusing to accept answers I believe are inadequate makes me " difficult, " then I'll happily wear the fooking label. Because my daughter's welfare matters more to me than making professionals comfortable. And here's my message to the NHS: Don't tell families to speak up if you're going to punish them for doing it. Don't tell us complaints are welcomed if what you really mean is, " We welcome complaints that don't make us uncomfortable. " Don't tell us patient safety comes first if the person raising a patient safety concern ends up being treated like the problem. And don't expect me to quietly disappear because the system has made it exhausting to keep fighting. I'm still here. I'm still asking questions. I'm still documenting what happened. I'm still challenging what I believe was wrong. And I'm still speaking. Because my daughter deserved better. And frankly? So does every vulnerable person whose family has the courage to say: " Something isn't right here. " Maybe the NHS should stop asking, " Why won't this parent shut up? " And start asking: " Why did we give her something to complain about in the first place? "