Australian DIPG Families retweeted
Congrats to the scientists, doctors and families who helped secure $20M from the Fed Gov't for childhood brain cancer research.
@Mark_Butler_MP said research was a key weapon in battling #braincancer and $KZIA is proud to be a part of this fight.
shorturl.at/exBTY
Australian DIPG Families retweeted
DIPG is a type of malignant brain tumour, and one of the most aggressive of all childhood cancers.
There’s no known cure or treatment options. Angie’s daughter Eve was diagnosed in March 2021 and given 12 months to live.
Australian DIPG Families retweeted
A #Gold flame flickers inside me, constantly urging, "Help the children." #ChildhoodCancer #BeTheRibbon #CCAM
Australian DIPG Families retweeted
Productive meetings at Parliament today advocating for federal #DIPG #DMG RESEARCH funding to help achieve >2-yrs OS. An unacceptable statistic, but >2x better than now; biggest unmet clinical need!
Tx for your support @AussieDIPG @AustralianLabor @Mark_Butler_MP we can do this!!
Australian DIPG Families retweeted
@KoschmannLab @vennetilab @AbedKawakibiMD #sunny @sebastianw et al., in the proofs we added the clinical finding as this paper was submitted before we all met up in Ann Arbor and accepted some time ago aacrjournals.org/cancerdisco…
Australian DIPG Families retweeted
Diffuse midline glioma #DMG is uniformly fatal & the leading killer of kids
Currently it lacks approved treatments other than radiotherapy
Dordaviprone #ONC201 shows a prelim benefit for #DIPG patients, by why?
Here we summarise it's mechanisms to show why
shorturl.at/gBJT1
ALT #DunLab figures to provide evidence why dordaviprone/ONC201 show some benefit for #DIPG #DMG patients. https://academic.oup.com/neuro-oncology/advance-article/doi/10.1093/neuonc/noad144/7243676?utm_source=advanceaccess&utm_campaign=neuro-oncology&utm_medium=email
Australian DIPG Families retweeted
As promised, this year for #childhoodcancerawareness day, we are bringing you the numbers that will help us think, reflect and understand a little more.
Here's Day 1: In AUS & NZ approximately 1180 children and adolescents are diagnosed with cancer each year 😔
#CancerResearch
Australian DIPG Families retweeted
Paediatric oncology has come a long way with more than 8 in 10 'surviving' beyond 5 years. That can be only the start of the battle. Unfortunately not the case for #DIPG a virtually ZERO % survival and prognosis unchanged for decades #CCAM #ResearchMatters
Australian DIPG Families retweeted
September is Childhood Cancer Awareness Month. The outcomes for paediatric brain cancer, and DIPG specifically, remain devastating. These statistics, helpfully shared by the DIPG DMG Collaborative show the incidence of cancer, and brain cancer, in children in Australia.
Australian DIPG Families retweeted
Thank you to @AnneWebsterMP for taking the time in Parliament recently to discuss the importance of research investment. We thank you for your advocacy, for listening to the stories of families, and for adding to the collective voices seeking change.
rundipg.org/2023/08/16/mp-an…
Australian DIPG Families retweeted
Tilly passed away yesterday morning from #DIPG at 7:30 AM after a two year battle with cancer. We pray for her family that is broken-hearted and at a painful loss they have never experienced in their life. We pray for her friends. We pray for all the medical staff that did their very best to take care of her and save her life. Please light a candle today in remembrance of Tilly. In Jesus name, Amen ✝️🙏❤️🙏✝️
