LEMS Aware (@BeLEMSaware) header
LEMS Aware (@BeLEMSaware) profile picture

LEMS Aware provides patients and caregivers with the tools, information, and community support needed to navigate Lambert-Eaton myasthenic syndrome (LEMS).

Joined June 2020
Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)Photo by LEMS Aware (@BeLEMSaware)
This episode of our #LEMSaware podcast features Maria, who recounts her months-long search for answers that ultimately led to a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS). Listen now to our #podcast: brnw.ch/21x6WFG
82
November is Lung Cancer Awareness Month. Did you know that up to 60% of people with Lambert-Eaton myasthenic syndrome (LEMS) also have a co-occurring cancer? Among those cases, small cell lung cancer (SCLC) is the most common. Learn more: brnw.ch/21x6S7z.
50
Encouragement & empowerment are your most powerful tools, transforming the experience of living with LEMS into a testament to the fact that having this disease doesn't mean you have to give up everything that you love. Check out Jamie & Mark's story: brnw.ch/21x6N4H.
54
Every Lambert-Eaton myasthenic syndrome (LEMS) journey is unique, but sharing your experiences can help others feel seen and supported. If you're living with LEMS and have a story to tell, we'd love to hear it. Reach out and share your #LEMS journey: brnw.ch/21x6I6R.
57
Whether you're looking for tips on talking with your doctor or making travel plans with confidence, our Lambert-Eaton myasthenic syndrome (LEMS) ambassadors share real-life insights and experiences in our #LEMSAware blogs. Read more: brnw.ch/21x6xO2 #LEMS #blog
40
LEMS and MG may share similar symptoms, but they're caused by different antibodies. A simple blood test can help healthcare providers tell them apart. If you think your symptoms could be related to LEMS, talk with your healthcare provider: brnw.ch/21x6sSG. #LEMS #MG
37
When it comes to Lambert-Eaton myasthenic syndrome (LEMS), timely diagnosis matters. If you think your symptoms may point to LEMS, don’t wait to reach out to your healthcare provider: brnw.ch/21x6hYw #LEMS #diagnosis
48
Are you experiencing signs of Lambert-Eaton myasthenic syndrome (LEMS)? Learn what to look for and when to reach out to your healthcare provider for any concerns: brnw.ch/21x6cFH #LEMS #LEMSaware
43
If you're interested in learning more about LEMS, hear from those who know it best. Our patient stories highlight real experiences from individuals living with the disease, providing a glimpse into their daily lives. Watch their stories: brnw.ch/21x67Ez #LEMS #patient
22
His first question after finding out his diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) was "Okay, and that means?" Listen to Patrick's episode on the #LEMSaware podcast as he discusses how he navigated working and living with LEMS: brnw.ch/21x5SKd.
29
For people living with Cancer-Associated Lambert-Eaton myasthenic syndrome (#LEMS), care often involves a team approach. Oncologists & neurologists may collaborate to ensure your treatment plan reflects your unique needs and health goals. Learn more: brnw.ch/21x5MYh
29
Curious about the differences between Lambert-Eaton myasthenic syndrome (LEMS) & myasthenia gravis (MG)? Learn more about caring for someone with LEMS & discover how it differs from MG, a condition it’s often confused with. Gain insights: brnw.ch/21x5FTq. #LEMS #MG
35
For up to 60% of people living with LEMS, there may be an association with an underlying cancer—most commonly small cell lung cancer (SCLC). It’s important to talk with your doctor about how they screen for cancer in people with LEMS: brnw.ch/21x5C5V. #LEMS #sclc #cancer
51
Phyllis, a caregiver for her husband who was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), tells her story. Watch more on her journey: brnw.ch/21x5wZS. #LEMS #caregiver #raredisease
52
Life doesn’t pause—so getting the right diagnosis as early as possible matters. Make sure you have the information and support you need, and connect with a healthcare provider who understands what to look for when it comes to #LEMS symptoms: brnw.ch/21x5rIA. #raredisease
30
LEMSaware was created to deliver relevant information, resources, and connections to patients and caregivers who may be living with or affected by Lambert-Eaton myasthenic syndrome (LEMS): brnw.ch/21x5k2R. #LEMS #raredisease
116
Your activity may have slowed down with Lambert-Eaton myasthenic syndrome (LEMS), but it doesn't have to completely stop. Tescha, a LEMS Patient Ambassador, is not only choosing to keep going but is also getting creative: brnw.ch/21x5hqU. #LEMS #blog
118
If you believe you might have Lambert-Eaton myasthenic syndrome (LEMS) and haven’t received a diagnosis yet, it’s important to be aware of the possible risks of waiting. Learn how the condition may change over time: brnw.ch/21x5agb. #LEMS #treatment
42
Living with Lambert-Eaton myasthenic syndrome (LEMS) can mean that no two days feel the same. With proper management, your loved one may be able to stay active & maintain independence. Here are ways to help manage symptoms: brnw.ch/21x56LG #LEMS #symptoms
66
This episode of our #LEMSaware podcast features Maria, who recounts her months-long search for answers that ultimately led to a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS). Listen now: brnw.ch/21x4Zu2 #LEMS #podcast
124