beth vanstone retweeted
I agree and add that you both had and are having a huge impact. My foundation just started a mentoring program for caregivers. Would love to talk with you about global health for people with cystic fibrosis. @NasrSamya is working hard to get meds to Egypt. Please connect with me.
Rosalynn Carter led heroic efforts to get caregivers more support and recognition, and her advocacy has long inspired my own work on this issue. I'm thankful for the ways @RCICaregiving continues to honor her legacy by championing caregivers across the country 💞 #NationalCaregiversDay
She faced major hurdles in her rare disease fight. These barriers can cost lives, experts say | Globalnews.ca globalnews.ca/news/11017818/…
Canada desperately needs a #RareDiseaseStrategy to save Canadians like Touraj who are falling thru the gaps in #HealthPolicy
Listen to this podcast with a patient who is suffering the consequences of Canada failing the Rare Community.
#podcast #healthpolicy #raredisease
Living with a "rare" CF Mutation in Canada. The fight and struggle. Laura and Beth talk wtih Touraj about his journey. livingwithcysticfibrosis.sim… @bethdenniss
Let’s all choose to live our best life!!
#cysticfibrosis #Chronicillness #positivity #bestlife #bombasslife
