This week, blood brother Michael Eck talks about his connection to the bleeding disorders community and @hemophiliafed's Education Manager Robyn Kebede talks programming, priorities, and more. bit.ly/thebloodstreampodcast Sponsor: #Takeda #raredisease #bleedingdisorders

Dr. Al Freedman speaks about the power of denial as a psychological adaptation, and why refusing to accept the worst can help you find a path forward. Join the conversation with Pat Moeschen of @ParentProjectMD bloodstreammedia.com/rare-re… #raredisease #mentalhealth #rareresilience

This time on Rare Resilience, Pat Moeschen of @ParentProjectMD shares what he believes newly diagnosed rare disease patients and caregivers need to know about the journey ahead. bloodstreammedia.com/rare-re… #bloodstreammedia #raredisease #mentalhealth #rareresilience

For Amy, migraines were something to manage. But for Patrick, hemophilia was deeply defining in childhood before becoming something he learned to plan life around. bit.ly/thebloodstreampodcast Sponsor: #Takeda I’m Fine is presented by @SanofiUS #raredisease #bleedingdisorders

“Feeling tired is just part of thalassemia, so no need to mention it to my doctor.” ❌ False. On Thal Pals, we explain why speaking up about fatigue is key to better care. 🎧 Full ep: Thal Pals: The Alpha Beta Revolution pod.link/1639436269 Sponsored by @AgiosPharma

This time on the Rare Resilience Podcast, Pat Moeschen of @ParentProjectMD shares how he trained his mind to keep hope alive and face the realities of progressive rare disease. bloodstreammedia.com/rare-re… #bloodstreammedia #raredisease #mentalhealth #rareresilience

On the latest episode of BloodStream, we talk about the latest update for emerging therapies and what it could mean for what comes next. bit.ly/thebloodstreampodcast Sponsor: #Takeda I’m Fine is presented by @SanofiUS #bloodstreammedia #raredisease #bleedingdisorders

Next on Rare Resilience, Pat Moeschen of @ParentProjectMD joins Dr. Al Freedman to discuss his lived experience with limb-girdle muscular dystrophy and how his thinking evolved over time as his disease progressed. bloodstreammedia.com/rare-re… #raredisease #mentalhealth #rareresilience

“Ferritin is the only measure of iron overload.” ❌ Myth! On this Thal Pals, we bust common misconceptions about thalassemia, from fatigue to hemoglobin to iron overload. 🎧 Listen: Thal Pals: The Alpha Beta Revolution pod.link/1639436269 Sponsored by @AgiosPharma

Reid kept his HIV diagnosis private for years, even as the world around him was filled with fear and stigma. Find out how surviving is only the beginning of the story. bit.ly/thebloodstreampodcast Sponsor: #Takeda I’m Fine is presented by @SanofiUS #raredisease #bleedingdisorders

On the latest BloodStream, Ranvitha Chirumamilla talks about her own experience with iron-deficiency anemia. Plus, blood brother Reid Morgan is back on I’m Fine. bit.ly/thebloodstreampodcast Sponsor: #Takeda I’m Fine is presented by @SanofiUS #raredisease #bleedingdisorders

Roberta Smith of the @ALGSAlliance shares how her daughter’s rare disease forced her to choose resilience over feelings of resentment. bloodstreammedia.com/rare-re… #bloodstreammedia #raredisease #mentalhealth #rareresilience

On the latest MPN Pod, Rachel Suarez explains why you don’t have to wait for a crisis to reach out to a social worker. bit.ly/mpnpodpodcast Made possible by @PharmaEssentia #mpnpod #raredisease #polythycemiavera #bloodcancer

After it's recent win at the Fierce Pharma Marketing Awards, Gut Matters Podcast—produced by BloodStream Media, in partnership with @ardelyx—the podcast category of the @PM360online 2026 Trailblazer awards. believeltd.com/news/gut-matt…

On the latest MPN Pod, oncology social worker Rachel Suarez explains why translating your fatigue symptoms in terms of “functional impact” can help put your fatigue into context. bit.ly/mpnpodpodcast Made possible by @PharmaEssentia #mpnpod #raredisease #polythycemiavera

Roberta Smith of the @ALGSAlliance explains why parenting a child with rare disease meant overcoming financial obstacles, all while dealing with the “normal problems” of teenagers and young adults. bloodstreammedia.com/rare-re… #raredisease #mentalhealth #rareresilience

On the latest MPN Pod, Rachel Suarez explains how she helps MPN patients as a clinical social worker who specializes in oncology. bit.ly/mpnpodpodcast Made possible by @PharmaEssentia #mpnpod #raredisease #polythycemiavera #bloodcancer

Roberta Smith of the @ALGSAlliance shares how her daughter Chloe’s rare disease progressed into liver cancer, and what it took for her to survive. bloodstreammedia.com/rare-re… #bloodstreammedia #raredisease #mentalhealth #rareresilience

ITP Awareness Month is here! And Caroline Kruse, CEO & President of the Platelet Disorders Support Association, talks ITP, patient advocacy, and why finding people who truly get it matters. bit.ly/thebloodstreampodcast Presenting Sponsor: #Takeda #raredisease #bleedingdisorders

Next on Rare Resilience, we discuss the financial and emotional challenges of raising a rare family with Roberta Smith—President of @ALGSAlliance and a mother to a daughter with alagille syndrome. bloodstreammedia.com/rare-re… #raredisease #mentalhealth #rareresilience