Blyth Lord is the founder and ED of Courageous Parents Network and a passionate advocate of pediatric palliative care.
Joined April 2014
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How is this possible? IT is NUTS!! This texas change would negate the VALUE of the home nurse (if you have one!) .... so a parent can go out (for self, with siblings, for anything). texastribune.org/2024/04/19/…
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Courageous Parents retweeted
"Episode 34: Prognosticaution" is up at pedipal.org! Sarah and Dan discuss the dreaded uncertainty of neurologic prognosis with Marina Ma and Lauren Treat.
(And in case you missed Episode 33, we'd recommend checking that one out, too. Julie Hauer is in it!)
Courageous Parents retweeted
Clinicians - diid you miss yesterday's NeuroJourney demo session? No worries, we are hosting another session on Thursday 1/11 at 11 am ET
Register: bit.ly/3SbKp1G
#NeuroJourney #SNI #Learn
Shared NeuroJourney and CPN with 30 1st year med students at @UMassMedSchool, who are in the SideKicks program and Complex Care special interest group. These kids are their interest. This video, mom Naomi, sure got them thinking! courageousparentsnetwork.org…
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via @NYTOpinion An important piece at the beginning of this new (election) year. So glad she wrote it and that this was her family’s experience. It makes the case for families with loved ones of any age who need home care. nytimes.com/2024/01/01/opini…
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Two fun visits for me. A rich day at Mott Children’s with Drs Pituch and Keefer and a quick visit this morning with Dr Temonti in Detroit. CPN road trip!
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What a treat for me!!!!!! Love the Avengers theme here too. Coming to speak to Peds Residents and then give the 2023 Courageous Provider Award to Dr Ken Pituch. @CourageousCPN
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The families at Mott’s are lucky to have M-COPE. Coping coping coping… can there ever be enough support to help us cope?
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Courageous Parents retweeted
Listen to James Robinson, whose son Nadav was born with a congenital heart defect and lived 5 bright brave years. His book is the opposite of a tragedy. It reminds us of the power of parent love and is for anyone seeking hope and light. @MoreThanAMemoir
courageousparentsnetwork.org…
CPN is so fortunate to have a parent with Parvathy's depth and breadth of experience as a Champion. She's also a fun, optimistic presence. xo
“And so for us, the palliative care team was the backbone - empowering us to live the best possible life that we could caring for our children.”
Meet #CPNChampion Parvathy.
#pedpc
#courageousstories
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Parent Champion Lindsey is transforming care for children like Owen and their families in Washington State. Woot!
#CPNChampion Lindsey Topping Schultz shared the necessary role palliative care plays in the care of her son Owen and their family at the inaugural Grand Slam Luncheon benefiting Mary Bridge Children's Hospital @Mary_Bridge Palliative Care Team.
#pedpc
#courageousstories
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I have really appreciated this conversation about the impact of structural historical racism in US on health outcomes. podcasts.apple.com/us/podcas…
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Courageous Parents retweeted
We are excited to announce the launch of NeuroJourney, an educational resource for caregivers and clinicians navigating the ever-evolving needs of children with severe neurological impairment (SNI). @CincyChildrens @SevenHillsFound @RThienprayoon @CourageousCPN #NeuroJourney #SNI
Recognizing Daniel Le with a 2023 Courageous Provider Award, was a highlight of the week for me. I encourage you to nominate a Courageous Provider for the 2024 award. Nominations due 10/31 at 5pm ET. courageousparentsnetwork.org…
The most wonderful part of the Courageous Provider Award is the impact on recipients. Daniel, a music therapist, was delighted to be recognized & it is a cherry on top that there is a nice financial contribution that comes with it to @CoastalKidsHC
Watch: hubs.li/Q026S3hW0
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I am really looking forward to this conversation with author and mom Kelly Cervantes on Thursday. I have loved the book. And we have some great questions already from registrants. Kelly will talk about everything from the supermarket to asteroids.
Please join @CourageousCPN and @KellyGC411 this Thursday evening in conversation about #grief and Kelly's exploration of this in her new book: Normal Broken. Register below.
#epilepsy
#bereavement
#Pediatrics
@SPP_PallEoL
@CureEpilepsy
courageousparentsnetwork.org…
With the exception of fact that I wish we had some dads too, I am beyond-delighted and moved by these mothers who have shown up to channel their experiences to promote PC and CPN. This has been a 5-year vision, now come to life. Watch us/them!
Kicking off the Parent Voices Program with 8 parents from across the country coming together to build & bolster the network & how we speak about the value of palliative care. Feels great having everyone together!
#ParentChampions #RareDisease #PalliativeCare #Advocates
Courageous Parents retweeted
Blogger in Residence @JessieFein reviews Normal Broken: The Grief Companion for When It’s Time to Heal But You’re Not Sure You Want To by Kelly Cervantes. Read: hubs.li/Q024-Gw90
Hear more from @KellyGC411 IN THE ROOM on 10/26 at 8pm ET. Register: hubs.li/Q024-Fkr0
Courageous Parents retweeted
In her soon-to-be-released book, Normal Broken, @KellyGC411 explores her experience with #grief. Join CPN & Kelly on 10/26 to discuss what it is to feel "normal broken" Registration is free: hubs.li/Q024jJh80
@CureEpilepsy
@RareEpilepsy
@ParmFound
@EpilepsyFdn
@TCFofUSA