CEO- Sarcoma Foundation of America I CASA DC Volunteer I Tweets my own. Finding the good. #kindnessmatters
Washington, DC/MD by way of KY
Joined February 2011
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Happy to participate in the 2025 @AACR Scientist- Survivor Program. Digging deeper into the science and sharpening my skills to better represent #sarcoma patients. I am inspired by patient advocates around the world working tirelessly to change outcomes. #curesarcoma #AACR25
In the big 🍎 cheering on the @CureSarcoma #racetocuresarcoma marathon team raising awareness and research funds for #sarcoma. Let’s go!!!#unitedairlinesnychalf @nyrr
.@DavidEVictorson thank you for the @statnews article. MH impacts of #sarcoma are important especially in AYA pop. SFA’s #sarcomastoriespodcast highlights this. “Pausing all research funds threatens lives and progress” Yes! #curesarcoma
A sign we should do more genomic testing? This has been a controversial topic in #sarcoma but not for patients. We don’t include the patient voice enough in this discussion.
#curesarcoma #ESMO2024 #ESMO24
Thank you @alegronchi and @berndkasper for a fantastic discussion at the Desmoid session this morning at #ESMO24. Progress for patients!
#sarcoma #curesarcoma #ESMO2024
Can we use AI to assist with a #sarcoma diagnosis? Can this be a tool to assist pathologists? Excellent discussion at #ESMO2024 about using AI in cancer care. @CureSarcoma is currently exploring projects that involve AI.
#curesarcoma #ESMO24
Spending some time at @cityofhope today. Presenting a check to support #sarcoma research and touring their lab. Thanks to @CureSarcoma Race to Cure Sarcoma participants and marathon teams this is possible! #curesarcoma
Cheering for @TrentWilliams. I met him 3 years ago when we started working with him at @curesarcoma on his doc, he became an SFA ambassador, and honored him with our Courage Award. Amazing to see him make it to the @SuperBowl. #sarcoma #curesarcoma #49ers #espn #sarcomaawareness
Last night @CureSarcoma hosted the US patient advocacy groups for a dinner at #CTOS2023. It was wonderful to spend time with colleagues. Some could not make it and were missed. We are committed to working together on behalf of #sarcoma patients. #curesarcoma
Starting day 3 of #ASCO2023 discussing shared decision making. @CureSarcoma is working to provide resources to #sarcoma patients to work together with their care team to find their best path forward. The conversation can start from the patient. #curesarcoma #empowerpatients
Thank you @WTapMD for your wonderful talk at the SARC meeting. “We should coalesce and dictate where we go” @CureSarcoma agrees and we are ready to collaborate on this. #sarcoma #curesarcoma #ASCO2023
Starting day two of the 2023 @Boehringer Global Patient Partnership Summit. Working together across different diseases to find solutions for patients. Proud to represent #sarcoma and @CureSarcoma
#curesarcoma #sarcomaawareness
Robust discussion this morning on setting patient focused standards for #sarcoma specialty centers @sarcomapatients meeting. Many perspectives coming together. More to come….
@CureSarcoma #curesarcoma
Great story and program. Congratulations @DigiSwasthya on the 2023 Advocacy Award. Inspiring to see #sarcoma organizations across the globe solving problems to help patients and #curesarcoma! @CureSarcoma
Sandeep Kumar, a sarcoma survivor from rural India, was told he would need an amputation. He traveled to Mumbai and received a proper diagnosis that saved his hand. Sandeep then founded @DigiSwasthya to connect rural sarcoma patients with experts via telehealth. #SPAGN2023
ALT Sandeep Kumar presents about DigiSwasthya at the SPAGN Annual conference on Dublin 2023.
ALT Sandeep Kumar outlines the network of services offered by DigiSwasthya at the SPAGN Annual Conference 2023.
ALT Sandeep Kumar presents photos of his telehealth initiative to support rural sarcoma patients in India.
Looking forward to a great meeting with global groups working to #curesarcoma.
@sarcomapatients 2023 Meeting
#sarcoma #sarcomaawareness @CureSarcoma
Would have loved to have heard the patient voice in the great debate at #CTOS2022. #sarcoma #curesarcoma
The great debate at #CTOS2022 about genomics. @CureSarcoma did a session about this earlier this year. Interested to here the perspectives presented today. #sarcoma #curesarcoma
Looking forward to learning more about how @CureSarcoma can better support #sarcoma patients at #ASCOQLTY22. #curesarcoma
Spent last night in NJ w/ @J_FranklinMyers shooting video for the upcoming Race to Cure Sarcoma NJ and Stand Up to Sarcoma Gala, using his platform to increase awareness about the disease in honor of his grandfather’s #sarcoma journey. He is a gem! 🌻🎗#curesarcoma #NewYorkJets
.@J_FranklinMyers of the @nyjets invites you to join his team supporting SFA's Race to Cure #Sarcoma New Jersey on 10/2. The first 25 persons to join will receive a special team t-shirt. Event attendance is not required but your support will be most appreciated. #curesarcoma
