#LonelyGoat šš- Alzheimers Research Participant - Lover of crazy ideas, Ercol, pyjamas, gin, melted cheese, Springer Spaniels and a select few human beings.
Lowestoft
Joined March 2008
- Tweets2.7K
- Following2.9K
- Followers990
- Likes3K
Sophie Leggett retweeted
President Donald Trump's administration has asked the Supreme Court to give the US Postal Service sweeping power to withhold delivery of mail ballots, setting up an extraordinary showdown over voting at the high court less than two months before the November midterm election. cnn.it/4cqbzvv
Sophie Leggett retweeted
As Dr. Martin Luther King, Jr. taught us, darkness cannot drive out darkness, and hate cannot drive out hate. Only light and love can do that. So today, letās remember our responsibilities to march hand in hand, to stand peacefully with dignity and purpose in the ongoing fight for justice. To organize. To mobilize. To vote. To believe, no matter how far away the mountaintop might feel, it is in our capacity to change our communities and our country for the better.
How did #LondonMarathon go for me?
Only made it to the half way mark before I wrecked my feet but it was worth it the raise close to Ā£1500 for the @RareDementia Centre that will help families like mine with a rare (often hereditary) that affects most in mid life!
Itās been a while since I was last on here but I'm fundraising for @TheNationalBrainAppeal by doing @LondonMarathon in April to raise money for the new Rare Dementia Centre!
My faulty brain would really appreciate any donations or retweets
justgiving.com/page/sophie-lā¦
Dear @TravelodgeUK, despite the best efforts of the kind staff attempting to make entry to our room at Covent Garden we are still awaiting the arrival of the manager who seems to be AWOL. The not so perfect end to a day of cognitive tests and generally being a human Guinea pig.
2
1
486
When trying to get an urgent NHS dental appointment is impossible AND you have Alzheimerās so every attempt to try to get this sorted gets harder and harder. Itās been months and Iām at the point of asking Chris to pull my wisdom tooth out with pliers.
This was my baseline visit for the DIAN-TU drug trial. Another year and a bit to go - maybe more.
Havenāt a clue if Iāll be sad or relieved when itās over.
It has been a very positive experience. At least a year more to go.
#UntilTheLastMemoryFades
#AlzSucks
#FamilialAlz
Very relevant to those living with young onset and often rare dementias. Please take a moment to sign the petition if you feel inclined.
With Cheryl unable to work and the cost of living rising, Mark says theyāre relying on credit cards to make ends meet. Weāre calling on the UK Government to give dying people access to the State Pension theyāve worked for. Sign the petition: campaigns.mariecurie.org.uk/ā¦ (2/2)
1
3
First drug dose on the bus - no idea why I put it off for so long. My original plan was to alternate between London and the bus but now Iām thinking straight to bus dosing all of the time. Itās so chilled AND I can swim in the sea afterwards!
1
11
So happy with the driftwood and tin can gardening caddy that Chris made for my birthday and the salted caramel cheesecake that Despina made for me. A very stunning sunset dip in the sea last night too.
1
Facebook reminded me that itās been 8 years since I started on the DIAN-TU drug trial - what on earth are my fellow human guinea pigs and I going to do when it ends in a year and a bit?! š¤·š»āāļø
7
Sophie Leggett retweeted
Todays Facebook post. Anxiety has really hit this morning. Thanks to @forduk at dealership level for getting me in to this situation. I will be sharing everything when I feel strong enough!
Back from Esseeeeeeex and day one of cold water dipping is complete. I can confirm that getting in and out of a wheelie bin is not the most elegant manoeuvre. Feeling great though!
1
3
Got myself a nice āup-doā whilst checking out the beautiful Trafalgar Square overnight garden after my drug dose.
7
Update on this:- the husbandās legs were too long for him to be able to sit with his legs bent in the wheelie bin so we had to upsize his wheelie bin. So, we have his & hers wheelie bins now.
Finally sorted out my cold water dipping wheelie bin zone and Iām rather in love with it - just need to relocate the tools and fill some more planters.
2
Itās worth having dogs just so that you can buy them snuggly dog dressing gowns for when they get out of the bathā¦
6