Prolonged Disorders of Consciousness (Vegetative/MCS) patients. Research https://xitter.cf/t.co/JvRaZIypYB. Resource for Families: https://xitter.cf/t.co/8oEb7wEZCC
Cardiff University, Wales, UK
Joined June 2015
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“I miss him every day, but Michael is here”.
Schumacher’s family don’t discuss his condition publicly, but this comment from his wife will resonates powerfully for many families of loved ones with catastrophic brain injuries.
telegraph.co.uk/formula-1/20…
Coma Research retweeted
I was on @BBCr4today this morning at. 7:41 talking about lasting powers of attorney and deprivation of liberty safeguards for adults in a care setting bbc.co.uk/sounds/play/live/b…
Townsend v Epsom judgment.
Summary of expert workshop addressing implications for legal proceedings, healthcare organisations & clinical practice, families, patients & professional guidelines.
gtc.ox.ac.uk/wp-content/uplo…
Coma Research retweeted
The week in mental health & capacity law: how AGNI is playing out in court - objections front and centre; a discharge saga meets an MHA assessment; and two Ombudsman decisions on s.117 charging and nearest relative requests. All explained in plain English: lpslaw.co.uk/news/
Coma Research retweeted
My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly;
how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’).
First time I’ve written much re. what’s happened 17 yrs since her crash.
Comments v. welcome
openjusticecourtofprotection…
Coma Research retweeted
Very enjoyable convo about advance care planning with Nicholas Mostyn, Helena Kennedy & Charlie Falconer
Turns out we all 4 have LPAs in place, but only 2 of us have Advance Decisions to Refuse Treatment
And what different views on what we'd want!
open.spotify.com/episode/0g7…
Deprivation liberty safeguards for PDoC patients, & those who emerge with profound impairments
How has DoLS worked?
What’ll happen post the Supreme Court judgment in #AGNI?
A personal reflection to inform practice - #DoLS
My blog @OpenJusticeCoP explores what ‘Liberty’ meant to my sister Polly;
how #DoLS worked & what #AGNI might mean for her future (objection & ‘valid consent’).
First time I’ve written much re. what’s happened 17 yrs since her crash.
Comments v. welcome
openjusticecourtofprotection…
Interdisciplinary rehabilitation in prolonged disorders of consciousness
nrtimes.co.uk/two-journeys-o…
Coma Research retweeted
Updated AGNI resources page (and over and out for now): mentalcapacitylawandpolicy.o…
Coma Research retweeted
DHSC initial guidance on deprivation of liberty after AGNI: gov.uk/government/publicatio…
Coma Research retweeted
Iatrogenic harm and the Court of Protection openjusticecourtofprotection… via @OpenJusticeCoP
Deprivation of Liberty Safeguards -
Supreme Court judgment: if ‘catatonic’ eg due to severe brain injury - “they do not have any bodily, physical liberty to exercise…it cannot sensibly be said that anyone is subjecting them to treatment which constitutes a "deprivation"…(1/2)
Deprivation of Liberty needs to involve “element of coercion or externally imposed restrictions…& a person who is so profoundly disabled they are unable to conceptualise or physically achieve freedom is not in fact being deprived of anything.” - Discuss!
dacbeachcroft.com/en/What-we…
Coma Research retweeted
So what now is a DOL?!
I’ll tackle it in next Thursday’s DoLS refresher. Tickets available here: eventbrite.co.uk/e/biadols-r…
A depressing case exposing delay in best interests decisions about ongoing life-sustaining treatment; but good to see the judge highlight concerns & that the judgment will be sent to the Secretary of State for Health + Chief Executive of NHS England.
bailii.org/ew/cases/EWCOP/20…
This looks like a very useful webinar on Wednesday - “Attorneys, deputies and decision-making” Tickets, Wednesday, April 15 • 12:30 PM - 1:30 PM GMT+1 | Eventbrite eventbrite.co.uk/e/attorneys…
Recovery from vegetative’ and minimally conscious states.
Part of our resource for families about Prolonged Disorders of Consciousness
healthtalk.org/experiences/f…
Coma Research retweeted
Frontlines with Frontera returns tomorrow with Episode 2.
This week, NYU Langone Health's Dr. Frontera sits down with Brian Edlow, M.D. for a deep dive into disorders of consciousness—what clinicians need to know, what’s changing in the field, and where research is headed.
Stay tuned for another can't-miss conversation.
