The @CF_Foundation Metro D.C. Chapter supports the search for a cure for CF by fundraising, promoting awareness & providing community support.
Metro D.C. Area
Joined February 2013
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CFF Metro D.C. Chapter retweeted
Excited to share an inside look at one of the best stories in medicine 💪💪
Being the face of cystic fibrosis - Gunnar Esiason, son of former NFL star Boomer Esiason, has defied all odds.
Catch part of the journey tomorrow morning on @SportsCenter – with the full Esiason family story coming to @E60 later this year.
CFF Metro D.C. Chapter retweeted
We’re live from D.C. for Teen Advocacy Day! Follow the conversation and show us how you’re raising your voice with #CFadvocacy
CFF Metro D.C. Chapter retweeted
Teens from across the country are joining us for our 15th annual Teen Advocacy Day! Help to amplify their impact by urging your members of Congress to support the #PASTEUR Act and the HELP Copays Act. #CFAdvocacy act.cff.org/Yn12GRD
ALT A light-skinned teen girl stands and smiles for the camera.
CFF Metro D.C. Chapter retweeted
The @US_FDA has approved Kalydeco for infants with cystic fibrosis ages 1-4 months who have certain mutations. Research indicates that early intervention with modulators can help slow or even prevent the irreversible progression of this disease. on.cff.org/3HE9AnO
CFF Metro D.C. Chapter retweeted
We recently agreed to provide up to $15.5M to Anagram Therapeutics to conduct clinical trials of a novel enzyme replacement therapy that would help improve the digestion of people with #cysticfibrosis. Anagram expects to start a Phase 1 trial this summer.
on.cff.org/3U7H4A0
CFF Metro D.C. Chapter retweeted
Judy’s and my dream for CF is a Cure and that Chad will realize ALL of the dreams he, Julie, Liam & Tate have! #CFFVLC
CFF Metro D.C. Chapter retweeted
You can help make the voice of the #cysticfibrosis community heard by Congress.
Text FIGHTCF to 96387 to sign up for our Online Day of Action on 3/9. Together, we will make our voices heard. #CFAdvocacy *Message and data rates may apply. Reply STOP to opt-out, HELP for help.
ALT A light-skinned teenage girl sits outside while looking down at her cell phone.
CFF Metro D.C. Chapter retweeted
Some germs can be particularly harmful to people with cystic fibrosis. But how can you avoid germs when you have kids? Chad Riedy, an adult living with CF, shares five tips. on.cff.org/3O9Mcke
CFF Metro D.C. Chapter retweeted
We’re more than halfway to meeting our ROSE UP match: Will you help us cross the finish line? Register for ROSE UP today and join the CF community September 22 to celebrate our progress, together. #ROSEUPCF events.cff.org/ROSEUP
ALT A light-skinned woman wearing a "ROSE UP" t-shirt stands outside and smiles at the camera while holding a purple and pink latch hook project.
CFF Metro D.C. Chapter retweeted
No one understands the realities of life with #cysticfibrosis better than another person with CF -- from getting ready to go to college, starting a family, or undergoing a transplant. Connect with another adult with CF who gets it through CF Peer Connect. on.cff.org/3zmzCX1
CFF Metro D.C. Chapter retweeted
The reward for trying to look your best -- even when you are sick -- shouldn't be people questioning whether you really have a serious illness.” -@Torielaine92, an adult with #cysticfibrosis on.cff.org/3gtKKZt
CFF Metro D.C. Chapter retweeted
Thinking about participating in a clinical trial? How you can work with your #cysticfibrosis care and research teams to ensure that participating is as easy as possible. on.cff.org/3pKC70N
CFF Metro D.C. Chapter retweeted
Exciting news: The @nycmarathon is back for 2021! Sign up today for the Breathe Team with @CFF_GNYC, and get your guaranteed entry. 🏃 #TCSNYCMarathon events.cff.org/NYCmarathon
CFF Metro D.C. Chapter retweeted
Your child is newly eligible for Trikafta. Now what?
Join experts from the CF Foundation for a community webinar Thursday, June 10 at 7 p.m. ET to have your top questions answered about the @US_FDA expansion of Trikafta to children ages 6-11. on.cff.org/TrikaftaWebinar
CFF Metro D.C. Chapter retweeted
And the best story in medicine continues ... #untilitisdone – at Wolf Trap, VA
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CFF Metro D.C. Chapter retweeted
The @US_FDA has approved the use of Trikafta for children with CF ages 6 - 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, about 1,500 children are eligible for a modulator for the first time. on.cff.org/2RD5gOV
CFF Metro D.C. Chapter retweeted
I turned 40 today. Take that #cysticfibrosis.
CFF Metro D.C. Chapter retweeted
Doing my first @comegatheround tonight with @CFF_DC. Very excited to see this platform at work!
CFF Metro D.C. Chapter retweeted
Today, we announced the initiation of the HERO-2: Home Reported Outcomes Study, a first-of-its-kind, at-home observational study that aims to look at the outcomes people with #cysticfibrosis experience while taking Trikafta. cff.org/About-Us/Media-Cente…
