CaPPRe are world leading experts in community and patient preference measurement.
Sydney, New South Wales
Joined February 2016
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CaPPRe's director of Research and Innovations, @simonfifer, will be presenting tomorrow at @HTAiOrg #HTAi2024Seville. Stop by the session to learn about this interesting study and the importance of accounting for treatment experience in #patientpreference studies 🫀
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CaPPRe retweeted
We are kicking off our activities with the PCIG workshop today!
We will deep dive into "Patient And Citizen Involvement In Health Technology Assessment: Networks For Sustainability And Innovation" at 1:30 - 5:00 pm, Room España 4&5.
#HTAi2024Seville
CaPPRe retweeted
Access the CaPPRe partnership opportunity using the CIHR partner search tool available here: lnkd.in/gRH6dbz7
Are you a PhD or post-doc researcher interested in Health Technology Assessment decision-making? Address health system challenges as a #CIHR_ImpactFellow. Applications due Feb. 22: loom.ly/8zFWOsE
@Marshall_HEcon @CaPPRe_research @CIHR_IRSC @TIPS_SPIIE #OneChildEveryChild
CaPPRe's Jenni Godsell is presenting on "Treatment Preferences and Goals Among People Living with CLL" tonight at #Blood2023. Stop by board H53 to check out the poster!
To learn more about the project visit: lnkd.in/g98F3g6s
Jenni presented a second poster last night on "Chronic Lymphocytic Leukaemia: The Patient Experience in Australia" #patientexperience #PREMs #PatientVoice #Blood2023
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CaPPRe's @MayaHoensJoshi presented last night at #Blood2023 on "Using digital health to empower multiple myeloma patients in shared decision-making: Findings from the ChoiceApp® pilot study".
To learn more about ChoiceApp®, visit choiceapp.com.au/
Dr Linda Watson explains that we need to conceptualize cancer care as a longitudinal relationship where patients are partners in their care. Digital health tools are a key way to help facilitate this…as long as there is equitable access to them #Blood2023
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CaPPRe is excited to be attending #Blood2023 in Melbourne! We’ll be sharing information about ChoiceApp, a new shared decision-making tool for people with myeloma, at Myeloma Australia’s exhibition stand. Come say Hello!
CaPPRe retweeted
Thank you for highlighting this panel, @HubenAmy!
From the patient perspective, value includes aspects beyond costs and effectiveness - the value of knowing - and we have methods to measure this.
#HTAi2023Adelaide going to be an informative session on new genetic and genomic tests in healthcare decisions #HTA @HTAiOrg @CPC_usyd @Sydney_Uni @WARC_USYD
Our new shared decision-making program on ChoiceApp is live and available for those living with multiple myeloma! It can help patients identify their personal treatment preferences, track QoL, & have meaningful discussions with their HCP: bit.ly/3rkwviE @MyelomaAust_MFA
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CaPPRe retweeted
Thank you, @CaPPRe_research for highlighting this and other #HTAi2023Adelaide sessions in which Deborah Marshall had the opportunity to present!
Important topic discussed by @Marshall_HEcon and other panellists during this morning’s session at #HTAi2023Adelaide
There is more to a #diagnosis than a name. Information is knowledge which leads to inform decision making and empowerment. A diagnosis can lead to getting the supports you need; clinical, education and social supports. @HTAiOrg #HTAiAdelaide2023
Powerful presentation by @gillyminn this morning as part of the panel on how to measure value in genetic & genomic testing ⬇️
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CaPPRe retweeted
#HTAi2023Adelaide going to be an informative session on new genetic and genomic tests in healthcare decisions #HTA @HTAiOrg @CPC_usyd @Sydney_Uni @WARC_USYD
CaPPRe retweeted
Very interesting discussion in the panel on genetic/genomic testing, especially regarding the ethical issues #HTAi2023Adelaide
Happening at 9:10 in Riverbank 3. If you're at #HTAi2023Adelaide, come join the conversation with @RareVoices @jacknunn @simonfifer @Marshall_HEcon @gillyminn & Prof Sarah Norris 🗨️
CaPPRe's Samson Kong presented findings from a choice experiment exploring community willingness to fund new treatments at #HTAi2023Adelaide. Key takeaway: "Australians are willing to fund new treatments not already covered by the government". Learn more➡️ cappre.info/CaPPRe-HTAi%20Co…
“Understanding what’s important to patients & how satisfied they are with different aspects of the healthcare pathway allows us to target areas for improvement”- CaPPRe’s Jenni Godsell presenting on the #MM Patient Experience Index ➡️ cappre.info/mmpei.pdf #HTAi2023Adelaide
CaPPRe retweeted
Thanks to all panelists and audience for a fabulously engaging discussion on ‘speed and rigour’ in patient preference studies #HTAi2023Adelaide
CaPPRe retweeted
Day two of #HTAi2023Adelaide offers a couple more opportunities to hear Deborah Marshall speak.
