Non-profit dedicated to improving the quality of life of those with cluster headache through research, education and advocacy. Tweets by volunteers & Bob Wold.
Illinois
Joined April 2013
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Bob Wold’s story hits hard.
20 years of cluster headaches → psilocybin → a protocol now studied at Yale.
If you care about CH or psychedelic access, watch this.
Then subscribe to Tricycle Day for sharp coverage + interviews that matter:
tricycleday.com/subscribe
Clusterbusters.org has a new look!
Built to help people with CH find answers faster for diagnosis, treatment, and community.
Our companion site, ClusterHeadacheAltTreatments…, will soon have all the alternative treatment info.
#Clusterbusters #ClusterHeadacheAwareness
Clusterbusters U.S. Conference • Oct 8–11 • Rosemont
Treatment updates, mental health + caregiver sessions, hands‑on demos, advocacy, and the first‑ever Pediatric Program.
Join the community.
cbrosemont2026.planningpod.c…
✈️ Traveling with cluster headache? Preparation matters.
Know your triggers, pack meds + oxygen info, and plan for sleep changes.
Watch our travel webinar for real‑world tips on flying, hotels, and managing attacks:
🎥 youtube.com/watch?v=rCkK5HCI…
Learn more: clusterbusters.org
Earn CME credits with Clusterbusters while learning directly from patients, researchers, and experts on cluster headaches.
Attendees call it “an amazing experience with tangible advice we can bring back to our own practice."
Register: CBRosemont2026.planningpod.c…
Speaker Spotlight: Tammy Isaac
Tammy returns for her second year at the U.S. Clusterbusters Conference, bringing her expertise in grief and emotional support. She’ll lead a mental health session plus a separate kids‑only group. We’re grateful to have her back in Rosemont!
21st Annual Clusterbusters Conference ✨
🎓 Travel scholarships are available. If cost is a barrier, apply — we want you there.
👉 Apply here: forms.gle/ASdCEMzJ5DH4jHLDc9
⏳ 25 days left!
The 21st Annual Clusterbusters U.S. Conference hits Rosemont, IL — Oct 8–10! Three days of education, community & connection.
💛 Registration is OPEN: CBRosemont2026.planningpod.c…
#Clusterbusters #ClusterHeadache #ConferenceCountdown
Honoring 9/11 and those still carrying its impact.
After Ground Zero, Joe McKay faced brutal cluster headaches that nearly cost him everything. Psilocybin brought relief and helped him heal.
Now a Clusterbusters advocate fighting for legal access.
youtu.be/oNEY4trgFwI?si=dZlj…
Behind the pain can be silent despair.
Cluster headache is more than pain — it can impact every part of life.
You are not alone. 💛
#WorldSuicidePreventionDay #ClusterHeadacheAwareness #YouMatter
At the 21st CB Conference, in partnership with U.S. Pain Foundation, we are launching a Pediatric Program for kids 8 and up who live with cluster headache. Kids will learn from experts & share experiences in a supportive environment. Register today CBRosemont2026.planningpod.c…
At the 21st CB Conference, in partnership with U.S. Pain Foundation, we are launching a Pediatric Program for kids 8 and up who live with cluster headache. Kids will learn from experts & share experiences in a supportive environment. Register today CBRosemont2026.planningpod.c…
DMT is a short-acting psychedelic. 1 or 2 puffs from a vape pen is a low-dose experience that lasts about 15-mins.
Guide with more info about DMT and how it can be used to abort attacks:
ℹ️ clusterinfo.org/en/guides/dm…
New in Neurology: Results from international survey on DMT for cluster headache.
67% said DMT completely eliminates pain from attacks - most within 30 seconds.
Research by Dr. Schindler at Yale & Clusterbusters.
📄 Study: neurology.org/doi/10.1212/WN…
Thank you for taking the time to raise awareness for #clusterheadaches with us, and a special thank you to @Amneal for supporting the #CureforCluster 5k this year! Events like these make #invisibleconditions visible and spark conversations about better care. See you in June 2027!
Thank you to Dr. Michael Oshinsky at NIH/NINDS for meeting with Clusterbusters and talking about how we can strategically advance research to better understand cluster headache and explore new potential treatments.
There is a headache expert ally in the federal bureaucracy!
🚨 Not too late to sign up — the #CureforCluster 5k is TOMORROW! Join us to walk for #ClusterHeadacheAwareness and help fund vital research through Clusterbusters.
👉 Sign up now: buff.ly/09LM3cP
We are partnering with AHDA for two Flags for Headache events in D.C. next week!
🏃 Walk — June 23
🎤 Speak Out — June 24 (livestream)
Not in D.C.? Join the Cure for Cluster 5k from anywhere this June. 💛
Walk What You Can this June for the #CureforCluster 5k 💛
Walk with your oxygen tank to raise awareness for cluster headache treatments. If wheeling it, choose sidewalks and take short, safe walks that add up to 5k. Every step matters.
runsignup.com/Race/DC/Washin…
