The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
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Joined August 2017
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Sickle Cell Disease Coalition retweeted
CDC issues Health Alert Network (HAN) Advisory to notify clinicians, public health officials, and potential travelers about a measles outbreak in Texas and New Mexico and offer guidance for prevention and monitoring. As of March 7, 2025, Texas and New Mexico have reported 208 confirmed cases associated with this outbreak (198 in Texas and 10 in New Mexico).
With spring and summer travel season approaching in the U.S., CDC emphasizes the important role that clinicians and public health officials play in preventing the spread of measles. They should be vigilant for cases of febrile rash illness that meet the measles case definition and share effective measles prevention strategies, including vaccination guidance for international travelers.
Read full alert: bit.ly/3DjKR9z
ALT Health Alert Network logo with the words, "HAN Health Alert Network"
Sickle Cell Disease Coalition retweeted
The Annual Meeting is here! Leaders from community blood centers, industry & more will come together to shape our future. On-site registration available! Dive into advocacy, operations, science, & more. Use the hashtag #ABCAnnualMeeting. Get the schedule: bit.ly/408zkkA
Sickle Cell Disease Coalition retweeted
March 9-15 is Patient Safety Awareness Week! 🏥✨ Over 2.6 million deaths occur due to unsafe care. Let's raise awareness and improve safety, especially for those with sickle cell disease. It's time for better care for all. 💙 #PatientSafety #SickleCell #SafeCareForAll
Sickle Cell Disease Coalition retweeted
🚨 No evidence links #sicklecell trait to sudden death or acute pain crises. It is medically inaccurate to claim SCT as a cause of death on an autopsy report.
Learn more about the findings from ASH published in @BloodJournal.
🩸 ow.ly/aE6x50UQlV7
#MedTwitter #SCD
Sickle Cell Disease Coalition retweeted
The 2025 #ASHCRTI is the perfect opportunity to take the next big step in your clinical research career.
Develop leadership skills, work with top mentors, and grow your professional network. Learn more and don’t miss the Jan. 9 deadline: ow.ly/tS2f50TZmL9 #ASHTrainee
Sickle Cell Disease Coalition retweeted
We are honored to introduce Belinda Avalos, MD (@b_avalos_MD) as the 2025 ASH President! A heartfelt thank you to Dr. Narla (@Narla_ASH2024) for your incredible leadership this past year. #ASH24 #hematology
Sickle Cell Disease Coalition retweeted
🚨 Attention Partners! 🚨
The rescheduled partner meeting will be this Friday, December 13th, at 7 PM EST, we will be hosting our final partner meeting of the year! 🗓️
Sickle Cell Disease Coalition retweeted
Have you ever thought about undergoing a bone marrow transplant (BMT) to treat #sicklecell disease (SCD)? 🤔Here are three facts you should know about BMT for SCD.
#SickleCell101 #BoneMarrowTransplant #SickleCellAwareness
Sickle Cell Disease Coalition retweeted
The #ASH24 abstracts are live! See the amazing scientific breakthroughs being presented at the ASH annual meeting.
View them now: ow.ly/szvb50U0j7Y
Experience the science in San Diego or virtually. Registration is still open!
Sickle Cell Disease Coalition retweeted
🌟 Are you Excited for the upcoming Caregivers Summit, happening virtually November 15-17?! 🌟 Join us to connect, learn, and bond with other sickle cell caregivers.
Don’t miss out—register today at scdcaregivers.org!
#CaregiversSummit #StrongerTogether
Sickle Cell Disease Coalition retweeted
From physical and health education analysis to safety and wellness policy planning, this National Health Education Week, schools can use DASH’s Health Education Tools to make health a reality for ALL students: bit.ly/43Osj8s #NHEW #NHEW2024
ALT White background with orange and purple diagonal lines. Text: DASH. Division of Adolescent and School Health. PECAT. Physical Education Curriculum Analysis Tool. WPAT. Wellness Policy Action Tool. HECAT. Health Education Curriculum Analysis Tool. SHI. School Health Index.
Sickle Cell Disease Coalition retweeted
Join the #TieRed Campaign for #WorldInheritedBloodDisordersDay on October 18! 🌍 Inherited blood disorders impact millions globally. By participating, you're not just raising awareness—you're standing in solidarity with patients and families. 💪❤️
#WIBDsDay #GANSID
Sickle Cell Disease Coalition retweeted
The #GANSID welcomes you to October 18, 2024, the inaugural World Inherited Blood Disorders Day. Happy #WorldInheritedBloodDisorders Day! Happy #October18! Happy #WIBDs Day
CEO #WIBDs Day Message: lnkd.in/gDpmyck8
#WIBDs Day Press Release: lnkd.in/gknYWTU7
Sickle Cell Disease Coalition retweeted
Join the Children’s National Sickle Cell Family Education Symposium — "Sickle Cell Unlocked: Conquer College & Career with Confidence"!
Oct 12, 2024
7-10 AM PST / 10 AM-1 PM EST
Virtual & In-Person
For young adults with SCD navigating college & careers.
Register Now!
Sickle Cell Disease Coalition retweeted
SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®️) from national and global markets on September 25, 2024. You can read the statement here:
sicklecelldisease.org/2024/0…
Sickle Cell Disease Coalition retweeted
New in @BloodAdvances: The largest prospective study to date examining the use of CAR-T therapy in a community setting on an outpatient basis shows patients with R/R large B-cell lymphoma responded well with few serious side effects.
Read more: ow.ly/Ztp650TA7rm
Sickle Cell Disease Coalition retweeted
We are hosting a Town Hall on Wednesday, October 2nd at 6 PM EST, focused on educating the community about these important topics. The following evening, on Thursday, October 3rd at 6 PM EST, we will hold another Town Hall
Sickle Cell Disease Coalition retweeted
SCDAA’s Medical and Research Advisory Committee (MARAC) has issued a statement regarding Pfizer’s withdrawal of voxelotor (Oxbryta®) from national and global markets on September 25, 2024. Read the MARAC statement here sicklecelldisease.org/2024/0…
Sickle Cell Disease Coalition retweeted
In the NCCIH lab, @LaurenAtlas & her team are investigating how social factors affect pain, and how that can inform interventions to improve patient outcomes by enhancing patient-provider interactions & reducing health disparities in pain. go.nih.gov/zIWGjAB #NIHPainProgress
