Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease. Time is limited to find a cure & we need to raise $10 million.
Los Angeles, CA
Joined May 2015
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Excited to watch Charlotte, Wyatt and other children thrive at The Gray Academy, a school designed for children (k-5) w/ neurological needs. The David Foster concert directly supports these efforts. Interested in attending or supporting? click here thegrayacademy.org/event/dav…
We're so excited to announce and invite you to our night with David Foster - a concert benefitting The Gray Academy and The Charlotte & Gwenyth Gray Foundation. If you cannot attend, but still want to be involved, check The Gray Academy Site.thegrayacademy.org/event/dav… …
We are excited to announce we have launched The Gray Academy thegrayacademy.org a Non-Profit non public school for children with Neurological disorders, brain injury and global developmental delays, coming Fall 2018 to West Los Angeles! #curebatten
Today is #BattenDay2018! Join me in supporting the Batten disease community: twibbon.com/support/battenda… #MakeYourMark #CureBatten
Today is Rare Disease Day! Help raise awareness and help us with the fight. #careaboutrare #rarediseaseday #shareyourstory #stopthepain #curebatten
Excited to announce our Call-A-Thon this Thursday! Once again the HWood community rallies to fund research 4 a cure! deadline.com/2016/09/gordon-…
Tune in to @GMA friday morning for a heartwarming update on #curebatten. You can see the teaser here: facebook.com/GoodMorningAmer…
CureBatten retweeted
Article on our work w/ @curebatten on gene therapy, highlighting our Vatican talk #UniteToCure #sanfordnextgen fw.to/I6PnPbW
Last chance to meet @TheRock on set of BAYWATCH! Enter today for $10 & support #curebatten! ifonly.com/baywatch teapaw.org/TheRock/status/7264477…
Last chance guys.. come hang out with us on our #BAYWATCH set! All proceeds to a very special charity. ifonly.com/baywatch #CureBatten
CureBatten retweeted
Love this man like a brother. Their lil' girls are the first ever in the world to receive this trail treatment. 💪🏾🙏🏾
people.com/article/batten-di…
Learn more about the incredible journey that has brought us here! people.com/article/batten-di… #curebatten #thankyou @nationwidekids #gratitude
We are #proud to announce that, thanks to donors like you, a clinical trial for Batten disease CLN6 is underway!
CureBatten retweeted
Come join us on our #BAYWATCH set for a day. For a very special charity and we'll have a blast! Bring the baby oil;) teapaw.org/flipsidepa/status/7213…
Meet @TheRock on the #Baywatch set AND support @curebatten?? Yes Please!! Enter here ifonly.com/baywatch teapaw.org/TheRock/status/7218193…
Our #BAYWATCH set has become quite legendary. I want you and your friend to join me and our cast… instagram.com/p/BEULHKkIh_S/
Very honored to be part of @MediaplanetUSA #RareDiseases campaign. Learn more about about our battle with Batten bit.ly/1Lp98Jl
CureBatten retweeted
#RareDiseases are collectively NOT Rare
6000+ rare diseases each affecting < 2000 = 1 in 17 affected
#RareDiseaseDay teapaw.org/PHE_uk/status/70427548…
CureBatten retweeted
February 29 is a rare day. It's also #RareDiseaseDay. Your mission today is to choose a rare disease to research and learn about.
CureBatten retweeted
Today is #RareDiseaseDay @BBC explores one family of 60 million world-wide affected @abhealth ow.ly/YTiV9