CureBatten (@curebatten) header
CureBatten (@curebatten) profile picture

CureBatten

@curebatten

Sisters, Charlotte & Gwenyth, were diagnosed w/ Batten Disease, a rare & fatal brain disease. Time is limited to find a cure & we need to raise $10 million.

 Los Angeles, CA
curebatten.org
Joined May 2015
  • Tweets423
  • Following260
  • Followers2.6K
CureBatten retweeted
Weimer Lab (@DrJWeimer) profile picture
Weimer Lab@DrJWeimer30 Apr 2016
Article on our work w/ @curebatten on gene therapy, highlighting our Vatican talk #UniteToCure #sanfordnextgen fw.to/I6PnPbW
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Love this man like a brother. Their lil' girls are the first ever in the world to receive this trail treatment. 💪🏾🙏🏾 people.com/article/batten-di…
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Come join us on our #BAYWATCH set for a day. For a very special charity and we'll have a blast! Bring the baby oil;) teapaw.org/flipsidepa/status/7213…
flipsidepa (@flipsidepa) profile pictureflipsidepa@flipsidepa16 Apr 2016
Find out how you can spend a day with @TheRock on the set of #Baywatch fside.co/1SQrj8b
Image from flipsidepa (@flipsidepa)
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#RareDiseases are collectively NOT Rare 6000+ rare diseases each affecting < 2000 = 1 in 17 affected #RareDiseaseDay teapaw.org/PHE_uk/status/70427548…
UK Health Security Agency (@UKHSA) profile pictureUK Health Security Agency
@UKHSA29 Feb 2016
Blog: why a patient voice is central to rare disease registration bit.ly/1UtHWv6 #RareDiseaseDay
Image from UK Health Security Agency (@UKHSA)
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February 29 is a rare day. It's also #RareDiseaseDay. Your mission today is to choose a rare disease to research and learn about.
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In honor of #RareDiseaseDay Aren't We All Rare in our Own Way via @HuffingtonPost ow.ly/YSFZa
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CureBatten retweeted
ACHRI (@UofCr4kids) profile picture
ACHRI@UofCr4kids29 Feb 2016
Today is #RareDiseaseDay @BBC explores one family of 60 million world-wide affected @abhealth ow.ly/YTiV9

The children living with the world's rarest diseases

On the rarest of dates three families mark Rare Disease Day and consider the struggle to come to terms with their child's isolating or life-limiting disease.

bbc.com
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Only 289 of 7,000 rare diseases have FDA-approved treatments. RT to raise awareness and support #RareDiseaseDay.
Image from Senator Thom Tillis (@SenThomTillis)
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Happening Now: #Washington #RareDiseaseDay State House Event!
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Why it's vital to support medical research & education on rare disorders #RareDiseaseDay @MRC4Cures @OIFoundation bit.ly/1XVLWnX
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FACT: 30 M. Americans living w/ a #raredisease means that #1in10 of us are impacted. #RareDiseaseDay
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That's me wit a cure batten tee on! I just bought a nice black one. Check out this site. represent.com/curebatten
Image from Danny DeVito (@DannyDeVito)
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CureBatten retweeted
NIH (@NIH) profile picture
NIH
@NIH22 Feb 2016
A3: Medical discoveries aren't made in a vacuum. Advances in rare diseases can hold benefit for treating common diseases&vice versa #NIHChat
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Here’s UR opportunity to be part of the cure for Batten disease. Get your limited edition… instagram.com/p/BB3lgDTQa_q/
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Here’s UR opportunity to help @curebatten! Proceeds from this t-shirt support the cause represent.com/curebatten
Image from Kendra Wilkinson (@KendraWilkinson)
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Please RT or donate to help save Charlotte and Gwenyth Gray & @curebatten crowdrise.com/cynthiajohnson… – at Santa Monica, CA
Crowdrise + GoFundMe

Crowdrise + GoFundMe

gofundme.com
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A family looks for a cure for their daughters' devastating brain disease. MORE @CureBatten + bit.ly/1FWZlYA
Image from The Doctors (@TheDoctors)
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Break something #BreakingBatten challenge! Respond & spread the word video.challengedapp.com/app/… challengedapp.com
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CureBatten retweeted
Bart Baker (@BartBaker) profile picture
Bart Baker@BartBaker3 Sep 2015
Just wanna make it clear - I nominate @aaronpaul_8 for the #BreakingBatten Challenge! #CU #Challenged RT!!!
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CureBatten retweeted
CitizenUP (@Citizen_up) profile picture
CitizenUP@Citizen_up2 Sep 2015
Check out our @Challenged response for #BreakingBatten. Retweet to donate $5 to @curebatten to find a cure! #CU
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