Our mission is to cure Multiple Sulfatase Deficiency #TogetherWeCan #CureMSD
Joined August 2017
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🎉 Happy 6th Birthday, Sepanta! 🎂💙
From all of us at the United MSD Foundation, we hope your special day is filled with fun, smiles, and lots of love! 🎈
#HappyBirthday #EveryBirthdayIsSpecial #MultipleSulfataseDeficiency #MSD
At our MSD Virtual Summit on 9/18, Dr. Peter Marks shared his unique perspective on “Making Rare Disease Treatment a Reality.”
🎥 Watch his full #VirtualSummit Science Day keynote here: ow.ly/F4Qf50ZTHIN
#MSD #MultipleSulfataseDeficiency
We're wishing Mikhail a very happy 10th birthday! Mikhail, we at United MSD Foundation hope your day is amazing & filled with family, friends, & all your favorites! Join us to wish Mikhail a happy birthday this special day!
#HappyBirthday #MSDWarrior #MultipleSulfataseDeficiency
September is #NewbornScreening Awareness Month.
This simple test makes a HUGE impact. Early detection before symptoms appear = faster treatment & a better chance at a healthy life. Spread the word to ensure every baby receives the care they deserve.
#MultipleSulfataseDeficiency
We remember angel Vadelma Sade Saarni, who passed from MSD 5 years ago at 10 months old. The joy & love she brought to her family & all who knew her will forever be cherished. She is deeply missed; today and all days we hold her blessed memory dear in our hearts.
#NeverForgotten
Today we remember Jaylen Garrett, who left us 11 years ago at the age of 8. The joy, laughter, & love she brought into this world continue to shine in the hearts of everyone who knew her. Jaylen, you are forever missed, forever loved, & never forgotten.
#MSDAngel #NeverForgotten
Cure MSD retweeted
We are pleased to see these four @US_FDA senior leadership appointments at such a critical time for people living with rare diseases. Stability, certainty and strong leadership are essential to advancing regulatory science.
Rare diseases are a significant #PublicHealth issue affecting more than 30 million Americans, most of which have no approved therapy. NORD looks forward to working with our new leaders to advance innovation and ensure the needs of people living with #RareDiseases remain at the forefront of the #FDA’s work.
ALT NORD Rare Disease Policy Update: HHS announces new senior leaders of the U.S. Food and Drug Administration (FDA)
🚨 At the #MSD #VirtualSummit on Sept. 18, we’re hearing directly from our research partners about what's NEXT for clinical trials!
9/18-9/19 | Dr. Lars Schlotawa, Dr. Laura Adang & Dr. Rebecca Ahrens-Nicklas
Register now thru Sept. 4 👉 ow.ly/K2wV50ZHWwH
Happy 15th birthday to Analynn! We hope your birthday is filled with all your favorite things and people. We’re so grateful to celebrate you on this special day!
Join us in wishing Analynn a very happy 15th birthday! 🎉💙🎂
#HappyBirthday #MSD #MultipleSulfataseDeficiency
Meet Alice, a sweet, 7-year-old from Brazil! 🇧🇷💙
After a long journey to diagnosis, Alice's mom, Clariana, understands firsthand why #raredisease awareness & early diagnosis matter.
Read Alice’s story here: curemsd.org/families/alice-a…
#CureMSD #MultipleSulfataseDeficiency #SUMF1
🧬 💙 Our MSD Research Strategy Roadmap is here!
Our map to the next #breakthrough in treatment lays out key priorities on the path from #relentlesshope to #realprogress for Multiple Sulfatase Deficiency #research.
🔬 Explore it here ow.ly/Gcpb50Zyg84
#MSD #RareDisease
💙 So much blue THANKS TO YOU!
We're halfway to our $12,000 #MSDWorldDay goal! There's still time to donate, share your photos & tag @CureMsd
Fuel the next breakthrough 🔗 ow.ly/7x4550ZuRuk
#BlueForMSD #BuiltOnHopeBoundForBreakthroughs
🎉 Happy 5th Birthday, Remy! 💙
We hope your special day is filled with everything you love: ABBA & your favorite music, your sweet kitties, laughter, + lots of smiles and hugs!
With love from all of us at the United MSD Foundation, have the best birthday! 🎂
#HappyBirthday
We are officially gearing up for MSD World Day, and we need you on our team. Hear from our Executive Director on how you can become a Team Champion and lead your own fundraising campaign!
Sign up: secure.qgiv.com/event/2026ms…
#MSDWorldDay #TeamChampions #CureMSD #RareDisease
Today we lovingly remember Max Anseth, who gained his angel wings 26 years ago at just 16 years old.
Max's laughter, love, & joy remain a treasured part of his legacy. Sending love to all who carry his memory in their hearts. 💙
#MSDAngel #NeverForgotten #ForeverLoved
🚨 Student Ambassador Applications Are Open thru 7/24! 🚨 Join student leaders nationwide raising awareness, advocating for change, and supporting the rare disease community.
✨ Apply now: curemsd.org/wp-content/uploa…
#StudentAmbassador #RareDisease #MSD #GeneticCounselor
Our 2026 MSD Virtual Summit speaker lineup starts here 👉
We’re proud to welcome from CHOP:
Dr. Becca Ahrens-Nicklas & Dr. Laura Adang. More details TBA soon!
🗓 September 18–19
💻 ZOOM | FREE to attend
Learn more: curemsd.org/2026-virtual-sum…
#MSDVirtualSummit #InPartnershipWeThrive
Today, we honor & remember Jean-Paul Sietz, who passed away from MSD three years ago at age 16. His kindness, joy, & love radiated out to everyone who had the privilege of knowing him and will forever shine in our hearts. #NeverForgotten #MSDAngel
Today, we wish Alice a very happy 7th birthday! 🎉 As your mother, Clariana, beautifully shared, “The first step is to believe.” We hope your special day is filled with all the things and people you love!
#HappyBirthday #EveryBirthdayisSpecial #RelentlessHope #RealProgress #MSD
