DBAS UK - Charity for Diamond Blackfan Anaemia syndrome in the UK - Support, Research, Hope. https://xitter.cf/t.co/yF4CqAuJmm
United Kingdom
Joined June 2012
- Tweets1.2K
- Following277
- Followers424
- Likes741
DBAS UK retweeted
Some of our @JessicaPadfield friends from @merseyrail are doing the Three Peaks Challenge.
They are raising funds for an amazing charity @DBA_UK who do so much #ForOliver and others like him.
Thank you so much!! Good luck!
🚂 ⛰️⛰️⛰️🏆💪 – at Ormskirk, England
♥️FUNDRAISING ♥️
So here is a quick way to fundraise that takes no time at all
Set up a direct debit through just giving.
You can choose any amount and then just forget it
Tell your friends to do it
Tell your family to do it.
justgiving.com/diamondblackf…
Thank you @deenaiskander @bethpay @noemibaroy @JohnStrouboulis
For all you support and dedication to our families. Really positive news with new information and hope
We are so grateful for your continued dedication to our community.
We are super proud of getting this out to all our families.
It’s an easy read/plain English interpretation from the international consensus devoted by our wonderful people
@marrowgenes
We are so grateful to you for giving us the opportunity to share this
Yesssss!
sciencedirect.com/science/ar…
@marrowgenes @josudelafuente @deenaiskander
And ALL involved!
Thank you!
We are so grateful for all you do and the difference this will make for our community
It’s our family weekend soon and we are going to have an amazing time!
If you or a family member has DBAS and would like to attend please get in touch
♥️🩸♥️ – at Caythorpe, England
last day at #bsh2024
sessions with our consultants :
transplant and emerging technologies, also discussing how it feels to have a rare anaemia and how we can all work better together.
@BritSocHaem
Thanks for looking after us Liverpool!
‘Nice one La’ ☺️
@MetroMayorSteve – at Liverpool, England
We’ve been meeting our allies and favourite people today @josudelafuente @noemibaroy.
So many conversations and discussions about the importance of the community and the way we are connected.
@CAnaemiaNetwork – at Liverpool, England
DBA UK is off to the #bsh2024 conference today!
A chance to meet all the doctors, scientists, researchers and big pharma to have a look at what’s going on and make new connections.
We will keep you posted on our experiences
b-s-h.org.uk/?
DBAS STORIES.
Introducing Freya, our tiny but mighty hero!
After battling in ICU she was diagnosed with a DBAS.
Freya’s got big dreams – she’s all set to be a firefighter, driving that big red truck! 🚒
We’re celebrating a big milestone - Freya’s 50th transfusion.
Go Freya – at Leeds, England
DBAS UK retweeted
There's still time to register for the Rare Inherited Anaemias Online Patient Event on 23/03/24, 1-3pm. All RIA patients welcome - spread the word!! Register at bit.ly/3OfzkKy. Expect representatives from @MFTnhs, @DBA_UK, @nandinikori16, @RMCHosp #RIA #HCC #NHS #Haem
Our annual family weekend booking platform is open.
Free for all families to attend.
All meals, accommodation paid for.
If you have any questions please ask.
We will be launching our re-brand so it’s really exciting for us.
(Don’t forget your DBS check)
@leisa_batkin – at Caythorpe, England
DBAS UK retweeted
Huge thanks to @DBA_UK and @DBAFoundation for joing forces to fund this project. Closing date 11 April. Please RT.
imperial.ac.uk/jobs/search-j…
Where would we be without our amazing women who stand beside us and inspire us every day♥️
Thank you
#IWD2024 #InspireInclusion
Big day today, you won’t hear it on the news.
You won’t see it on the TV.
But for us, it means a lot.
It means we are not alone.
It means we have connections.
It means we keep going
@rarediseaseday
youtu.be/zEQ828Lkxac?si=y3m7… – at Leeds, England
