We raise awareness of #epilepsy and #SUDEP and help parents and caregivers to protect their loved ones and reduce the risks associated with #seizures.

United States
Joined January 2010
Our CEO, Bee Martin Lee, and the Epilepsy Foundation team are helping raise awareness for epilepsy through the Purple Pumpkin Project. 🎃💜 Join us by creating your own purple pumpkin and supporting the epilepsy community. Register and get started: ow.ly/wBJW50ZZSE4
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Danny Did Foundation retweeted
It was an inspiring evening at the @DannyDidOrg annual Hearts and Hugs gala last weekend! We’re grateful for the opportunity to support the Foundation as they work to assist families in the epilepsy community. Learn more about how we partner with advocacy organizations: xenon-pharma.com/patients#co…
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Danny Did Foundation retweeted
We hope you can join us at The John Scanlon Memorial Golf Outing. October 8th at Wilmette GC benefitting @DannyDidOrg and Celebrating Our Friend John Scanlon. Registration info below. @michaelsobrien @joehoopsreport @NestoHoops tinyurl.com/scansmemorial
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Danny Did Foundation retweeted
Why do I talk about Epilepsy and SUDEP? To shatter stigmas, educate and to let others know worldwide that they are not alone. Grateful to EpilepsyHu for publishing. epilepsydisease.com/stories/…
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Danny Did Foundation retweeted
This week, @GovPritzker signed my bill, SB2762, into law, extending insurance coverage for life-saving seizure detection devices and capping patient costs at $50 per year. (1/3) #healthcare #insurance #Illinois @replilly78 @EpilepsyFdn @EpilepsyChicago @DannyDidOrg
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I was diagnosed with epilepsy at 18, during my first year of college. Those early days were scary and overwhelming, but I learned to take life one day at a time, lean on support, and find strength I didn’t know I had. Living with epilepsy is hard, but you are not alone.
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Losing her son, JaCorey, to SUDEP changed Tiffany’s life forever. She wants to ensure other families are better informed than she was. Join her to #ChangeOurEpilepsyStory by raising awareness, challenging stigma, and starting conversations about epilepsy. ow.ly/8w7h50ZcqqI
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Danny Did Foundation retweeted
Thank you WHS for surprising me with a graduation ceremony! To everyone who helped me get through senior year at home THANK YOU! To anyone who is dealing with health stuff, don’t ever give up…. YOU CAN DO IT! #epilepsyawarness
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Danny Did Foundation retweeted
#ICYMI: An international team of scientists has identified critical #RiskFactors that could help predict sudden unexpected death in #Epilepsy (#SUDEP), according to a study published in @TheLancet. The findings offer new hope for early intervention and improved monitoring strategies, says study co-author and @NorthwesternMed Neurologist Stephan Schuele, MD, MPH. @NUFeinbergMed Learn the risk factors: breakthroughsforphysicians.n…
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Danny Did Foundation retweeted
I was honored last week to present joint sponsor testimony on House Bill 758, the Brenna Brossard SUDEP Awareness Act. Grateful to stand alongside Louis Brossard, @RepBrideSweeney, and the many advocates and organizations working to raise awareness.
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This #PurpleDay, let's honor Cassidy Megan's vision and spread epilepsy awareness! Since 2008, her initiative has grown into a global movement to empower and unite. 💜 Visit CNF's Epilepsy Education Hub for resources and support! Learn More: bit.ly/3PE9Lng
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Seizures do not only happen at home. In public settings, a person having a seizure may not be able to communicate. Medical IDs and digital Seizure Action Plans help others respond correctly.⁠ ⁠ ➡️ Learn more at seizureactionplans.org and share this post.
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Danny Did Foundation retweeted
Boys Basketball in Top 🔟 for 3rd straight week! #CatchTheKITS at home Tuesday vs Lake Park and Saturday vs #9 Bolingbrook at 5:30pm @DannyDidOrg War on the Shore!!!
The new Super 25 rankings: -When Sides Collide leads to no changes at the top -Homewood-Flossmoor joins the top 10 -New Trier returns -Neuqua Valley hits No. 6 chicago.suntimes.com/super-2…
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If you have an idea to improve epilepsy care, the 2026 Shark Tank Competition is your chance to drive change. Winners may receive up to $250K in combined awards and international recognition to bring their vision to life. LOIs are due Feb. 6, 2026: epilepsy.com/sharktank?utm_c…
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Danny Did Foundation retweeted
🚨 It’s Infantile Spasms Awareness Week. IS can look like quick head drops or small jerks, but they’re a medical emergency that can cause brain damage. Early action can change a child’s future. When it comes to IS, Time is Brain. Learn more at infantilespasms.org. #ISAW2025
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Danny Did Foundation retweeted
SK Life Science is grateful to our partners for their collaboration and support during #NEAM and year-round! @CureEpilepsy @DannyDidOrg @AmericaEpilepsy @EpilepsyFdn @LGS_Foundation Sofie’s Journey @PAMEawareness The Cameron Boyce Foundation
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I'm Brett, participating in The Purple Pumpkin Project this year means a lot to me. It's been five years since I was diagnosed with epilepsy. Before that, "epilepsy" was just another word. This fundraiser helps raise awareness for a condition that doesn't get much attention.
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Seizures can happen anytime, anywhere. Help your child's school prepare ahead!⁠ ⁠ Our FREE School Seizure Action Plan, created in partnership with @DannyDidOrg & Epilepsy Foundation SUDEP Institute, can help. ⁠ 👉 Download yours: childneurologyfoundation.org…
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Danny Did Foundation retweeted
NEW ISSUE: Read the latest content on migraine, cerebral amyloid angiopathy-associated intracerebral haemorrhage, SUDEP, multiple sclerosis, and more at: thelancet.com/issue/S1474-44…
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