The @VWMFamilies Rare Disease Day Virtual 5k is only 2 weeks away!
Click below to register to walk, run or bike, indoor or outdoor, from wherever you are on February 28th. All proceeds fund research & clinical trials to find a treatment for VWM.
charity.gofundme.com/o/en/ca…
Allyson Buck retweeted
Happy Bunny in this year's Halloween costume! #halloween #adaptivehalloween #adaptivehalloweencostume #wheelchaircostume #wheelchairhalloweencostume #carrotcostume #bunnycostume #wheelchairhalloweencostume #homemadehalloween #homemadehalloweencostume #rabbitcostume #Halloween2020
Allyson Buck retweeted
Sam yesterday "I'm having a great day! One of my a million best!" Other than walks around our neighborhood, Sam has only left the house once (for his sister's graduation) since March 12, and still everyday is his Best Day Ever. We are so lucky to be socially isolating with him.
An article I wrote about travelling with Sam for Travel Without Limits, an Australian magazine that is exclusively about tavelling with disabilities.
travelwithoutlimits.com.au/l…
Allyson Buck retweeted
Photo of us for #thefrontstepsproject
#frontstepsproject #socialisolation
#vwmff #vwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck
Allyson Buck retweeted
Sam thought it was the perfect day for his Santa suit.... #santasuit #christmasinapril #style #vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck
Allyson Buck retweeted
Sam loves playing soccer, he can't kick the ball so he plays goalie instead. #vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck #soccer #goalie
Local friends, join using the Avenue Saturday between 12-4! instagram.com/p/B9A9aI_lGLlP…
Allyson Buck retweeted
“Assistant Principal of the day” with one of our great 6th graders! He did an amazing job! He needs to work on his AP “mean face,” but otherwise could fill in for me any day! I guess red hair is a prerequisite for the job. #westsidebestside #redheadsrule – at Byram, CT
Allyson Buck retweeted
Sam's list of people he loves. @NiallOfficial came in first, his friends second and family a distant 3rd. 😂
#vwm #vwmfamiliesfoundation #vwmff #livingwithaterminalillness #RareDisease #NiallHoran #superfan #Leukodystrophy #vanishingwhitematterdisease
Allyson Buck retweeted
Yup, wearing his tuxedo to school.
#tuxedo #samstyle #dapperdresser
#vwmff #vwm #findacureforvwm #samvsvwm #vanishingwhitematterdisease #leukodystrophy #vwmfamiliesfoundation #livingwithaterminalillness #leukodystrophyawareness #sambuck #fashionisto #kidfashion
Who would have thought @oldspice should be such a hit? James decided he needs to start wearing deodorant (he doesn't) - last week he decided to try Daddy's but couldn't find it and ended… instagram.com/p/B6hIgCgFr8Xp…
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Allyson Buck retweeted
Grateful to Sam's para for capturing this epic performance in chorus today
@taylorswift13 sums it up best:
"I keep cruising, can't stop, won't stop grooving
It's like I got this music in my mind saying it's gonna be alright"
This kid brings us so much joy (and laughter) every day
Allyson Buck retweeted
Halloween takes on special meaning for Greenwich boy with terminal illness connecticut.news12.com/story…