PPI in research, Chartered Psychologist, Disability Trainer, Changing Faces Ambassador, CLAPA & FEI supporter. Wannabe dancer, interiors addict. Own views.
Kent, UK
Joined March 2015
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Delighted to be on @bbcsoutheast today for @FaceEquality talking about the need for positive representation of people with visible differences in brands, businesses and broadcasters #FaceEqualityWeek #FaceEquality #ThisIsMe
"Hopefully the children of tomorrow will grow up in a different world to the one that I did." Amanda Bates shares her story of living with visible differences to help others and to promote respect. bbc.in/3ofjsy2
.@leicesterliz @UKLabour WHY do you refer to #PIP as an out of work benefit? IT ISN’T. People can claim PIP WHEN THEY WORK. This benefit can help people STAY IN WORK. This isn’t about getting disabled people working, it’s about saving money by targeting vulnerable people. #Shame
Great to be at the Community Research Engagement Network event today representing @CHSS_Kent @IWHRG_Kent and HDRC Medway with @KateDay28 @DrAmandaBates @NatashaSteer @medway_council @JWebsterDiet @SocEntKent @DrKhan_do
New podcast episode! 'Should the Public Have a Say in Your Research? A Conversation with Dr Amanda Bates.' Huge thanks to the 'Stupid Genius' podcast hosts @EmilyhmWharton & @MollieBryde Listen here Expert PhD Advice for Every PhD Student (stupidgeniuspod.co.uk) #PPI #Research
Why is it important to involve Experts by Experience (EbyE) in craniofacial research? Would you like to know when, why & how to involve EbyE?
Find out more in this CPCJ article! @DrAmandaBates @kennyardouin @danielle_m901 #cleft #research #involve
journals.sagepub.com/doi/10.…
Just landed in sunny Exeter and looking forward to @NIHRinvolvement @UniofExeter summer school starting tomorrow! Always so much to learn and share in #PublicInvolvement #PPI
We’re ready to talk all things research, public involvement and @CHSS_Kent! Massive thanks to the brilliant people at the Fourth Wall in #Folkestone who are letting us use their fabulous space! #BetterResearchTogether #PPI #PublicInvolvement #FourthWall
Dr Amanda Bates retweeted
Our @CHSS_Kent #PublicInvolvement team will be at Fourth Wall Folkestone tomorrow (Friday) for an interactive and fun event about the benefits of getting involved in research. 😀fourthwallfolkestone.co.uk/b… #BetterResearchTogether #PPIinresearch #CommunityInvolvementandEngagement
Fantastic to speak at @FaceEqualityInt Forum about working with Experts by Experience. Chuffed to be reunited with my fellow multiple hat wearers @kennyardouin & @danielle_m901! #HatsOnTour #FaceEquality
So many of these #LivedExperience challenges resonate with me either at a personal level or I’ve seen it happen … again & again. Thank you @TheTealTigerUK for a brilliant thread, just sorry it has to be written. I am buoyed though that these discussions are starting to happen.
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Thank you @torisprung @LJMU for inviting me to speak about #PPI #PublicInvolvement & #Inclusion from my ‘multiple hat’ wearing perspective (professional & service user)! Lovely to meet you and your colleagues 😊
At @Moorfields for some treatment and very pleased to bump into my Moorfields surgeon Mr Daniel Ezra (one of the best and most human, down to earth surgeons I’ve ever met and I’m rather the #NHS veteran…). Hope we can engage in some #PPI #PatientInvolvement work soon!
Another brilliant on point article by @DrFrancesRyan. Just sad it has to be written at all… #PIP #Disability
‘UK ministers want to fob off disabled people with vouchers? It’s like government by Groupon’ | Frances Ryan theguardian.com/commentisfre…
It’s another day and @Conservatives continue to vilify disabled people - please see facts about #PIP below. I can’t wait until this awful government is voted out.
Some facts about #PIP
1. It is NOT an out-of-work benefit
2. The assessment & application process is hard. It is not "easy to claim"
3. Only 40-45% of claims are successful
4. Getting the correct reward is difficult. Challenging it can take months.
Impactful mental health research & community engagement event @TCMargate. @CHSS_Kent Director @LDikomitis opened the proceedings. Congratulations to all involved in the #INTERACT project! research.kent.ac.uk/chss/res…
Powerful piece by @DrFrancesRyan for @guardian about the exclusion of disabled children from school photos. #Ableism is desperately rife and its impact far reaching.
“That’s the thing with true ugliness. It does not come in the shape of a wheelchair or scars. It sits in prejudice, clawing its way into our culture until one day the nice man taking your child’s school photo asks her to hide her hearing aids.”
My col. theguardian.com/commentisfre…
This is abhorrent. I see that @HTempestPhoto have posted an apology but turned the comments off. The school also has questions to answer here. It’s 2024 and disabled children (and adults) are still treated like second class citizens. When will it change? #discrimination
Aberdeenshire council has apologised after parents were offered a choice of class photos with or without children with complex needs in them.
Natalie Pinnell's daughter, who has additional support needs, told the BBC about what happened at Aboyne Primary
bbc.co.uk/news/articles/ce5e…
Dr Amanda Bates retweeted
Commenting in a personal capacity. It is not merely 'tragic'. It is GROTESQUE.
When we reach this point, the system has rotted beyond the well-known unresolved structural flaws in HE politics and financing. 1/7
Dr Amanda Bates retweeted
This sort of headline is one reason I wrote my upcoming book. Disability is often seen as binary: a super human ability or pitiable misery. Disabled people shouldn’t to obliged to pretend things are never difficult just to convince the public we’re “normal.”
