Dr Tony O’Sullivan retweeted
The People Who Disappear When Illness Arrives 💔
Yesterday, I attended a carers support group, and I came away feeling heartbroken.
Listening to other people's experiences of dementia, caring and the loneliness that comes with both made me reflect on my own life.
I've experienced friendships disappearing because of my MS, and now I'm watching something similar happen to my 90-year-old mum, who has vascular dementia.
At her age, so many friends have already passed away. And when the few who remain stop making an effort, that isolation becomes even more painful.
One thing that struck me was how many carers shared the same experience. People don't know what to say, how to behave or how to support someone whose life has changed through illness. So sometimes, they simply disappear.
I'm also struggling with something deeply personal: trying to be Mum's daughter and her carer while managing my own MS. Sometimes I don't have enough energy to be both.
I'm grieving the mum I knew before dementia, while also grieving the things MS has taken from my own life.
This is a very personal video about dementia, disability, unpaid caring, loneliness and the relationships we lose along the way.
If someone you love is living with illness or caring for someone who is, please don't disappear. You don't need to have all the answers. Sometimes just showing up means everything. ❤️
#DementiaAwareness #UnpaidCarers #MultipleSclerosis #VascularDementia #CarersMatter #DisabilityAwareness #InvisibleGrief #PoweredByExperience
A brilliant day of information, connections, solidarity and passion
Dr Tony O’Sullivan retweeted
Stuart Jordan from East London Foundation Trust speaks at our NHS at a crossroads conference happening now - he is ballotting for strike informal action to oppose huge cuts to staff.
"Please scrutinise your local hospital board papers for planned cuts."
Dr Tony O’Sullivan retweeted
Doctor Colin Hutchinson speaks at our NHS at a crossroads event happening now -
We need consultant psychiatrists to speak out like Emergency Medicine consultants, highlighting the crisis and avoidable harm in A&E.
Dr Tony O’Sullivan retweeted
At our NHS at a crossroads event in London now:
Caroline Bedale from Gtr Manchester KONP talks about supporting several NHS strikes in Greater Manchester.
Dr Tony O’Sullivan retweeted
Speaking now at our NHS at a Crossroads event in London:
Mark Dunne, @unitetheunion mental health worker, sacked by East London FT speaks about NHS staff redundancies and the hugely damaging effects of this.
Dr Tony O’Sullivan retweeted
Speaking passionately now at our NHS at a crossroads conference in London:
Ethan Chua from @migrantsorg and Patients Not passports.
Dr Tony O’Sullivan retweeted
Hooda Abdullah from KONP Cambridge speaks at our NHS at a crossroads conference now on the Mann Review.
Dr Tony O’Sullivan retweeted
Speaking passionately about the NHS, @LiamShrivastava , @TheGreenParty Mayor of Lewisham at our NHS at a crossroads conference event in London today.
Dr Tony O’Sullivan retweeted
Campaigner @diarmaidmcd from @JustTreatment speaks about the costs of US Pharma in the UK after an agreement with Labour Govt - £44.7bn over 10 yrs.
There could be 229,000 extra avoidable deaths as a result.
Dr Tony O’Sullivan retweeted
Migrant worker @SybilM26455 @IWW_PAWA is a children’s residential care worker with @unisontheunion and speaks with passion about the part migrant workers play in our society and our NHS.
Dr Tony O’Sullivan retweeted
Tim Squirrel from @Foxglovelegal speaks about Palantir and NHS data at our NHS at a crossroads conference happening today in London.
Dr Tony O’Sullivan retweeted
Former bond trader @vince_gomez_uk of the @99Organisation speaks about how the idea that we cannot afford the NHS is a myth.
In 1945 debt to GDP was 250% - it's only 88% currently.
Underfunding is a political choice.
Dr Tony O’Sullivan retweeted
NHS Occupational therapist @Jordanriv of @unisontheunion NEC talks about the vast sums involved in privatisation, at our NHS at a crossroads event happening in London now.
Dr Tony O’Sullivan retweeted
Happening now at our NHS at a crossroads event - @ChrisNineham from Stop the War coalition @STWuk talks about the vast sums being spent on the military and not on our public services.
Dr Tony O’Sullivan retweeted
Labour MP @johnmcdonnellMP addresses our NHS at a crossroads event in London now about the opportunities of a new administration and what could be done for the NHS.
Dr Tony O’Sullivan retweeted
Chair of @SocHealthAssoc Dr @rathisochealth addresses our NHS at a Crossroads conference in London now.
Dr Tony O’Sullivan retweeted
NHS AT THE CROSSROADS conference opening with @DrJohnPuntis and @AndrewMeyerson
The NHS in Crisis is not getting a response from this Govt.
People are bankrupted in the US by health charges. We cannot afford not to keep our public NHS.
Wow @DavidGWrigley that is scarily ruthless and a frankly dangerous decision. For hospital decision-making, patient care and GP workload stress. And the Budget has ignored the NHS crisis undermining the health of the population and the economy.
So my local FT - @UHMBT - has allegedly just told all its consultants they CANNOT book any further follow up appts for patients in their clinics. All clinics are now for ‘new’ patients. It’s an absolute outrage. What do patients do now for ongoing care. Yup - they come to us…..