Beth (@Drbeth_) header
Beth (@Drbeth_) profile picture

Rheum,CF-related arthritis, books,learning,crafts,equality/human rights,juggling life/medicine w T1D. own views posted

Manchester or Glasgow
Joined November 2014
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Picture from yesterday at #BSR24 - our fabulous Western Isles nurse Alison MacIver presenting her research poster on social engagement in people with rheumatic and musculoskeletal disease
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Fabulous talk from @KlaireConnor this morning to kick off second day of #BSR24 - we are so grateful for her input with our under 25s in the adult service
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.@USC this is an appalling decision - Asna Tabassum sounds like the most inspiring and talented student, she is valedictorian, she is a biomedical engineer and sounds like EXACTLY who we need to be listening to and learning from just now
Sad decision from @USC A Muslim woman who minored in resistance to genocide is the USC Class of 2024 valedictorian — and USC is BANNING her from speaking at Commencement.😐 You can contact USC Provost Andrew Guzman to share your concerns at [email protected] and 213-740-2101.
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My copy of @EmmaLouisePH book has arrived!! Such a beautiful cover! And really looking forward to seeing Emma tomorrow for the book launch ☺️
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It's the fab @AurelieRheumo 🎉
Watch: Ultrasound for PsA Stratification: Are We There Yet? Dr. Aurelie Najm reports live from #ACR23 bit.ly/3uhgsnu
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I just signed a @t1international petition: Fight for Five: Call on the Big Three insulin manufacturers to lower insulin prices now!. Sign here: actionnetwork.org/petitions/…
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Excellent work from today @MishalHusain #r4today trying to pin Schapps down. It's clear to the UN that it isn't possible for Palestinian civilians to get to safety with the removal of resources and 24hr deadline given by Israel, why isn't it clear to the UK government?
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Further to this thread - some excellent work by a rheum reg (sorry not got name) rolling out a new medication osteoporosis - but has a clinic and ability to do this work because currently out of programme for research funded by @VersusArthritis -
Really useful work from @celiagregson presenting on the Reduce study. Incredibly applicable resource produced...prompted a question regarding whether it is worth TRYING to improve services when we just meet resistance from management. I totally get where they are coming from /
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It's currently unclear how/if service (definitely needed) will be provided when he goes back into programme. The NHS is being supported by a huge number of clinical academics - but clinical academics are under significant stresses from both NHS and academia.
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Shout out to the orthogeris team in Clyde! so much @RoyalOsteoPro about how vital orthogeris work is: benefits for patients, cost savings for NHS. Our orthogeris bone health MDT is a good point in my week cos they are lovely pragmatic enthusiastic ppl @TinaHen08 @h_tannahill
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Re last thread, having colleagues who encourage each other is even more vital when we are short staffed on a long term basis and struggling to offer care we would like to. Feeling we can still do well, still improve things even in such a time is much easier with such colleagues
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Really useful work from @celiagregson presenting on the Reduce study. Incredibly applicable resource produced...prompted a question regarding whether it is worth TRYING to improve services when we just meet resistance from management. I totally get where they are coming from /
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This is indicative of where we are at in much of the NHS at present. My own struggle recently to get a job for which there was already funding and huge need to be advertised (it took >6mths) is a small example. Existing in this environment is exhausting. BUT...
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Absolutely here for @timhayward commentary on (cook)books - it's not the books fault there isn't enough shelving #bbctkc
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This is vital reading for anyone thinking about patient safety in the wake of the Letby case:
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More books from lovely friends! This time it's Rachel Mann with a Lent book on Jane Austen 😊
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Listening to @BBCRadio4 Open Book and thinking a historical fortune telling novel is something you are interested in? The fabulous @EmmaLouisePH has new book available for pre-order! teapaw.org/Waterstones/status/168…
Something powerful is coming in 2024. Set against the captivating backdrop of 19th-century New York's decaying underworld, featuring a cast of intoxicating characters, The Knowing is the darkly spellbinding debut novel from @EmmaLouisePH Discover more: bit.ly/3JVLrdG
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My fabulous pal Emma has a book coming out 🎉🎉🎉🎉 please check it out and consider preordering!
Something powerful is coming in 2024. Set against the captivating backdrop of 19th-century New York's decaying underworld, featuring a cast of intoxicating characters, The Knowing is the darkly spellbinding debut novel from @EmmaLouisePH Discover more: bit.ly/3JVLrdG
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The other thing I have to say about this is one I've said before: If you as a consultant develop a significant acute or chronic illness, often you get support and can write a BMJ column about it (I'm fine with this, it's the contrast that's problematic) but if you are a trainee..
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All of those things your boss' BMJ column says about understanding what being a patient is like being eye-opening is apparently worthless, its just you being annoying that rota might need to be altered I'm v aware this has not been all cons experience esp intersectionally, but..
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I gave up doing nightshift after 5.5yrs of doing them as a junior Dr. They made me unwell, and I stopped waking up for night time hypoglycemia episodes. This carries a mortality risk. I still had to argue my case with occupational health /1
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Who suggested make it a 1yr change only. I suggested I would still have diabetes in a years time. This was pre lots of the tech that is now available for t1D. Colleagues responses varied. Most supportive, some less so. /2
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We are all for teaching that #selfcare is important....but apparently not when it means things like attending scheduled hospital appointments. #selfcare but not like taking time off when you are sick. #selfcare but please don't have a chronic illness.
Appalled to receive a letter on my daughter (with #cysticfibrosis) poor school attendance (due to clinics & illness). Subtle threats incl legal action if we do not take steps to improve her attendance next year. Grossly insensitive & upsetting. You can imagine my reply.
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This is a major issue on many levels. Attending hospital appointments is important for many children and young people, but also being off when sick is important. Presenteeism of other kids also negatively impacts those with chronic illness.
Appalled to receive a letter on my daughter (with #cysticfibrosis) poor school attendance (due to clinics & illness). Subtle threats incl legal action if we do not take steps to improve her attendance next year. Grossly insensitive & upsetting. You can imagine my reply.
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The majority of kids who intermittently miss school for chronic health reasons would love to "try harder" and be well enough that they did not have to miss all sorts. The implications for mental health are significant:
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