BSc, MSc, MCSP, MAPCP. Specialist Paediatric Physiotherapist. Honorary research associate UCL, currently validating ‘The Spider’. She/her.
London, England
Joined July 2011
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Final stage of the Spider validation! We are now assessing if the Spider can measure change over time. Hoping for as many volunteers as our last study (10,000!). So grateful for the HSD/hEDS community and their contribution to research 🦓 @jvsimmonds01
hypermobility.org/research-1…
Ellen Ewer retweeted
Proud to present the validation of the Spider tool for symptomatic hypermobility on behalf of our research team and patients @EllenEwer @VickiBusbyPT @ShoulderAcademy Inge De Wandele @thecsp #Physio24
Thanks @thecsp for cleverly putting the abstract sessions together for #Physio24 👏👏👏
Amazing line up this morning of @jvsimmonds01 @HeidiSiddle and @carissa_jones87
A greatest hits package for us in #RheumPhysio
Ellen Ewer retweeted
We are excited to share our adult hypermobility Spider validation paper. link.springer.com/content/pd…. Thank everyone who participated. Thank you @PPEFcharity @ehlersdanlosuk @TheEDSociety. Brilliant research by @UCLchildhealth alumni @EllenEwer and @Ingedewandele and team!
QR codes below. Scan for quick survey access. Separate surveys for adults and adolescents, 18 year olds can choose either! @jvsimmonds01
Final stage of the Spider validation! We are now assessing if the Spider can measure change over time. Hoping for as many volunteers as our last study (10,000!). So grateful for the HSD/hEDS community and their contribution to research 🦓 @jvsimmonds01
hypermobility.org/research-1…
Very exciting - we are now testing ‘the Spider’ with adults with HSD/hEDS. The first stage of the study is now live for adults aged between 18 and 65 with and without HSD/hEDS. Please participate if able and share with others! ehlers-danlos.org/studies/te… @jvsimmonds01 @HMSACharity
Parts 2 and 3 are now live! We’ve had an incredible response so far and would appreciate your ongoing support. Each survey asks about different symptoms you may experience.
Survey 2: redcap.slms.ucl.ac.uk/survey…
Survey 3: redcap.slms.ucl.ac.uk/survey…
The next step of the Adult Spider validation is now live! Part 3 is also live - if you are able to complete all 3 surveys we would be so grateful. Links below 🕷️
Part 1: redcap.slms.ucl.ac.uk/survey…
Part 2: redcap.slms.ucl.ac.uk/survey…
Part 3: redcap.slms.ucl.ac.uk/survey…
@jvsimmonds01
🕷️The Spider has been designed to assess the impact of various symptoms (or problems) experienced by people with #hypermobilityspectrumdisorder or #hypermobileEhlersDanlossyndrome
🟣Researchers need participants 18-65 with #hEDS or #HSD to take part ehlers-danlos.com/research/r…
ALT Validation of the spider - a multisystem impact questionnaire for adults with symptomatic hypermobility
Huge congrats to @SueUnaWard for winning the outstanding platform award for her presentation on her scoping review of clinical characteristics of symptomatic hypermobility at #WorldPhysio2023. So well deserved for such excellent work 👏
Great talk from @carol_mccrum about the rheumatology physio capabilities framework 👏 #worldphysio2023
Such an incredible experience - my first World Physio Congress! Delighted to have presented our Spider work, and to learn about all the latest Physiotherapy research. Such an inspiring weekend #WorldPhysio2023
Fantastic to hear about the Spider symptom tool @WorldPhysio1951 by our wonderful @EllenEwer @uclphysio @UCLchildhealth. Thanks to ALL who have helped @ehlersdanlosuk @HMSACharity @TheEDSociety @CentralHealth
Ellen Ewer retweeted
This is a very important step in bringing the multisystem Spider measure into practice. We need young people 13-18yrs with and without hypermobility to complete this. Please share. @UCLchildhealth @TheEDSociety @HMSACharity
Adolescent participants needed for research study - A new questionnaire called The Spider has been developed to explore how symptomatic #hypermobility affects your daily life. Learn more! redcap.slms.ucl.ac.uk/survey…
Ellen Ewer retweeted
If you are planning to study on the UCL MSc paediatric or musculoskeletal physiotherapy or just want to hear their research sign up for this event. You will hear from fabulous alumni including @DrCMAlexander @christiniedougl @EllenEwer Elaine Chong and Becca Spear
Are you a prospective student interested in finding out more about the world-class research we do here @UCLchildhealth? Join our virtual conference on 22 Feb 1-5pm and hear from our postgraduate students as they discuss their innovative research projects:
bit.ly/3wuFz3Y
Ellen Ewer retweeted
Special thanks to physio @EllenEwer & all #AlliedHealthProfessionals who this year have supported their patients with #EhlersDanlosSyndrome or #HypermobilitySpectrumDisorder around the world, carried out research, and joined EDS ECHO - giving hope for the future! 1/3
So proud of the spider and our wonderful Spider team! 🕷
Delighted to present The Spider hypermobility multi system impact scale at the EDS scientific symposium in Rome with @EllenEwer. Thanks to all the team, participants and @TheEDSociety @ehlersdanlosuk @HMSACharity @CentralHealth
Really enjoying the #ISS2022 so far, such great networking and fascinating presentations and posters
.@EllenEwer is a physiotherapist from London, UK, attending the International Scientific Symposium. She shares why this event is important. #ISS2022
Ellen Ewer retweeted
**SAVE THE DATE** we’re planning a study day (virtual and F2F) on Friday 9th September on Assessment and Management of Altered Tone in Children in collaboration with @irwinmitchell @TheAPCP
Ellen Ewer retweeted
Thank you to everyone who has supported this research. The interim data is looking great..we need more young people with HSD/hEDS who have bladder problems to complete this questionnaire please @LaraBloom @TheEDSociety @HMSACharity @ehlersdanlosuk @EllenEwer @CentralHealth
Researchers @EllenEwer and @jvsimmonds01 are looking for participants aged 13-18 with and without symptomatic #hypermobility for #research testing a new screening tool to assess the impact of hypermobility in young people ehlers-danlos.org/studies/te…
Ellen Ewer retweeted
Exciting and important #teenage #hypermobility project. If anyone can help @EllenEwer and @jvsimmonds01 please see below for further details. #AHPsinResearch @OfficialCAHPR @PhysioResSoc @SueUnaWard
Researchers @EllenEwer and @jvsimmonds01 are looking for participants aged 13-18 with and without symptomatic #hypermobility for #research testing a new screening tool to assess the impact of hypermobility in young people ehlers-danlos.org/studies/te…