Accelerating lifesaving research and drug development for the final 10% of people with #cysticfibrosis that don't benefit from mutation-targeted therapies.
Philadelphia, PA
Joined July 2011
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✨🌿 THE TIME IS NOW.
💜 Tonight, help us finish what we started. Help us turn possibility into lifesaving breakthroughs for the final 10% of people with #cysticfibrosis.
Make your gift NOW: secure.givelively.org/donate…
#EECrystalPalace #CureCF
💜✨ The moment we've all been waiting for! Our co-founder Emily Kramer-Golinkoff is taking the virtual stage at the 2026 Evening with Emily's Entourage gala! 🌿
🎥 Don't miss this moment! Tune in LIVE: us02web.zoom.us/webinar/regi…
#EECrystalPalace #CureCF
✨🌿 Tonight, possibility takes center stage.
Beam by beam. Pane by pane. Welcome to the 2026 Evening with Emily's Entourage gala, The Crystal Palace: A Feat of Innovation!
🎥 Join us virtually at 7:15 PM ET for tonight’s program:
givebutter.com/2026-gala-vir…
We’re proud to support NEW research from Jacob Witten, PhD at @mit using artificial intelligence to rapidly screen and identify next-generation lipid nanoparticles (LNPs) designed specifically for inhaled #cysticfibrosis gene therapy.
👉 Learn more: emilysentourage.org/emilys-e…
#CF
🦠 New EE-funded research @ucsdmedschool to develop inhaled therapy combining phages + antibiotics to target drug-resistant infections.
For people with #CF, this could help restore effectiveness of antibiotics; expand options.
👉 Learn more: emilysentourage.org/new-emil…
Join us on October 22 for the 2026 EE gala, The Crystal Palace: A Feat of Innovation ✨🌿
📍NEW indoor venue: Fairmount Park Horticulture Center
💻 In-person or virtual
🔗 Purchase tickets: emilysentourage.org/phillyga…
#EECrystalPalace #CureCF #CysticFibrosis
What if we could get gene editing through #CF mucus… not stuck in it? ❌➡️🧬
That’s exactly what our newly funded research grant, awarded to researchers at @JohnsHopkins is tackling.
👉 Learn more: emilysentourage.org/new-2026…
@HopkinsMedicine #CureCF #CysticFibrosis #CFResearch
🚨New #CysticFibrosis Grant Announcement 🚨
We're thrilled to announce new funding for researchers from @nationwidekids & @ucsf focused on making gene therapies for #CF more durable.
👉 Learn more: emilysentourage.org/emilys-e…
#CureCF #GeneTherapy
🧬 Join us for our inaugural State of the Science: EE Edition webinar—an exclusive opportunity to hear about the research, strategy, and scientific roadmap driving hope forward for the final 10% of people w/ #CF.
📅 9/1/26
🕢 7:30pm ET
Register today: us02web.zoom.us/webinar/regi…
🚨🧬 A #CF #clinicaltrial opportunity has been added to Emily’s Entourage CF Clinical Trial Connect (CTC)!
If you’re already registered, check your inbox 📩 Not part of the CTC yet? This is your sign to join.
🔗 Learn more + sign up: emilysentourage.org/CTC
#CureCF
Lifesaving breakthroughs don’t happen by chance. They’re cultivated. 🏡🪴✨
On Oct. 22, join us for the 2026 EE Gala as we create the precise conditions for progress for the final 10%.
🔗 Add to calendar: addevent.com/event/y5ff4cz3c…
#EECrystalPalace #CureCF #CysticFibrosis #CF
While #CysticFibrosisAwareness Month may be ending, our resolve here at Emily’s Entourage is stronger than ever.
We’ll keep racing until we #CrossOutCF—for every single person living with #cysticfibrosis and the people who love them.
100%, full stop! ❌💜
#CureCF #CF
🔎 #FactFriday: Advanced In 2024, more than 97.3% of individuals with advanced lung disease were adults, with a median age of just 36.8 years.
Progress has changed what’s possible. But for many in the #cysticfibrosis community, progress is still beyond reach.
#CrossOutCF
🔎 #FactFriday: On average, people with #CF spend nearly two weeks per year hospitalized due to pulmonary exacerbations.
That’s time away from work, family, and living life to its fullest.
💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.
🔎 #FactFriday: According to EE's Final 10% Survey, 70.4% of adults with #CF spend 1–4 hours every day on treatments to open their airways and help move mucus in their lungs.🤯
That’s up to 25% of waking hours spent tethered to medical treatments—just to breathe!!!
#CrossOutCF
#SpeakUpCF: From constant worry and insidious "what ifs" to the quiet calculations behind everyday decisions, #cysticfibrosis is an exhausting disease.
💬 What’s something no one talks about when it comes to life with #CF?
Share with us ⬇️
#CrossOutCF #CureCF
🔎 #FactFriday: There are nearly 40,000 individuals living with #cysticfibrosis in the U.S. and 105,000 worldwide.
That’s 105,000 reasons to move faster.
Time is of the essence. 100% or bust.
💜 Share to help raise awareness this #CFAwarenessMonth as we work to #CrossOutCF.
It’s May 1—#CysticFibrosisAwareness Month begins!
Join us as we #CrossOutCF by peeling back assumptions and reveal what life with #cysticfibrosis really looks like. ❌💜
🔗 Learn more: emilysentourage.org/cf-unsee…
#CureCF #CF #CFAwareness
A powerful perspective: rare disease is one of the largest unmet medical needs—and this moment is different because we finally have the tools to act.
We’re working to bring this progress to #CF.
Read more >>> nytimes.com/2026/04/09/opini…
#CureCF #CysticFibrosis #RareDisease
💥 Big news from Emily’s Entourage!
We’ve appointed David A. Waltz, MD, as our first-ever Chief Medical Officer—accelerating progress toward new therapies for the final 10% with #cysticfibrosis.
Learn more: emilysentourage.org/?p=26121…
#CureCF #CFAwareness #CFScience
