Emy with ME

Today marks a year since I first shared my fundraiser, hoping for support in my battle with #severeme, #longcovid , and multiple other conditions. Thanks to your generosity, I’ve been able to pay for essentials like specialist appointments abroad, medical supplies, and sometimes food. Your kindness has been a true lifeline. A reason to keep going. I wish I could give back, but ME/CFS and Long COVID are incredibly complex, with no straightforward treatments or cures. I depend on financial help not just to survive but to have even a chance at proper care. Here in Greece, there are no specialists or centers for my conditions. Ideally, I’d be in a country with better resources (US maybe), but that isn’t possible. The majority of funds are saved, awaiting the next urgent need. One year later I'm much worse. I couldn't even imagine that could happen. But here I am. Much more afraid and scared. Right now, what I need most is a safe, supportive environment and a caregiver knowledgeable about my conditions. I also need access to specialists for crucial assessments and then assessment for surgeries, which are only available abroad. No amount of money can truly give me these things. Or a huge amount of money I can't ask from people to donate of course. Ideally, I’d be fundraising for surgeries and neurosurgical assessments, but I’m still struggling just to secure basic, everyday care, so I find it meaningless. Living with neglecting parents only makes things harder. Their dismissal of my condition means I’m constantly exposed to stress and worsening symptoms. Even when I finally get to virtually see specialists, they ignore the advice given and their opinion. When I try to discuss what I need, they don’t listen or suggest harmful alternatives. It’s painful, because I know how much you want to help, yet this environment keeps me from stabilizing. And puts a lot more pressure financially to me because I have nobody to help or actually try to do something. You can’t change my family, but your support reminds me I’m not alone. Thank you, truly, for everything. I have thought of maybe creating a patreon channel so that I can have a more regular support, in order to at least leave the household. But I really don't have the energy to do that. Please keep sharing and again thank you all❤️‍🩹 p.s.: also huge thanks to chatgpt for helping me write every single on of my posts. K.