Interdisciplinary research on fibromyalgia & academic identity, embodiment. Interests: disability, identity, stigma. Research: https://xitter.cf/t.co/Qk6C8ZolQS

Joined July 2016
Fibromyalgia and Academic Identity retweeted
Pls help. Created a new installation to represent #fatigue and tiredness when walking. Not sure what to call it though. Any suggestions? #Untitled #InMyShoes #WalkWithMe
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Fibromyalgia and Academic Identity retweeted
Very excited to have opened my parcel containing the @policypress book #LivedExperiencesOfAbleismInAcademia Thank you to all contributors!
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Fibromyalgia and Academic Identity retweeted
Question for #MECFS and #Fibromyalgia patients: How many of you experience crashes or a massive flare-up of symptoms after a blood draw? What do you experience?
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Fibromyalgia and Academic Identity retweeted
In a new BERA Blog, @ncjbrown & @DrSchniff explain why academia is frequently ableist, excluding those w/ invisible disabilities & chronic illnesses – and why the Covid-19 pandemic has opened new doors to them. bera.ac.uk/blog/invisible-di… @FibroIdentity @AbleismAcademia @suprachem.
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Fibromyalgia and Academic Identity retweeted
Research journal competition!! #WritingCommunity #AcademicTwitter #phdchat #phdlife Tag me as you share pictures of your research journal and you may become named feature & contributor in @policypress @BrisUniPress book “How to make most of your research journal”. Pls RT!!
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Fibromyalgia and Academic Identity retweeted
This poem resonates so strongly with how I feel on a daily basis. Thank you @DivyaSnape for sharing your words #Fibromyalgia #academiclife
"What hurts more is that people who don’t have a clue". In her poem Fibromyalgia and me @DivyaSnape highlights the experiences of an invisible condition. The @UCLpress book #AbleismInAcademia containing the full poem is free to download from here: uclpress.co.uk/products/1232…
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Fibromyalgia and Academic Identity retweeted
"Much of what people experience around disability in academia is hidden for fear of stigma and the perception of not being able to ‘keep up’." says @erg42 in her chapter of the @UCLpress book #AbleismInAcademia. Free to download from here: uclpress.co.uk/products/1232… #ChronAcCOVID19
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Fibromyalgia and Academic Identity retweeted
"Two key issues relating to having a chronic illness as an invisible disability within an abled-normative educational environment: invisibility and fluctuation" say @CarlaFinesilver @drschniff @ncjbrown in @UCLpress book #AbleismInAcademia uclpress.co.uk/products/1232… #ChronAcCOVID19
Fibromyalgia and Academic Identity retweeted
"The decision about whether to disclose or to hide a condition is an act of self-preservation, information control and impression management – thus it is identity work" says @ncjbrown in the #AbleismInAcademia book #ChronAcCOVID19. Download from here: uclpress.co.uk/products/1232…
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Fibromyalgia and Academic Identity retweeted
"What hurts more is that people who don’t have a clue". In her poem Fibromyalgia and me @DivyaSnape highlights the experiences of an invisible condition. The @UCLpress book #AbleismInAcademia containing the poem is free: uclpress.co.uk/products/1232… #ChronAcCOVID19
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Fibromyalgia and Academic Identity retweeted
"It’s what I need to cope in this place that wasn’t built for me." The poem "A little bit extra" by @ellenspaeth embodies the lived experience of disabled academics. The @UCLpress book #AbleismInAcademia containing El's poem to download: uclpress.co.uk/products/1232… #ChronAcCOVID19
Fibromyalgia and Academic Identity retweeted
Read of the Day: "Ableism in Academia: Theorising experiences of disabilities and chronic illnesses in higher education" by IOE's @ncjbrown aka @AbleismAcademia & @UniKent's @DrSchniff, freely available on @UCLpress uclpress.co.uk/products/1232… @FibroIdentity #ableism #openaccess
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“Disclosure in academia: a sensitive issue” is Chapter 3 in the @UCLpress book #AbleismInAcademia and is based on #Fibromyalgia research @ucl_discovery pls RT? jstor.org/stable/pdf/j.ctv13…
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3 conditions needed for disclosure: 1) personal acceptance of “otherness” 2) acceptance of differences at workplace 3) be sure there are no repercussions from “Disclosure in academia: a sensitive issue” jstor.org/stable/pdf/j.ctv13… Chapter 3 in Ableism in Academia
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