Heartline Families is a place for families of children with heart defects, whether congenital or acquired, to come to for support, information and understanding
UK
Joined November 2011
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Finding the right support makes all the difference. What resources have been most helpful for you and your family? Please share to help others find the support they need. #chdawareness
ALT Top view of faceless friends in different clothes stacking hands together while standing on wooden floor indoor on sunny day
Diagnosing #CHD is a critical step. How did you feel during your 20-week scan? Your experiences can provide comfort and understanding to others facing similar challenges. #chdawareness
ALT Person With White Powder on Her Body
❤️ Who is your heart hero? Tell us about them, post a photo, and help spread the word about CHD during this special week. #CHDawareness #chdawareness
Welcome to Congenital Heart Week! Around 1 in every 133 babies in the UK is born with a congenital heart defect. This week, let's learn and support the brave little hearts and their families. chfed.org.uk/ #chdawareness
CHD is a lifelong condition. Regular medical follow-ups and adapting to health needs are part of the journey. Read personal stories: chfed.org.uk
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It's CHD awareness Week!
Tip for awareness - Print out & display a poster in your community. The campaign provides parents with 5 easy to spot signs to help identify if their child may have a heart problem. Thanks to @CHFed for the poster.
buff.ly/3DvYL5p #chdawareness
If you could give just one piece of advice to a newly diagnosed mum or dad about their child.
What do you tell them?
What do you wish you had known at the beginning? #chdawarenessweek
Happy CHD awareness week (7th-14th February).
As always, we'll be sharing ideas, information and opportunities to tell your heart child's stories across the week.
Please get involved so we can help spread awareness through the incredible stories of our children. #chdawareness
Today marks the beginning of Heart Month 2024!
Let's make it special by sharing photos of our heart heroes.
Whether it's a loved one, a healthcare professional, or anyone who's been a guiding light in your child’s heart health journey. #heartmonth #CHD
ALT Red and White Tik-tak Toe Game Illustration
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One of our fantastic CRF Research Nurses, Jacqui Tahari, has had a short story, ‘The Missing Leech’ published in a new ‘Dear Nurse’ book 📖 The book aims to inspire children to take up a future in nursing and we are all incredibly proud of her work. Well done, Jacqui! 👏👏👏
♥️ Can you help with this important research?
Supporting Children with #CHD (Congenital Heart Defects) in Primary School: Parents’ Experiences of Primary School Support for Children with CHD Prior to and Post Starting Primary School. [email protected].
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Danny - 19 years old, VSD closure at 11 and mechanical aortic valve replacement at 12 currently studying Sports Science at Northumbria Uni.
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WOW! 😮What an amazing Heart Month that was! Thank you to everyone who helped CHF spread awareness and celebrate all our heart children and their families ❤️ @cha_nw @BritishCardioSo @maxappeal_uk
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Day 4: Healing Little Hearts❤️🩹Liv’sLegacy🐙camp 2, Hyderabad,India.2 open heart surgeries today. Newborn baby with complex problems and a long operation, was very sick and needed ECMO support. Finished at 4:30 AM but good to see the other case from today ready to leave the PICU. – at Hyderabad, India
It's #CHDawareness week (7th-14th) and this is the FINAL day! So we've saved the best for last -- please share a photo of your heart child below with as much or as little as you'd like to share about their condition. Below is our trustees' heart children.
It's #CHDawareness week (7th-14th). Who has been there for you during your heart child journey? Feel free to tag them in to let them know you appreciate them 🙂 ❤