Help4HD-International, is a non profit organization serving the #Huntingtonsdisease and #JuvenileHuntingtonsdisease community.

California
Joined June 2013
Our sincere gratitude to Acting FDA Director Kyle Diamantas & U.S. #FDA for convening the #HuntingtonsDisease roundtable. Collaboration like this ensures voices of #HDcommunity remain at the center of research, drug development, & regulatory decision-making.
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Join the HIPE online where Prilenia Executive Medical Director Dr. Nils Confer conveys PRECISE-HD trial details. Register to hear more at this #FREE #Help4HD event! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease help4hd.org/events
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#Virtual #Help4HDHIPE2026 is NEXT WEEKEND! Join Neurologist Dr. Fiona Gupta representing Neurocrine Biosciences as she presents the familiar adversity of #HD #Chorea. We can't wait to see you there! #FacingtheUnknownwithHope help4hd.org/events
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#Help4HD #LEEP volunteers are shining a light on the #HDCommunity at the IACP Conference 2026! Excited to discuss #symptoms, resources, & more to give first responders a better understanding of #HD patients & families that they may encounter. #LawEnforcement
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#HD delivers changes & challenges! Dr. Karen Anderson, Psychiatry & Neurology Professor at Georgetown University, is bringing her expertise to #Virtual #Help4HDHIPE2026 to answer your questions! #FacingtheUnknownwithHope Register: help4hd.org/events
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It's time for Monday Mixer! Reach out to [email protected] to join us this week on Zoom at 4pm PST for fellowship with #HD community members!
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See what's on the agenda for Virtual HIPE ~ Facing the Unknown with Hope 💙💜💙 Register for FREE! help4hd.org/events #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease
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"...skilled case managers assist with health insurance, #disability, & financial hardships associated to a #diagnosis of a chronic & life-threatening diagnosis..." ~Patient #Advocate Foundation (PAF) #Help4HD #HD #Resource Database: digitalgrowthfirm.adalo.com/…
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"#Caregivers need to take care themselves first, not because the Huntington's patient doesn't matter, it's because they matter..." Listen as Bill Butcher opens up about decisions made to care for his wife with #HD on #Help4HDTV. facebook.com/help4hd/reels/
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On this week's episode on #Help4HDTV Bill Butcher describes how his experiences working in hospice have translated to his important current mission as #HDcaregiver for his lovely wife. Listen TOMORROW at 9am PST! #huntingtonsdisease facebook.com/help4hd/reels/
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Headed to Orlando this weekend! #Help4HD's #LawEnforcement #Education Program (#LEEP) is coming to IACP 2026 to bring #HDAwareness to over 16,000 public safety professionals! #HD Resources for educating with your local department: digitalgrowthfirm.adalo.com/…
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Explore the promise, power, and perils of genetic information as Lauren shares part 1 of this interview with Susanna Smith on #Help4HDLive! #GeneticTesting #huntingtonsdisease Listen TOMORROW at 1pm PST: spreaker.com/podcast/help-4-…
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We are thankful for the generosity of our HIPE #Sponsors! Thank you for supporting these educational HD events! #Help4HDHIPE2026 #FacingtheUnknownwithHope #huntingtonsdisease
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Check out this interview on the Huntington's Post with thoughtful responses from individuals impacted by #HD in regards to #HDResearch: risk, tolerance, & meaningfulness. #Help4HD #HuntingtonsDisease #Blog Click here: help4hd.org/post/risk-tolera…
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When #HD is unexpectedly found in both sides of the family... Wes Solem from @HD_Genetics shares his reaction in this highlight from #Help4HDLive! #GeneticTesting #FamilyDisease Full episode here: spreaker.com/episode/testing…
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Proud to support the #FDA’s #RareDisease Framework Initiative. This game-changing approach recognizes unique challenges faced by rare disease patients & commits to integrating patient voices, supporting innovative science, & modernizing clinical trials. #HD
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This Men's Meet Up is a time for male #HD Caregivers to catch up with every other week on zoom & via messenger group! Contact [email protected] or [email protected] for details to join in Thursday at 5pm PST. #Help4HD #HDCaregivers
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Monday Mixer! Check your time zone & see if you can make this casual social with #HD community members on Zoom! Reach out to [email protected] for more details. #Help4HD #MondayMixer #HuntingtonsDisease
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Register to submit your questions! UAB #HD Clinic Director, Dr. Victor Sung will be connecting with us at Virtual #Help4HDHIPE2026 to bring knowledge of current #HDResearch, #symptoms, & more! #FacingtheUnknownwithHope #HD #Register: help4hd.org/events
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Excited to welcome Skyhawk Therapeutics' Vice President, Dr. Pannie Trifillis, to Virtual #Help4HDHIPE2026! Listen Nov 7~Research update on SKY-0515! #FacingtheUnknownwithHope #HD #Help4HDSwag with registration while supplies last: help4hd.org/events
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