Idiopathic Hypersomnia & Exercise Are you 18+, and live in Australia with a confirmed IH diagnosis? This national survey explores how people with IH experience physical activity and exercise, an area that has been largely understudied. Survey link: redcap.sydney.edu.au/surveys…

Researchers at the @Woolcockmedical are running 3 trials and they are looking for people with narcolepsy type 1 & 2. Travel cost reimbursement may be possible for those outside of Sydney. Pls reach out to researchers for more information. Email [email protected]

We really need to improve treatment options for people living with narcolepsy in Australia. Please share the links with anyone in your narcolepsy networks who may be eligible. Survey 1. survey.confirmit.com.au/wix/… and Survey 2. qualtricsxm6khr3khlf.qualtri…

This is an exciting news for our narcolepsy friends in the USA! FDA announcement: fda.gov/news-events/press-an… If you are an Aussie with NT1 pls consider doing these surveys. It will help support getting this medication in Aust. survey.confirmit.com.au/wix/… & qualtricsxm6khr3khlf.qualtri…

Narcolepsy type 1 - you are invited to complete a short anonymous online survey. The findings will help inform a report on the broader impact of NT1 and may contribute to future advocacy and treatment access initiatives. qualtricsxm6khr3khlf.qualtri…

Takeda has announced that China has become the first country in the world to approve ORZEYFUL® (oveporexton) for the treatment of narcolepsy type 1 (NT1) in adolescents aged 16 years and older and adults. Takeda’s announcement: takeda.com/newsroom/newsrele…

Sodium oxybate has now been approved by the TGA for the treatment of narcolepsy in Australia. If you have narcolepsy and would like to know whether sodium oxybate may be an appropriate treatment option for you, speak with your doctor. tga.gov.au/resources/artg/47…

Modafinil/Armodafinil, birth control and pregnancy. Our article explains what is currently known, why these warnings exist, and why awareness matters. Read more here: hypersomnolenceaustralia.org…

“Why is my Dex not working?” One day your medication seems to work — and the next it feels like it’s doing nothing at all. Our article explores some of the reasons this may be the case: hypersomnolenceaustralia.org… #IdiopathicHypersomnia #Narcolepsy #Dexamphetamine #Vyvanse

Idiopathic Hypersomnia Day – 13 June 2026. More information visit: hypersomnolenceaustralia.org…

Top Tips for Living with Hypersomnia #narcolepsy #IdiopathicHypersomnia hypersomnolenceaustralia.org…

Idiopathic Hypersomnia is more than just sleepiness. Many people living with IH experience significant cognitive dysfunction (“brain fog”), problems with memory/concentration, slowed thinking, confusion and much more > hypersomnolenceaustralia.org…

Diagnosis to Aftercare. A practical resource for treating doctors of individuals with #IdiopathicHypersomnia and #Narcolepsy, with a strong focus on patient support, communication, and medication management. hypersomnolenceaustralia.org…

The next Living with Idiopathic Hypersomnia Catch-Up 📅 Wednesday 20 May - TOMORROW! ⏰ 6:30pm AEST Our community groups offer a friendly, safe and supportive space to share your experiences and challenges with others who understand. More info: 🔗 hypersomnolenceaustralia.org…

Narcolepsy Type 1 - Treatment Update The TGA has now granted both Orphan Drug designation & Priority Review status for Takeda’s oveporexton for NT1 in Australia. It is exciting to see movement within the Aust regulatory system.

Idiopathic Hypersomnia Day (IH Day) – 13 June 2026 This year’s theme: Where in the World is Idiopathic Hypersomnia? Join the campaign: shorturl.at/MByHP For more information about IH Day, and graphics to share, visit: hypersomnolenceaustralia.org…

🔔 New research: Sleep regulation is disrupted in Idiopathic Hypersomnia A new study in SLEEP provides evidence to support bringing back the distinction between IH with and without long sleep rather than treating IH as one single condition. academic.oup.com/sleep/advan…

Researchers from The University of Queensland are currently recruiting people with narcolepsy and idiopathic hypersomnia to take part in co-design workshops. If you’re interested, you can read more and complete an expression of interest form here: uniofqueensland.syd1.qualtri…

Announcing the Illuminate Brain Fog initiative! Share your experiences with brain fog through a series of short, personalized surveys. Your input will help improve research & clinical care for those living with narcolepsy & idiopathic hypersomnia - sleepconsortium.org/illumina…