ISMRD is the leading advocate for families worldwide affected by a Glycoprotein & Related Storage Disease. #RareDisease https://teapaw.org/t.co/LceSHQvRoT
Joined October 2011
- Tweets18.4K
- Following1.3K
- Followers1.8K
- Likes2.8K
ISMRD-Join Our Fight retweeted
If you are struggling and having thoughts of suicide, remember that there is hope. There is help. Make it through the darkness. Call 988 or text TALK to 741741.
@afspnational #NeverGiveUp @988Lifeline
ISMRD-Join Our Fight retweeted
I just received word from my cardiologist that I did suffer a major heart attack with 90-95% blockage. I’ll receive an additional stent in 2 weeks called the “widow maker.” I’ll be honest I’m a little scared. Please keep me in your prayers. Thank you🙏🏼 – at North Little Rock, AR
ISMRD-Join Our Fight retweeted
We’re proud to be partnering with @ISMRD on our Alpha-mannosidosis program! We’re looking for patients and families impacted by AM to contribute their de-identified medical records to help drive forward research. allstripes.com/am #AlphaMannosidosis
ISMRD-Join Our Fight retweeted
For ICU nurse Patricia Galvin, the last 10 months have been challenging. But thanks to the COVID-19 vaccines, she feels we’re at the beginning of the end of the pandemic: fal.cn/3d3xk #COVIDVaccine #EndCancer
ISMRD-Join Our Fight retweeted
Osteosarcoma survivor Eva Suarez shares how her cancer experience inspired her to pursue a career in cancer research: bit.ly/2CCdUWq @DrValeraeLewis #osteosarcoma #EndCancer
ISMRD-Join Our Fight retweeted
This is AWESOME! 🙏@tdots25
(Via @NFL )
🎥 t.maxpreps.com/2Zw6SJy
ISMRD-Join Our Fight retweeted
We’re excited to watch as @tdots25 brings the #InclusionRevolution to the @NFL this season! #NFLDraft #UnifiedGeneration
Best friends since high school, #NFLDraft hopeful Tyrel Dodson (@tdots25) and William Gawlas will always have each other's backs. 💯💯
ISMRD-Join Our Fight retweeted
Tyrel and William became Best Buddies during their sophomore year at Centennial H.S. Proud to see their friendship featured by the @NFL! 🏈
Good luck to @tdots25 during the #NFLDraft 🙌 William and we have your back.
Best friends since high school, #NFLDraft hopeful Tyrel Dodson (@tdots25) and William Gawlas will always have each other's backs. 💯💯
ISMRD-Join Our Fight retweeted
Hi everyone! I’ve had some mighty upsetting diagnoses from some followers. Can we all say a prayer for those in sickness and in pain. May God grant them peace and health in the days to come. I believe in the power of prayer, especially when we care for one another. May God bless
ISMRD-Join Our Fight retweeted
Room 5 is proud to celebrate National Down Syndrome Awareness Day. Our differences make us unique, but we are more alike than we think! #rockyoursocks #WDSD2019 #SaboldStrong #lookatthoseavocados 😆😊 – at Pennsylvania, USA
ISMRD-Join Our Fight retweeted
Happy National Down Syndrome Awareness Day! I am so lucky to be working with some of the best kids on my current clinical placement! They are helping me become a better person just by knowing them💙
Just Like You-Down Syndrome youtu.be/5M--xOyGUX4 via @YouTube
ISMRD-Join Our Fight retweeted
How fitting that on National Down Syndrome Day we ask for prayers for our #1 Hog Fan @CanaanSandy as he undergoes heart surgery this morning! We’re with you Canaan!! 👊🏼🐗❤️ @DavidBazzel @RogerScottBUZZ @RJHawk @coachchadmorris
ISMRD-Join Our Fight retweeted
Happy First day of Spring! Thank you to my friend Toni who sent me this funny spring break throwback here. Exactly 16 years ago this is what I was doing with my pal!🤦🏻♀️ 😝Hey it was our… instagram.com/p/BvRW_n_lwzi/…
ISMRD-Join Our Fight retweeted
With your help, @archildrens was able to raise just over an estimated $382,000 in toys and donations for kids at the hospitals across the state!!!
WELL DONE!!!
ISMRD-Join Our Fight retweeted
Rest In Peace, sweet girl. I am so sorry that the demons were too much. – at Wormleysburg, PA
If you ever met Jessica in person, you probably saw what we saw every day - bright blue eyes and a sparkling smile. Jessica was genuinely one of the funniest, sweetest persons we ever knew. We miss you so much Jessica: fox2detroit.com/news/local-n… #JessicaStarr
ISMRD-Join Our Fight retweeted
Now, this is one of my favorite shirts... It stands for the children who are fighting for their lives every day at @StJude. Please join me in the movement and get your shirt here: thisshirtsaveslives.org
