Grumpy Old Man, twice a Bowel cancer patient , colostomate . ACPGBI PLG. East mid colorectal cancer ECAG.
Northampton
Joined May 2011
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Ian Jackson retweeted
Do you have Crohn’s? Have you had perianal fistula? Please take 5 mins to complete the survey below to help shape future research to improve treatment options
If you don’t have Crohn’s or are a HCP please repost far and wide. Thanks!
PPI opportunity, help shape our study! Inclusive research to optimise treatment options for Crohn's. Survey link:
forms.office.com/e/XNFJ3ajRz…
Ian Jackson retweeted
Can't contain our excitement for the first @ACPGBI Annual meeting in Wales! Prepare for a whirlwind of knowledge from global specialists and hands-on workshops.
Get ready for an unforgettable experience at #ACPGBI2024!
@Dukes_Club
@EDIforACPGBI
@EYCN_ACP
@ACPGBI_PLG
@TPFSuk
Ian Jackson retweeted
Q for #MedTwitter Friend was in A&E, details were mixed up with another patient and they almost received treatment for a ?pneumothorax when they'd gone in with ENT problem.
PALS have offered phonecall with sister in charge or formal complaint. What's best way to deal with it?
Ian Jackson retweeted
We're looking for someone dynamic, proactive and passionate to be our new Senior Service Officer in Scotland. Does this sound like you?
📍 Home-based in Scotland
⬜ 35 hours a week
⬜ £31,500 per annum
Applications close on Sunday evening, apply now👇
bit.ly/3IYj666
ALT Teal background. In navy writing it says 'we need you!' The word you is in white.
Ian Jackson retweeted
Calling all #Colorectal #Patients what do you think is important when it comes to equality and diversity?
Do you think that our clinicians should be safe from bullying and harassment at work?
Have you experienced any discrimination as a patient?
#patients I am YOUR voice next week for the #ACPGBI2023 EDI session. Please share your thoughts on what you think is important to make Health Care Professionals comfortable at work. Or have you come across obstacles as patients? Let me know. @ACPGBI_PLG @ACPGBI
Ian Jackson retweeted
#patients I am YOUR voice next week for the #ACPGBI2023 EDI session. Please share your thoughts on what you think is important to make Health Care Professionals comfortable at work. Or have you come across obstacles as patients? Let me know. @ACPGBI_PLG @ACPGBI
#ACPGBI2023
Join the Equality, Diversity & Inclusion session with an eclectic mix of stand-out speakers & input from a diverse expert panel
@EDIforACPGBI @shahabsiddiqi @ElBoghdadyMike @SarahSquire73 @karenkchui @bota_uk @PRiSM_Surgery @panchali_sarmah
👉bit.ly/ACPGBI2023_REG
Ian Jackson retweeted
Calling all #colorectal patients🚨WE need YOUR voice at #ACPGBI2023 Annual Meeting next week. We’d like to hear from those with #Cancer. Please feel free to add any comments on polls below. Your opinions matter. #Cancer
Ian Jackson retweeted
Have you ever been offered to complete pre-rehabilitation prior to surgery?#Cancer
0%Yes, it was fantastic
0%Yes, it didn’t help
17%No, never offered
83%No, wish I was offered.
6 votes • Final results Ian Jackson retweeted
Enhanced recovery after surgery (ERAS) programs are set up to help get the best outcomes for both clinician and patient. Have you ever been through one of these programs? #Cancer
33%Yes.
22%No.
44%Never heard of it.
0%I don’t know.
9 votes • Final results Ian Jackson retweeted
Following on from first 10 polls please see 7 more to complete our polls for those with #Cancer
“More people are surviving cancer, but what is it like having to live with the side effects”
What is the worst side of surgery to live with?
Ian Jackson retweeted
A scoring tool used to assess bowel dysfunction following rectal surgery is called LARS score. How often have your symptoms been measured? #Cancer
50%Never, I’ve no issues.
0%Never, but have issues.
50%Assessed regularly.
0%Other (please comment)
2 votes • Final results Ian Jackson retweeted
Do you experience LARS (lower anterior resection syndrome). This can be anything from anal seepage to soiling. Tell us what you are prepared to do to manage your symptoms. #Cancer
50%Altering diet/lifestyle
0%Medication
0%Wear pads
50%Trans anal irrigation.
2 votes • Final results Ian Jackson retweeted
“40% of people suggested in a recent survey, they had to change jobs following emergency bowel surgery” is this true for you? #Cancer
67%I had to change jobs
17%I couldn’t return to work
17%I’m hoping to return
0%I got a better job.
6 votes • Final results Ian Jackson retweeted
How would you feel about being discharged 24h following surgery on your bowel that may or may not involve the creation of a stoma? * you would be fully supported at home by 🏥
8%Sounds ideal.
67%Are you crazy, no way.
17%I like this option.
8%Other (please comment)
12 votes • Final results Ian Jackson retweeted
A scoring tool used to assess bowel dysfunction following rectal surgery is called LARS score. How often have your symptoms been measured? #IBD
44%Never, I’ve no issues
50%Never, but have issues
6%Assessed regularly
0%Other( please comment)
16 votes • Final results Ian Jackson retweeted
Are patient reported outcome measures a myth? When was the last time a health care professional asked you to complete a questionnaire about your outcomes after surgery? #IBD
6%Every time I had surgery
4%Only once.
86%Never been asked
4%Other(please comment)
50 votes • Final results Ian Jackson retweeted
Calling all #colorectal patients. 🚨 WE are YOUR voice at #ACPGBI2023 Annual Meeting next week. Tonight we’d like to hear from those with #IBD
Please feel free to add any comments on polls below. Your opinions matter. #IBD
Ian Jackson retweeted
Following bowel surgery for #IBD. What makes “a good stoma”?
51%One that doesn’t leak
18%One with a good spout
12%One that doesn’t prolapse
18%One that is reversed
49 votes • Final results Ian Jackson retweeted
If you chose “one that is reversible” what type of stoma did you have to begin with? #IBD
47%I had a Loop ileostomy
13%I had an End Ileostomy
20%I now have a stoma again
20%Other.
15 votes • Final results