JRec (@JRRECORD) header
JRec (@JRRECORD) profile picture

mother, wife, loves to run, bike, sail and a decent glass of wine. spreading awareness of Cystic Fibrosis | gone to blue skies

Joined May 2009
Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)Photo by JRec (@JRRECORD)
Having eaten everyone else’s eggs I now get to eat mine #HappyEaster
2
72
Add in social isolation, take away support. Need more awareness, more kindness and help to find another path. Perfectly put @naomicfisher
When I tell people that I work with children and families who have problems at school, they often nod and look sympathetic. 'Bullying is terrible', they say. Yes. It is, but it's not bullying I hear about most. Here's what families tell me. (with @_MissingTheMark) 1/
When I tell people that I work with children and families who have problems at school, they often nod and look sympathetic. 'Bullying is terrible', they say. Yes. It is, but it's not bullying I hear about most. Here's what families tell me. (with @_MissingTheMark) 1/
166
1,264
420
4,143
This is a week late. THIS IS 40. This is 2,288 extra days of #life. This is better than I ever imagined. This is thanks to my #donor. This is the power of #OrganDonation #Grateful ⁦ #doublelungtransplant #cysticfibrosis #40yearsyoung ⁦@NHSOrganDonor⁩ ⁦@sayidonate⁩
28
108
8
1,389
One of those silly 🍸 ideas I will probably regret #12KsOfXmas Day 3 - 3🇫🇷🐓
During #WAAW, find out why we won’t stop until we have better ways to prevent, diagnose and treat #CF #AMR lung infections from Angelo, who shared his experience of living with lung infections at this year’s #UKCFC Conference. ▶️ ow.ly/ongN50GS7Wl
1
3
4
Getting distracted again #sailaway #sailaway
1
Have you seen Richard OKOROGHEYE? Last seen on 23/03/21 in the LADBROKE GROVE area. Also known to frequent @MPSWestminster and @MPSHammFul. If you have any information or sighting's please contact 101 and quote 21MIS008134. in an EMERGENCY please call 999 p226649
20
4,066
130
1,425
Yoga-CF is yoga the perfect partner for #cysticfibrosis care? #breath #strength #mentalhealth
If you're a physio working in an UK adult CF centre and haven't heard about the YOGA-CF study, please get in touch for details!
And not just medicine. If you have the advantage help someone along. #education #roomforeveryone
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
Come on @NHSEngland @MattHancock we know it wouldn’t be your intention to exclude English Patients so please put it right swiftly. #EnglandNeedsKaftrio4All young people are fighting for their lives NOW.
8
9
#EnglandNeedsKaftrio4All @MattHancock @blakeydark We are distraught to campaign AGAIN to raise awareness of unfair situation. shouldn’t hv disparity of nations. Didn’t think we would be here so soon! Please allow clinicians to use the flexibility promised 🙏🏻#KaftrioEqualityUk
1
5
9