7+ yr complex care patient & now caregiving. Founder of @mystoriahealth - the healthcare record built by the patient for the patient
Canada
Joined March 2009
- Tweets2.7K
- Following2.2K
- Followers1.3K
- Likes470
Jessica Chalk retweeted
There is something profoundly fucked up about making pain patients afraid to admit their medication works.
Read that again.
We have created a culture where someone can say:
“This medication gave me part of my life back.”
and immediately feel obligated to add:
I take it exactly as prescribed.
I’ve tried everything else.
I’m not an addict.
I don’t get high.
I know the risks.
As if relief requires an apology.
As if getting out of bed needs a disclaimer.
As if being able to shower, cook, work, drive, laugh, sleep or simply exist with less suffering is somehow morally suspicious because of the medication that made it possible.
Nobody demands a character reference when insulin works.
Nobody asks a patient taking blood-pressure medication whether they’ve tried suffering harder first.
But say an opioid meaningfully reduces your pain and suddenly your treatment becomes testimony and your prescription becomes evidence.
I am tired of watching legitimate patients inherit shame for somebody else’s disorder, somebody else’s crime, somebody else’s overdose, somebody else’s statistics.
Pain relief is not a moral failure.
And a patient should never have to sound ashamed when they say:
“My medication works.”
Check out the latest article in my newsletter: Data Sovereignty Isn't Just a Tech Problem. It's a Health Problem. And It's Yours.
linkedin.com/pulse/data-sove… via @LinkedIn
Hiring one person to run social for us @myStoriahealth . Early-stage health app, posting daily, building in public through Oct 31.
Working directly with me. If you know someone who lives on TikTok and could run this, tag them.
You're on social all day and you post - yours, a brand's, doesn't matter. Trend hits at 9am, you've got us on it by noon. Your comments have personality. You get the whole team posting, including the people who go and get the records.
You make everything. Quick video, screen recording, meme, carousel. AI to make it fast, CapCut to make it good. You can tell me why a video worked.
Remote contract, [$X/month], straight with me. Send three things you made that beat their follower count.
Jessica Chalk retweeted
This is criminal. Use laws in your local state/province or country to get access to your complete medical history asap.
and when you do get it, don't just pass it to your family doctor. keep it, own it, and never leave a hospital or doctors office without demanding it.
Jessica Chalk retweeted
Yoooo check out my latest video about Canada’s health record situation! instagram.com/reel/DcQ0mXjk0…
YES!! Being a patient is a part time job. Trying to do the job while sick is so hard.
There is an entire category of labor that millions of sick people perform every day that healthy people almost never see.
Healthy people often think chronic illness is primarily a medical problem.
It isn’t.
It is a logistics problem.
A financial problem.
A time-management problem.
A credibility problem.
A transportation problem.
A relationship problem.
A paperwork problem.
A sleep problem.
A career problem.
A planning problem.
And only after all of that is it a medical problem.
What healthy people rarely see is the enormous amount of unpaid labor required simply to remain a functioning sick person.
You schedule appointments.
You chase referrals.
You argue with insurance companies.
You track symptoms, medications, side effects, test results, pharmacy shortages and specialist opinions that frequently contradict one another.
You learn which grocery store has a bathroom close enough to the entrance.
Which chair will hurt the least.
Which plans can be canceled without destroying a friendship.
How many hours of energy a shower costs.
How far from home you can safely go.
Whether tomorrow’s appointment is worth sacrificing everything you wanted to do today.
Eventually, your life begins to resemble the operations department of a small company whose only product is keeping you alive and reasonably functional.
And the person running that company is also the patient.
That is the part many healthy people misunderstand.
They see the appointment.
They do not see the 17 decisions required to get there.
They see the medication.
They do not see the months spent finding someone willing to prescribe it.
They see you cancel dinner.
They do not see the internal spreadsheet calculating pain, energy, distance, bathrooms, medications, sleep and the possibility that one ordinary evening could cost you the next three days.
Chronic illness does not merely occupy the body.
It colonizes administration.
It turns ordinary life into risk management.
And millions of sick people quietly perform this second full-time job every day without a salary, a staff, a vacation or the luxury of resigning.
That is what healthy people often do not understand.
We are not simply living with illness.
We are managing an entire infrastructure built around surviving it.
Jessica Chalk retweeted
Contest closes on June 14th @ 6PM EST.
Pre-Sale for "Closing Chapter" is SOLD OUT.
Public Sale starts on June 14th @ 3PM EST.
Check it out below ⬇️
opensea.io/assets/ethereum/0…
🤯 - unreal @MattScobel. LFG!!
Jessica Chalk retweeted
BEHOLD📢 a tactical manifesto on: How to Run a Remote Team
"The winning recipe for #remotework is:
a huge helping of #autonomy
a dash of #accountability
a generous helping of #structure
a pinch of #flexibility & a spoonful of #trust”
#workfromhome
bit.ly/3aPC8be
Jessica Chalk retweeted
“From a very early age all I ever wanted to do was policing,” says Deputy Chief Kevin Chalk, as he announces his retirement after 38 years of dedicated service.
“Serving the community and helping to make it safe was a privilege."
Read more here: bit.ly/31olOKU
Another big congratulations, Dad! Proud of you and your contribution to policing and this community.
BREAKING: @WRPSToday announces Deputy Chief Kevin Chalk to retire after 38 years of service. His last day will be February 29.
So proud of my dad.
He’s a pretty amazing Leader, Police Officer and Role Model. Policing has been his life’s passion. This is well deserved. #ProudDaughter
Congratulations to all recipients of the Order of Merit of the Police Forces #OrderofMerit #GovernorGeneralAwards
Jessica Chalk retweeted
Canada's 1st Women Entrepreneurship Strategy will advance more #WomeninBusiness.
@FoundingKW brought #female #entrepreneurs @caitlinmacgregor, @JessicaLChalk, @BridesMadeCA, & @think_oid together for a #FemaleFounders panel moderated by @Vidyard's @SandyCanvas.
Happy #SBW2019!
Jessica Chalk retweeted
Yesterday, TrafficSoda participated in the Golf Fore MS fundraising event at the Royal Ontario Golf Club. Proud to golf alongside title sponsor @AtlasCareGTA ! ⛳ #Sponsor #GolfForeMS
Congrats to @skritswap Founder and CEO Melissa Kargiannakis and her team on a $500k pre-seed financing partnership with @UnshackledUS. They're also a 2018 CIX Top 20 of Canada’s Most Innovative Technology Companies! goo.gl/VMBgtF
Our team has been working hard to supply this family with everything they'll need upon arrival in Canada, but we're still looking for a few donations!
