Dedicated to involving patients as partners in healthcare. Views are my own.
Australia
Joined March 2011
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Prof. Karen Woolley retweeted
Patient authors are increasingly becoming part of medical communication.
Medical writers help guide the process by supporting clarity, preserving voice, and aligning with publication standards.
👉 Read more here: hubs.ly/Q04hkHcQ0
#MedicalWriter
Weekend read? Patient authorship and the 4Gs: Guest, ghost, guise, guarantor? linkedin.com/pulse/patient-a… via @LinkedIn
Same, same, but (quite) different.
1st comparison of #PubMed vs #EuropePMC for #PatientAuthor pubs.
Same = can search both
Same = rapid increase clear
Different = 2x difference in output
We need research on research methods to advance patient authorship! @ISMPP
Practical and pioneering work. Well done researchers! #PatientAuthor
proof-of-concept study for patient use of open notes with large language models academic.oup.com/jamiaopen/a…
Prof. Karen Woolley retweeted
“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25
ALT “When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25
Prof. Karen Woolley retweeted
“We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25
ALT “We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25
#PxP25 Day 2 (or night 2?) starts with another diverse panel and audience - all here to listen and learn!
#PxP25 - a patient-led, interactive, respectful, and enticing start! #PatientPartner #PPI #PatientEngagement
Power in patient partnerships. Much to learn...hope this recent publication helps all members of research teams (patients and nonpatients). More here: linkedin.com/feed/update/urn…
Awareness of the importance of using #PatientAuthor as one affiliation is increasing. Best way to find patient-authored publications...with patient authors' permission. Transparency helps! linkedin.com/feed/update/urn…
One of the most important papers I have had the privilege (& burden) to HAVE to have published. Is this one of the most glaring and fixable gaps in #clinicaltrialregistries? See comment for link to further details. doi.org/10.2196/72015
Here is some more background behind the reason for this paper...linkedin.com/feed/update/urn…
You can access an AI-generated podcast of our paper here. As human authors, we think the bots nailed it. doi.org/10.6084/m9.figshare.…
Prof. Karen Woolley retweeted
So excited about this conference in a few months- here's hoping all of you out there who are interested in learning more about #PatientEngagement in #Research will join us. The program is entirely designed by #PatientPartners! #ConsumerInvolvement #PPI
📢 Save the date! PxP (For Patients, By Patients) is coming back September 9-12, 2025! 🎉
A free, virtual event focused on #PatientEngagement — created by patients, for patients.
💌Stay in the loop: sign up for the PxP newsletter (link in bio).
#PxP25 #ForPatientsByPatients
ALT PxP For Patients, By Patience. Virtual Conference. September 9-12 2025.
May the updates to reporting guidelines continue - is Patient and Public Involvement reported (if not, why not?) #PPI @EQUATORNetwork Well done to #CONSORT #SPIRIT #CHEERS
International #ClinicalTrialsDay 2025 - will 2026 see a better way for #patients to find trials they (& other patients) trust? Our 'call-to-action' publication identifies a gap in registries that should be fixed. #CTD2025 #PPI
What if the flip happens? A patriarchal dismissal of #Patient involvement in #publications might be dismissed sooner than (some) people think. Ready to adapt processes, practices & attitudes? #PatientAuthor #PlainLanguageSummary @ISMPP
