M.E (not cfs) for 27 years. Mainly here for M.E advocacy,disability rights & Scottish independence.
Scotland
Joined June 2009
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Kags ❇ 😷 #pwME 🏴 retweeted
Healey says, "We will bring down the welfare bill and do it in a labour way"
"The Labour way" seems to be demonising disabled people who can't work #Budget2026
Kags ❇ 😷 #pwME 🏴 retweeted
this is just unconscionable. the fact they hounded a man to his death is terrible enough, but to celebrate being rewarded for it without even the smallest sense of shame? racism runs so deeply through our institutions & there’s no excuse for it
.@timeshighered journalist @jgro_the, who investigated PhD thesis of late Cambridge professor Jason Arday, is in the running in the Specialist Journalism category in the British Journalism Awards 2026 #BJA2026 #PressGazette
timeshighereducation.com/new…
Kags ❇ 😷 #pwME 🏴 retweeted
When did Miranda ask the Government to fully fund SequenceME research?
- To commission NHS Consultant led service for Severe/Very Severe to prevent mistreatment and deaths
- Publicise Coroners' Prevention of Future Deaths Reports
- Select Committee Inquiry
But Miranda's heart
This is amazing,thank you all so much it's hugely appreciated
We're pleased to support Jean and Jim, @BethDobbin's mum and dad, in sharing this message:
Kags ❇ 😷 #pwME 🏴 retweeted
Maslow's hierarchy of need states that in order for a person to grow and move up to the next tier, all the requirements of the lower tier need to be met. Decades of successive governments, regardless of rosette colour, have ensured only the wealthy can move up tiers 🤬✊️
Kags ❇ 😷 #pwME 🏴 retweeted
It won’t even touch the sides. With energy prices rising it makes no difference
Kags ❇ 😷 #pwME 🏴 retweeted
Your energy bills are going to rise by 25% this winter.
If the government can force the energy suppliers to stop the standing charge, they can force them to stop profiteering off a energy crisis they helped to create.
Kags ❇ 😷 #pwME 🏴 retweeted
When I feel fatigued my heart goes out to ME sufferers. Unless they ask me not to spread harmful information about ME, then ME sufferers bedamned.
Kags ❇ 😷 #pwME 🏴 retweeted
I love when doctors say to "avoid stress" as if we can just unsubscribe from this shitty world
Kags ❇ 😷 #pwME 🏴 retweeted
Kags ❇ 😷 #pwME 🏴 retweeted
Can we move on from LDN now and stop wasting money on these studies?
Kags ❇ 😷 #pwME 🏴 retweeted
Healey should put a cap on MPs expense claims. No more £45k water bills. Let’s see a bit of housekeeping done in parliament. Allow claims but ensure they fit with the public expenditure. Anything above they pay out of their own pocket. Bring some trust back into Parliament.
Kags ❇ 😷 #pwME 🏴 retweeted
If you're a chief executive on a telephone number salary, at least have the grace not to complain about the taxes that fund the benefits your workers have to claim because you refuse to pay them enough to live on
Kags ❇ 😷 #pwME 🏴 retweeted
#DearAndy
We've written to @andyburnham
about Olympic sprinter @BethDobbin recent outreach to him.
Features: Dickens, Monbiot, disease prestige & twiglets!
🖇️ 👇 Link below
ALT Graphic with the headline “Dobbin & Goodburn: A Tale of Two Cities” and subtitle “A letter to Andy Burnham” in bright pink on a navy background, featuring a photograph of Andy Burnham in a circular gradient frame.
Kags ❇ 😷 #pwME 🏴 retweeted
Brazil, Serbia, 🌈 Now Israel and the mid-terms in the U.S. dare we hope it’s a wave that becomes a tsunami against autocracy?
Kags ❇ 😷 #pwME 🏴 retweeted
We’re really pleased that our MP email template has been supported by wider ME organisations via Forward ME 🫶
If you have the energy, you can help support @BethDobbin’s call for ME research funding by writing to your MP. More here 👇
Olympian @BethDobbin has written to Andy Burnham to ask for increased funding for ME research.
We are working with her to amplify her message, and you can help (if capacity allows).
Write to your MP to back her call - and to make things easier, we have a template for you.👇
ALT Images of Beth Dobbin and Andy Burnham with a graphic of an email going from Beth to Andy. Under Beth is her quote "I believe you need to fund research into this spiralling illness and help us all get our lives back." and also there is a small chart showing UK Govt Reearch funding 2019-2024. ME - £6.6m, Parkinsons, £79.1m and Dementia £496.4m. The text says "Beth Dobbin has written to Andy Burnham asking for increasing funding for ME research. You can help! Support Beth's call for ME funding by writing to your MP. Template letter available!"
Kags ❇ 😷 #pwME 🏴 retweeted
Nobody who claims the illness is a mental issue has ever had a good argument for why someone would choose to suffer & be bedbound for decades, then choose euthanasia. If it can be cured with a few sessions of CBT.
Why Beth Dobbin would go from Olympic athlete to bedbound.
TW: Assisted suicide
“She did not want to die. She wanted to live. Just not like this.”
Report on the devastating impact of severe #MECFS and how more and more people with severe ME are choosing assisted suicide in Germany.