Anxious epileptic (@KoriRuff) header
Anxious epileptic (@KoriRuff) profile picture

I’m a statistician, epileptic, and former teacher. Realizing that my disabilities are increasingly interfering with my ability to be fully independent.

Ottawa
Joined September 2018
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Has anyone else had a doctor get excited about the opportunity to observe your [seizure, symptom or drug response]?
0%Yes. I hated it.
0%Yes. I didn’t mind.
0%No.
0%No, but I wouldn’t mind.
0 votes • Final results
548
In Canada, a career in public service. Very accommodating on leaves to care for someone, special leave for appointments and adjustable work hours (eg. working 30 hrs/week instead of 40).
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I’m back home from my diagnostic brain surgery. Now waiting for the official summary and diagnosis of how & what treatment brain surgery they will do. 😊 Pretty excited since they have affirmed that they will be doing some type of surgery.
367
How do I help a friend who is becoming more and more paranoid? I tried getting them to go to the hospital, managed to get them to talk to police, but they won’t consider it could be a mental health. #MentalBreakdown #mentalhealthsupport
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My best friend has become more and more paranoid over the last few months. sure that people are following her everywhere, breaking into her car, about to shoot her if she sets foot near a police station. She’s changed phones 3 times in 3 weeks… #paranoidfriend #mentalhealth
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Does anyone else find it really annoying that TV/movies seem to not grasp what a defibrillator does? No, it really cannot bring someone back from the dead. It can stabilize an erratic heartbeat, not restart a heart. Used as a main plot line waayyy too often.
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Brain surgery is a go! Well, getting holes drilled in my skull and little electrodes stuck in there to find my seizure focal point(s). Treatment surgery will come later. I’m excited, happy and absolutely terrified. #EpilepsyAwareness
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I’ll be in hospital for weeks after this one, while they try to find focal point(s). Anyone know how long afterwards till I can go back to work? So glad I’m in 🇨🇦 where the costs of all this are covered, but I’m still not gonna be earning anything. #Epilepsy #brainsurgery
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Drug resistant epileptic nearly 25 years. Multiple meds, still seizures. 3 neurologists before my current one, epileptologist, asked real questions, changed my meds (address anxiety and depression) & recommended surgery. Soon: test to determine resection or VNS. 😳🤞🥹 #Epilepsy
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And I am scared. This test is scary, inserting electrodes into my brain, with a (slight) chance of stroke. Plus, this is the last test. It’s pretty much a promise that I’ll get surgery if they think they can do it. What kind? Resection, ablation, VNS? Who will I be afterwards?
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Anxious epileptic retweeted
À l'occasion de l'anniversaire des meurtres des femmes à l'École polytechnique, nous nous souvenons de la nécessité de politiques qui assurent la sécurité des femmes. Montreal taught us why it is necessary to have strong gun safety laws that actually work to keep people safe.
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Love this song! We need more like this. MIKA - Big Girl (You Are Beautiful) youtu.be/yDSK91mUNLU via @YouTube
Anxious epileptic retweeted
Most people think all people with #Epilepsy have #seizures that include falling and convulsions. There are multiple types of seizures. This checklist does a great job describing some of the things our bodies may do during a seizure. #EpilepsyAwareness theneurologylounge.com/2021/…
Been off Twitter for several weeks now. Getting a bit more organized lately. Sleeping better and been about 2 weeks since my last seizure.
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Well, I’m having a frustrating morning. I ordered food with @SkipTheDishes at 5:10 this morning. At 7:30 it hasn’t arrived yet. Once it hit 6:30 I really did try to cancel the order (I want to go to bed now) but I cannot cancel it. And get no response from the support chat.
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Still waiting on @skipthedishes. Never imagined being stuck with a food delivery order that’s so late but I’m trapped and can’t cancel it.
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So, if it ever arrives will it be cold and gross after being ready for over 2 hours? I’m so disappointed.
I am spending my time today cooking and watching/listening to reruns of “Castle” on Prime. 🙂 Trying to drown out and distract myself from the honking.
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So happy to report that I got my booster shot yesterday! Had to go pretty far outside my neighborhood, Lyft cost a bit, but all the downtown locations are shut temporarily. Still, it’s done! 😁