CEO of @raremindscic. Psychotherapist working with rare disease communities, including those impacted by NET cancers and genetic endocrine disorders
London UK
Joined July 2020
- Tweets70
- Following96
- Followers79
- Likes111
Kym Winter retweeted
The wonderfully talented writer and artist @curtiswords created an infographic summary of my book, "Reclaiming Conversation: The Power of Talk in a Digital Age.” I have already framed it, sent it to my daughter and my editor!
Kym Winter retweeted
Have your say!
#30millionreasons
Today we are launching the campaign #30millionreasons for European action on rare diseases!
Share your reasons for renewed European action on rare diseases to truly improve the lives of the 30 million people living with a rare disease across Europe!
👉 action.eurordis.org/
Kym Winter retweeted
📢 Please click to help @GeneticAll_UK, the charity that runs @rarediseaseuk win £1,000 from @Ecclesiastical
movementforgood.com/index.ph…
🤞It only takes one click to help us win £1,000! ow.ly/VGNg50F1PNh Please click to help us support people affected by genetic, rare and undiagnosed conditions. This is an amazing opportunity for us from @Ecclesiastical as part of their #MovementForGood.
Kym Winter retweeted
'Coordinated rare disease services should include assessment of mental health needs and access to mental health services. This should be extended to carers.' Read more in our report here 👉 ow.ly/BR5o50EJH6n
#MHAW #MentalHealthAwarenessWeek
Kym Winter retweeted
Evidence has continued to confirm the widespread impact COVID-19 is having on mental health.
Increasing access to psychotherapy through a choice of talking therapies in the NHS is vital to addressing this increasing need: ow.ly/CKaW50EKJsS #Covid19 #Psychotherapy
Kym Winter retweeted
'Healthcare professionals should be provided with the skills, knowledge and capacity to demonstrate awareness of the emotional challenges of living with a rare disease.' Read our other recommendations 👇
ow.ly/TNFE50EJFR3
#MHAW #MentalHealthAwarenessWeek
Kym Winter retweeted
To start #MentalHealthAwarenessWeek, spend 20 minutes having a conversation about mental health with your child. Here are some conversation starters you can use.
Kym Winter retweeted
Excellent clinical trials design discussion: we must address impact on QofL (Quality of Life) alongside survival - including design to avoid financial, not just physical, toxicity - what matters to patients Simron Singh / John Ramage #ENETs2021 @NeuroEndoTalk
Kym Winter retweeted
On this @WorldCancerDay we'd like to celebrate all the small (yet mighty!) organisations who work tirelessly to support those with rare and uncommon cancers. We are honoured to work with you!
@ncukcharity
@AmendInfo
@Cancer52org
#WorldCancerDay
Kym Winter retweeted
There’s a superstition in oncology that the worst things happen to the nicest patients
In truth I think it reflects even our misplaced sensibility that virtue should confer good health
But it doesn’t, and in fact our fleeting lives are all the more reason to be considerate
Kym Winter retweeted
Today we are attending the 'Westminster Health Forum policy conference:
Next steps for rare diseases and specialised commissioning'.
Looking forward to flying the flag for mental health! @WHFEvents #raredisease #mentalhealth #rareminds
Kym Winter retweeted
We've been featured in @RareRevolutionM
Thank you so much for interviewing our CEO in your fantastic magazine. Have a read and let us know what you think.
Link in our bio!
Kym Winter retweeted
We're off! We had our first Building Rare Resilience Group yesterday, and it was great meeting patient leaders from across the #RareDisease community. Here's to 12 more weeks 🥳
Kym Winter retweeted
❓Why is it hard for men to ask for the things they want and need?
“The way that men are often socialised to deal with their problems or deal with their emotional life is to not deal with it or avoid it… Ntale #MensMentalHealth
Reflections from the BAM Programme counsellors
Kym Winter retweeted
Nothing on how parents getting on...or not, might impact on children’s well-being. Are we turning a blind eye...again? Children’s well-being indicator review, UK: 2020 - Office for National Statistics @TaviRelations @TheEIFoundation ons.gov.uk/peoplepopulationa…
Kym Winter retweeted
If you’re finding things tough, our helpline and webchat are open from 5pm until midnight. Call us on 0800 58 58 58, or chat to our trained helpline staff online.
No matter who you are or what you're going through, it's free, anonymous & confidential.
thecalmzone.net/help/get-hel…
Kym Winter retweeted
It’s really important to take care of your mind as well as your body — #EveryMindMatters can help you keep on top of your mental wellbeing and cope with how you may feel whilst staying at home because of #coronavirus. 🧠 🏋️ nhs.uk/oneyou/every-mind-mat…