Raising awareness for #LichenSclerosus #vulvalcancer with @Vulvalcanceruk so more people can get the diagnosis they need sooner
Northampton, England
Joined April 2018
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Fantastic work from Sophie and everyone involved, please watch and share to help raise awareness
The full film is here! tinyurl.com/LS-film
This short film was created based on the real words of people with vulval lichen sclerosus (LS), interviewed as part of the 'Living with vulval LS' study at the Universities of Bristol and Warwick
Diane has always been a great supporter of ours through the years and has given both of us amazing support going through perimenopause/menopause. We were proud to be asked to contribute and review Diane’s book recently.
Well done Diane ❤️❤️❤️
Clare & Emma
NICE Guidelines...Shared decision making. Please read and print off if you are one of the many struggling to be heard by a medical professional.
nice.org.uk/about/what-we-do…
lsvcukawareness.co.uk/guest-…
Men are often forgotten about when it comes to LS, but they suffer too! Read one man's story of living with Penile Lichen Sclerosus
Great article, well done @caitsith675 and @positivepauseuk for helping to raise awareness of this condition. The petition link is in the article. Please sign and share as we only have until August to gain the 10k signatures needed ♥️
Most common in peri/menopause, painful lichen sclerosus estimated to impact 1/70 women. Lack of awareness means under-reported/untreated. One woman’s calling for more research - sign her petition click below for 🔗
@LSclerosus @eveappeal positivepause.co.uk/menopaus…
Just a reminder we are still selling Lichen Sclerosus and Vulval cancer wristbands if anyone would like to purchase any.
A short video about #LichenSclerosus #Vulva #vagina #treatments #Causes #Symptoms #steroids #moisturizer our #website and how to #contact us. I know it's a bit fast in places with the images but slowing it down didn't quite come out as hoped 🤦🏻♀️ You should be able to pause it ♥️
Lichen Sclerosus UK Awareness retweeted
We need the answers
We need research
We need awareness
petition.parliament.uk/petit…
Lichen Sclerosus UK Awareness retweeted
From Diane Danzebrink from Menopause Support
Booklet
menopausesupport.co.uk/wp-co…
Petition
change.org/p/make-menopause-…
Great work Sophie, can't wait to see the finished video
I'm so delighted to share this teaser clip of a short film based on my research findings.
Full film coming next week - watch this space!
@sarahhillman26 @FinneganSusanne @warwickmed @BrsTrialsCentre @ESRC @bssvd_org @LSclerosus @VulvalCancerUK
Lichen Sclerosus UK Awareness retweeted
May 2023 the #lichensclerosus community lost a beautiful soul and fierce LS advocate. Ellen Swanborn-De Lange was the head of the LS Association in the Netherlands. Honor Ellen's memory by sharing this and reading my post on her life at lostlabia.com/ellen
Please sign and share this petition to help us reach 10,000 signatures. Thank you ♥️♥️
petition.parliament.uk/petit…
Excited 😁 the wristbands arrived today and the first lot of orders has been sent.
Ordering is via paypal.me/EmmaNorman8254 £3 each or 5 for £12
We can only ship to the UK at this time but are looking into pricing for sending to other countries.
Lichen Sclerosus UK Awareness retweeted
So important for #nurses to get a great understanding of genital health for all of their clients, and sometimes even advocate for them. Being able to talk - proactively - about #SexualHealth & #Wellbeing matters can be life enhancing & life-saving!
