Alice in LymeLand retweeted
Judge in lawsuit of 17yo who died from Lyme carditis has upheld case vs pediatrician, med grp and hospital. Trial set for 5/4. At issue: failure to treat. A falsely negative Lyme test cost Joseph Elone his life. See my @Lymenews story: lymedisease.org/elone-wrongf…
Alice in LymeLand retweeted
Every day you wake up and continue on, despite being in pain. You're killing it. You're doing great 💚 #LymeNow #Motivation
Alice in LymeLand retweeted
We're excited to be able to offer some of our most read blogs in an 🎧 audio format, for those who have trouble reading. Listen to or read, "Living with Lyme Brain," here: globallymealliance.org/livin… #LymeDisease #LymeBrain #AudioBlog
Alice in LymeLand retweeted
RT @Make_Well_Lyme:
Because sleep is essential to the overall function of the body and immune system, insomnia in patients with Lyme disease can disrupt the recovery process. Want to know which herbs promote sleep? Read on to find out!
#LymeDisease
makewell.de/5121-5-herbs-ind…
Alice in LymeLand retweeted
Testing conducted by the #Lymedisease biobank reinforces that early serology tests have a high false-negative rate, in this review 71% for patients with an EM smaller than 5 cm. NEW: ncbi.nlm.nih.gov/pubmed/3210…
Alice in LymeLand retweeted
"The title of Beiber’s song "What Do You Mean," can be very applicable. The disease remains very misunderstood, and people can be very mean when you are going through something that they don’t understand." @Forbes forbes.com/sites/brucelee/20…
Alice in LymeLand retweeted
I should clarify, I believe Lyme Carditis is much more common among those that contract #LymeDisease - I truly wonder how many have died due to the ignorance of the medical establishment.
Alice in LymeLand retweeted
Great night catching up with @danaparish & her husband Andy. Look for @LymeBook new book coming out in May. 💚
Alice in LymeLand retweeted
One fateful day in 2010, I went to the gym as I always did. But something was wrong. I was sick. Soon I couldn’t walk, talk, or eat.
I lost many parts of myself to illness. But there’s one thing I never lost: my story.
Now I offer that story in a BOOK:
inkshares.com/books/when-for…
Alice in LymeLand retweeted
I love having visitors but I can't help thinking that when they leave they'll go back to their busy lives and I'll be here alone. Not helpful to think this way, I know. But I'll never get used to being this ill. It's unbearably hard. #severeME
Alice in LymeLand retweeted
Lack of vitamin B-12 can lead to nerve damage, irreversible numbness, and degeneration of spinal cord.
(This happened to me. It's serious and real!) #vegan #malnutrition #b12 #plantbased #spinalcord #neuropathy #paralysis
independent.co.uk/news/healt…
Alice in LymeLand retweeted
Inter-religious harmony is essential, because each of our religious traditions gives its followers a sense of how to lead a meaningful life. The important thing is to make religion relevant to our daily life rather than simply maintaining old traditions.
Alice in LymeLand retweeted
Our founder busy this afternoon calling the families of the 2020 @livlyme grants. 💚 @khoney @MLDSEmaine @cohengive @lyme_action @ProjectLyme @danaparish @LewsView @BayAreaLyme @LymeAlliance @ResearchForAlex @SamsSpoons @Lymenews @DrOz @dinerdialogues @FocusOnLyme @TBCU2018
Alice in LymeLand retweeted
Was at Lymemind today and heartened to hear CDC itself say that Lyme disease persists after treatment. This is not a controversy.
“It is very well held in our division that Lyme disease persists,” said Sue Visser of @CDC_NCEZID. Says PTLDS page changed to acknowledge that. This is in response to Holly Ahern on need for @CDCgov to change language, advice. Go, Holly!
Alice in LymeLand retweeted
"You're not #disabled, you're differently abled!"
Let's try this formula elsewhere:
You're not gay, you're differently straight!
You're not poor, you're differently rich!
You're not paid less as a woman, you're differently paid!
Just illustrating a bit how privilege thinks.
Alice in LymeLand retweeted
Many patients with late-stage #Lyme disease also have an auto-inflammatory condition called Mast Cell Activation Syndrome (MCAS). #MCAS can present as depression, anxiety, or brain fog. psychologytoday.com/us/blog/…
Alice in LymeLand retweeted
A Lone Star tick tests positive for Lyme yet @CDCgov claims they can’t transmit Lyme.
There is no safe tick, safe tick bite, or safe attachment time. #TreatTheBite
Alice in LymeLand retweeted
WORSENING SYMPTOMS NEAR A FULL MOON? THINK PARASITES! We're just two days away from a full moon and some Lyme patients are beginning to feel an increase in symptoms. People without Lyme disease are beginning to… instagram.com/p/By1MdA_gyQl/…
Alice in LymeLand retweeted
When you are always sick, you get used to people giving up on you, losing patience with you, losing friends. It's heartbreaking.#ChronicLife