UK charity for blood cancer Myelodysplastic Syndromes & CMML Support, advocacy, info for patients/carers/staff. #MDS_UK
London, UK
Joined November 2013
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Our staff and supporters sharing their photos today for World MDS Day 2024 #MDSWAD2024 #united4mds #thinkmds MDS UK Patient Support Group The MDS Alliance
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Every year on October 25, we come together with the MDS Alliance and others, to raise awareness of Myelodysplastic Syndromes (MDS).
Join us and support the campaign on behalf of MDS patients globally!
mdspatientsupport.org.uk/mds…
MDSUK Patient Support 🩸 retweeted
Where angels fear to tread: Blood Cancer Awareness Month 2024 (3): revrebel.blogspot.com/2024/0… #thisisbloodcancer @TrinaCNS @VincentRK @RevRichardColes @shiv_smith @smileandwav_vo @bloodcancer_uk @BloodCancer_Res @VidhyaMurthy1 @WillMcgookin @adrianwarnock @Dr_AmerZeidan @RABCnow
MDSUK Patient Support 🩸 retweeted
💬Discussing your #MDS with your healthcare team is vital. Ask: Your MDS type, risk group, treatments, changes to daily life, patient organisations in your area that can help. No question is too small. Understanding your condition & available resources help! #United4MDS #ThinkMDS
Artificial intelligence in drug discovery and development ncbi.nlm.nih.gov/pmc/article…
Calling all MDS UK Patient members, still time to participate in our 2024 Members Survey. Your feedback is crucial. By sharing your thoughts, you help us understand what we're doing right and where we can serve you better. See link for more information. mdspatientsupport.org.uk/con…
The key to achieving the best possible support & information for all those impacted by MDS & CMML is through close collaboration with specialists and researchers. Please consider joining our newly-created professional network. See link for more details. (mdspatientsupport.org.uk/con…)
It's National Blood Week 🩸
The NHS has launched an urgent appeal for O type donors. Your contribution could be lifesaving for MDS patients and others battling blood disorders.
There are 13,000 appointments available at Donor Centres across the country, this week. 🩸
We urgently need O type donors to book a slot at one of these to help support the NHS this National Blood Week. 💪
Book online now ➡️ orlo.uk/6PjCI
ALT Image shows blood donor sitting giving blood whilst chatting to a donor carer. Text reads We Need Donors
MDSUK Patient Support 🩸 retweeted
The NHS has launched an urgent appeal for O blood-type donors following a cyber attack that has affected some of the largest hospitals in London.
Sky's Science Editor @t0mclark3 has the full story ⬇️
trib.al/unjm70D
📺 Sky 501, Virgin 602, Freeview 233 and YouTube
‘Don’t wait for your final 40 minutes’: Watch the inspiring TEDx talk by our patron Caitlin Limmer. Caitlin's story is not just one of triumph over adversity; it's a beacon of inspiration, urging us all to live life to the fullest, cherishing every moment. mdspatientsupport.org.uk/ted…
MDS UK Member? Join our online AGM this Friday, 3.30 - 4.30pm. Includes a talk by leading haematology consultant Dr Dominic Culligan. Register here mdspatientsupport.org.uk/eve…
MDSUK Patient Support 🩸 retweeted
In this issue, we look back on the MDS World Awareness Day and thank all contributors. You will also read about the changes in the MDSA steering committee, training on the new HTA regulations and information about a newly approved MDS treatment. @MDS_UK @Hull_Zagreb
MDSUK Patient Support 🩸 retweeted
Doing a bit of analysis & I really need more participants! @bloodcancer_uk @BloodCancer_Res @LeukUK @LeukaemiaCareUK @MPNVoice @MDS_UK @MyelomaUK @acltcharity @CLLAdvocates @CLLAdvocates @LymphomaAction please share the link below! Thank you very much!
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MDSUK Patient Support 🩸 retweeted
The 2022 Global Patient Survey report is now available, highlighting aspects such as #qol, #mentalhealth & access to care for #MDS patients. With insights from nearly 700 participants, it aims to inform evidence-based decisions and improve healthcare: tinyurl.com/2022MDSA
MDSUK Patient Support 🩸 retweeted
Are you a nurse in need of the latest, up-to-date info on blood-related topics? Look no further than the Blood Matters podcast! 8️⃣ awesome episodes are out — perfect for learning about important #HSCT nursing-related content! 🩺 💉
🎧 Listen here ⬇️
youtube.com/playlist?list=PL…
MDSUK Patient Support 🩸 retweeted
🙏 Thank you to all the amazing individuals who participated in interviews & supported #MDSWAD2023! Your dedication to spreading awareness about #MDS is truly inspiring. Together, we can make a difference in the lives of those affected. #thinkMDS #BloodCount @MDS_UK @Hull_Zagreb
MDSUK Patient Support 🩸 retweeted
🩸 Although #MDS is very rare in younger people, their specific conditions and needs should not be neglected, explains Emma Paine(@MDS_UK), herself very young at the time of her diagnosis: vimeo.com/874009168#MDSWAD #Bloodcount #ThinkMDS
Today is MDS World Awareness Day. Please help to raise awareness of this rare condition and the effect it has on patients and their loved ones - thank you! vimeo.com/874010780
MDSUK Patient Support 🩸 retweeted
📢 TODAY is MDS World Awareness Day! 🩸 On #MDSWAD2023 we are spreading awareness about #MDS signs & symptoms. Remember, a #BloodCount test can confirm diagnosis & early detection is key for all cancers! Get involved: mds-alliance.org/mds-world-a… #thinkMDS
MDSUK Patient Support 🩸 retweeted
Please help support MDS World Awareness Day 2023, add a #Twibbon now! twibbon.com/support/mds-worl… Get a #BloodCount #MDSWAD2023 #thinkMDS