MS'ed With The Wrong Girl

10 years in the blink of an eye. This will be my first year since being diagnosed not riding in #MSBike “Someone willing to modify is someone willing to proclaim their own agency. That’s strong as hell.” @RobinNYC

In 2 weeks we are finding out if Baby Shoofaloofka is a boy or girl, but first we want to have some fun! As you can imagine the past few months have been pretty difficult at our house and we haven’t had a chance to do much fundraising.

This was our first year back to in person #MSWalk since 2019 & while it was amazing it was also tough. You might think the stroke was the hardest part, but compared to the empty feeling I have missing Chris & Doug after losing them both this year, the stroke recovery feels easy.

Yesterday marked 3 weeks since my stroke. Currently I am walking, talking (both languages no problem), reading, doing word puzzles, doing laundry, showering, doing dishes, haven’t had any balance issues and no issues with stairs.

May is #MSAwarenessMonth and today I am very excited to share this news! I’m so honoured to have been selected as part of the Accessibility Advisory Committee for the @CityofEdmonton!

Doug, I am all that I am because you took a terrified 24 year old trying to act tough in the face of an incurable chronic illness under your wing & showed her what she could do with the right support & the right attitude. You made me brave enough to inspire others to do the same.

10 years. It’s been 10 years since I looked at that very first MRI of my brain and saw all those white spots. January 19 has always been a day that my life changed, because 31 years ago my amazing brother was born and I am beyond grateful for that every single day.

Today is International Day of Persons with Disabilities and this day often gets me thinking…. How do I measure up? How disabled is disabled enough to be considered disabled? Huh? Exactly.

Lhermitte's sign is a sudden, brief, sensation like an electric shock that moves down your neck into your spine. The perfect storm. The neck pain may move into your arms and legs and sometimes to your fingers and toes.

No one could see from looking at me that there was anything wrong with me, but I knew, my eye hurt, a lot and I was so afraid. I showed up to an emergency room, dressed up all pretty for what was supposed to be a night out and told the nurses and doctors I am blind in one eye.

Indestructible. I have my annual MRI in a week. I choose to live my life like Mr. Burns. When in reality there are so many things wrong with me the slightest breeze might kill me... I have MS, Hashimoto Thyroid, PCOS and everything that comes with those, like anxiety.

Today is International Day of Persons With Disabilities. I told @chefpaulshufelt that this morning and his response was “in my mind that is not you.” But in reality it is me. I focus so much on my abilities that even I sometimes forget that I have struggles that people don’t see.

Burgers with the adopted family 🧡🍔 I knew I’d be away this year for #BurgerstoBeatMS so we planned accordingly. Thank you @ChefPaulShufelt for your awesome donation and @JuicyJLaw and @lawdawg81 for your unwavering support 😍 #sicamous #ThisIsMS #LifeWithMS

You can order online, pickup or get delivery. You can also round up your orders or add a little extra something! Whatever you do, it’s helping to #MakeMSMatter #ThisIsMS #LifeWithMS #burgers #teenbugers

I can’t believe it’s been a whole year since the official release of @MSedWith I am absolutely blown away by how far this documentary has been able to reach and the connections it continues to create. One year later, it’s a different world yet not a lot has changed.

I can’t believe it’s been a year since @MSedWith came out! The awareness it has helped me raise and amount of people effected by MS I’ve been able to connect with is incredible! @MSSocietyCanada @mssocietyABNWT @MSBikeLedCam #ThisIsMS #LifeWithMS #MakeMSMatter

A couple weeks ago my friends surprised me with this! When @ChefPaulShufelt and I left for a ride early yesterday morning I didn’t realize we were going to go 100km. Every time I looked down at this custom stem cap & up at Paul it kept me going even when I was losing feeling.

I’ve created a monster. Not only does he love riding but he will also willingly match with me 😍 love these awesome @MSBikeLedCam jerseys! We’re training hard to be ready to ride to Camrose & back on July 25! Please support if you can ❤️ #cantstopwontstop tiny.cc/PatryciaandPaulMSBik…

After feeling sick all last week & barely being able to eat, I finally got my hands on one of these Sassy Sriracha Salmon burgers 😍 $1 from this delicious burger is going to the @MSSocietyCanada until July 1 with a surprise coming this weekend! #WSforMS #MakeMSMatter #ThisIsMS