New England Hemophilia Association (@NewEnglandHemo) header
New England Hemophilia Association (@NewEnglandHemo) profile picture

Serving the New England bleeding disorders community since 1957.

Dedham, MA
Joined July 2010
Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)Photo by New England Hemophilia Association (@NewEnglandHemo)
Patients waiting for the next breakthrough can't afford policies that slow innovation. S. 2658 adds unnecessary burdens on researchers with no proven problem to solve. Oppose #MAPIA. #PatientVoices #PatientsFirst @SenatorHassan
1
25
When insurers control #PBMs, pharmacies, and even the providers who write prescriptions, they steer patients and dollars to their own pockets. We appreciate @SenWarren taking on this important issue. bit.ly/40SEGRW #InsuranceConsolidation #HealthCareCompetition
2
45
Recently passed #PBMreform legislation is a crucial step to correct the broken incentives in our prescription drug system and improve drug affordability. We hope @POTUS keeps up the pressure on the large insurance companies and their PBMs.
46
Insurance costs have outpaced wage growth by a wide margin, leaving many New England families and #patients vulnerable. Big-insurance is becoming a big problem. teapaw.org/hntrbrkmedia/status/20…
NEW: Insurance giants are hiding billions meant to lower Americans’ drug costs. Our year-long investigation details how CVS, UnitedHealth, and Cigna created shell companies to evade reform efforts and hide payments received from drugmakers. Cc: @mcuban
75
“For the hemophilia community, consistent and affordable access to specialized medication is not optional — it is essential for survival.” In an op-ed in @NHBR, NEHA's ED, Rich Pezzillo, highlights how #PBMs drive up costs and limit access to lifesaving treatments for patients.
1
1
1
63
A new bipartisan bill in Congress, led by @SenatorHassan @SenWhitehouse & @SenPeterWelch would implement reforms to PBMs that increase transparency, curb harmful practices and bring meaningful relief to families across New England. Read the op-ed below. bit.ly/rp-pbm25
1
1
42
The new Crapo/Wyden #PBM reform bill is a smart, bipartisan solution to help patients. We want to thank @SenatorHassan @SenWhitehouse @SenPeterWelch for their leadership and encourage the rest of the New England Senate delegation support this bill. finance.senate.gov/ranking-m…
1
49
The New England delegation serving on the Senate HELP Committee should champion #PBM reform and demand it be added to any healthcare package. #Patients all across the northeast could use a win this year! @SenSanders @ChrisMurphyCT @SenMarkey @SenatorCollins @SenatorHassan
39
Please take up H. 6209 before the end of session. This nonpartisan bill would save patients lives. @sdonovanbristol
39
New England Hemophilia Association retweeted
This month, we recognize the strength of those living with bleeding disorders. Early diagnosis, access to treatment, and research advancements are key to improving lives. Join us in spreading awareness! @NewEnglandHemo @nbd_foundation #BleedingDisordersAwarenessMonth
1
1
37
Thank you for meeting with us, @Rep_Magaziner! We’re looking forward to partnering with you to protect Medicaid and the patients and families who rely on it every day for the care and treatment they need.
Great meeting with the National Bleeding Disorders Foundation to talk about protecting access to life-saving care. Every Rhode Islander deserves the treatment they need, and I’m working to make sure those with bleeding disorders aren’t left behind.
1
53
Thank you for meeting with us today, @Rep_Magaziner. Please support the HELP Copays Act!
5
46